flare ups
Posted , 7 users are following.
Hi fellow sufferers any advice please. I finished taking Pred a week ago as my Esr was 10 and all pain and stiffness under control after two years. now I have groin stiffness affecting walking just as I had in beginning. Am not sleeping writing this at 5am. Severe hand pain with Arthritis waiting to see hand consultant. Joints in knee stiff, is this a flare up.Any advice welcome.really feel like going back on Preds as I felt great on them.Must take into consideration I am an active 75yr old I suppose. Blood tests today .
3 likes, 12 replies
pam41628 beatrice74480
Posted
Did you do the slow taper as reccommended? Pam
tina-uk_cwall beatrice74480
Posted
When I read that you were all done and dusted with PMR within 2 years I immediately thought how lucky you are. But I think I've read that the quicker one "recovers" from PMR the higher the likelihood of it returning. I wonder what the bloods will reveal, I suspect a slight rise in your ESR levels.
if this is the return of PMR then obviously you'll need to go back on the preds without delay, hopefully that way you may not need to go on a high dose but on to a relatively low dose that will keep the remaining fizzling PMR under control. What a shame and I do feel for you. You must have been so relieved to have been told that you were now free from this wretched condition.
i wish you all the best, christina
beatrice74480 tina-uk_cwall
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MrsO-UK_Surrey beatrice74480
Posted
Your blood tests may obviously provide an answer if they were raised at the outset of your PMR, although from reading other people's experience with returning PMR, their blood tests didn't always correspond the second time around.
You mention being an "active 75yr old" - therein could lie the answer to any relapse. It is recommended that we still take special care not to overdo things for up to a year post-steroids as it can take that time for our bodies to totally recover.
If this is returning PMR, then the most important thing you can do is to get back on steroids asap - a 10mg starting dose this time around will probably control the inflammation provided it's got at quickly. Lots of good luck wishes and do come back and let us know.
Oregonjohn-UK beatrice74480
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beatrice74480 Oregonjohn-UK
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beatrice74480
Posted
I.is a wonder drug
MrsO-UK_Surrey beatrice74480
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EileenH beatrice74480
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Time for a long discussion with your GP...
EileenH beatrice74480
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If the blood test is up - the sooner you hit back the better.
beatrice74480 EileenH
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EileenH beatrice74480
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Yes - I'm beginning to feel that they shouldn't be able to dictate whether we have pain or not. The contrast with my GP is so strange - I saw her a couple of days ago to get the suitcase full of prescriptions and mentioned I'd been stiffer and had a bit of pain recently - had taken 10mg instead of 4mg the night before and did feel a LOT better. Fine she said, handed me a prescription for the 5mg tablets so I could try 5mg regularly and if it helped. 1mg is neither here nor there. She has worked in rehab (our rheumatology) so sees the pain and disability in PMR - but then, here you often get physio and regular assessments where needed.