Flashing arcs in left eye for 10 years

Are you in London? Have u heard of Moorfields eye hospital?

Hi Jane 

I am in Cornwall, i have heard of Moorfeilds and have a whole host of problems which I have seen specialists down here for to do with my eyes (I had a squint and ended up having three operations as they didn't work and i am now left intractable double vision and have to lose the use of the vision in one of my eyes. Intractable doubel vision isn't unheard of but is very uncommon and has no cure) i am still seeing the consultant now for it and have explained all this about the light flashes etc. and he just doesn't know. The two consultants i have seen down here have both worked in Moorefields and are the best at what they do. I am just one very unlucky person. 

Hi Jennifer

I would still request an appointment atMoorfields as things change so rapidly and they may be able to help you. I kknow London is a long way from Cornwall but........

If u are receiving benefits financial help can be givenwith fares, hotel etc.

I have been offered one and i have said if we are no further forward in say a years time then maybe then i will look into it. I have seen two top consultants. There is a lot of background work being done on me I think as it is very unusual what I have and I don't think it will just go by the wayside. Let's hope I can get an answer. Thank you for your replies. xx

Have you also seen a neuro ophthalmologist?

Yes I have seen two, my main one sent me to see the other not for the flashing lights but the intractable double vision they both have just said what is going on with your brain!

Perhaps now is the time to see someone at Moorfields?

Yeah if I don't get anywhere I will, I just hate hearing I don't know, I don't know why your three operations went so wrong when it should have only been one I don't know why you have intractable double vision I don't know why the problems you have with your vision are there and hearing that again I think I would scream xx

I understand. Hs happened to me several times. Don't let it get you down.

Perhaps write to a private ohthalmologist for an opinion.

?Have u been checked for any auto immune diseases of the eye?

xx

I have gone private and NHS and the consultants are the same don't get me wrong my consultant is so lovely and very very good they just describe me as unique. What sort it auto immune diseases? X

JENNIFER

I sent you a PM. I mentioned auto immune so the drs may exclude it.

Thank you x

Thanks Cara. I really tried dealing with the hundreds of flashers I get everyday. 10 years is ridiculous to deal with this. I can't read, watch tv without multiple flashes. Now they happen just walking from light to dark. I think I just need to sue at this point. The doctors that is. This type of tear or partial pvd is fixed in other countries. Not the U.S. though.

It's the same story here in the UK. If they can find a tear in the retina then they will repair it. I have a hole in my retina that's been there for years and that hasn't been repaired because they say it's low risk compared to a tear. I now have PVD and they say all they can do is monitor it to see if it causes any tears. They say I will get used to the flashes, but obviously this might not be the case if you are still noticing yours ten years later. I know how disabling it can be. Prior to these issues, I used to enjoy reading and I have not been able to work either as I worked on a computer all day which is now not possible. I really hope you manage to get some kind of resolution to this in time. Take care x

Yes. It's been a nightmare to deal with. How long have you had your flashes and how did they start?also, are you myopic? My injured eye is very myopic, which is prone to problems. I would rather be blind in my problem eye at this point myself. How many flashes do you see per day. Mine start the minute the sun comes in my room, even with my eyes closed.

I have only had my flashes for a few months now they just came on gradually and then got worse. It started in my peripheral vision in one eye and then before I knew it I had them in both eyes along with floaters. I can't get away from the flashes, they are there all day and even when I close my eyes. I find that if I am busy walking around etc then I don't notice them as much. They are also worse in certain lights and in the dark. They are there all day long though and drive me crazy. I have always been near sighted and this does increase the chances of other eye problems. Unfortunately, they just can't do anything to stop it. I'd there's a retinal tear, they'll give laser treatment for that but having read some other feeds on here it seems some people have developed problems such as flashes from such treatment so I guess you can't win!

It's so horrible,.no matter what causes the flashing. I've never been a negative person in my life, but this has disabled me. The doctors.don't care.if patients become suicidal either because of this condition. I'm trying to save my life, and I'll go and raise.awareness for this if I have to. I am threatening bringing the news stations in to my next exam. I am a 3 x.Guinness World Record Setting artist and the news knows me here. It seems that the only way to get people's attention nowadays is.to sue and or cause.a.stink. it's so very sad. I've read countless stories of patients being treated for floaters or fov surgery. And they can't do this for flashes? For 10 years? Sorry, I have to vent i.just feel thst this is.such bulls*t sometimes trying to live with this!

It's awful isn't it. There's no recognition whatsoever of the impact these problems have on people's lives. I have seen on here that many people with eye issues have been driven to severe depression, anxiety and even suicidal thoughts. I have been suffering from anxiety & depression myself since all of this started so I can only imagine how awful it must be for you, having had to deal with it for so many years.

Literally same I've always been a positive person and I have been seeing flashes for a week only and I've seen an optometrist and said there's nothing wrong but then I'm worried because online I read that lots of people have been misdiagnosed several times. And that's freaking ne out even more thinking that I could have been mosfiagnsoed even tho mu retina wad Checked and I don't even know the cause of my flashes and my optometrist says its due to eye strain like WTF? (sorry) and I'm going disabled with my anxiety I think ik gonna go blind somehow and I think it might be due to retinal tears as idont have diabetes and I'm too young for PVD so in freaking out ? Plz help me why an I seeing thse flashes I don't even have PVD and I'm seeing them, what's happening I don't get it my optometrist said no retinal tear and people I've read about have been misdiagnosed several times so I'm FREAKING OUT

Mango. Are you myopic and or have had trauma in your eyes thst flash? Also when do you see.the flashes? I see hundreds of them per day depending on what lighting I'm in. I can't believe I've lasted 10 years with this bullsh*t. Docs.don't see anything wrong with my eye either. I would rather be blind in that eye. I'm probably going to sue the main doc I've been to several times over the years for the lack of treatment and mental distress this has caused me. I've been to 5 retinal docs.in Colorado and.none see anything significant. They just day retinal vitreous traction. But please tell me how and when your flashes started, how often they are and what they look like Mango.

I have read that it can although not as often as it does in adults. I have researched pvd and retinal detachment and both conditions can cause similar symptoms. Frustrating to say the least.

Lori,

Did they rule out giant cell arteritis?  I had flashes for years.  My eye docs (4) couldn't figure it out saying probably ocular migraines.  Drink coke or coffee when it happens.  Fast forward.  Moved back East and within months was diagnosed with branch retinal vein occlusion which also caused inflammation to the macula and flashes and blind spots. Try another batch of doctors till they figure it out.  Isn't worth chancing  it.  Meanwhile, wish me luck.  I have to move back to Denver area.  Good luck.

I think all that was ruled out. I have permanant flashe's from my injury in 2007. In 2010 I had shadowing for a.couple weeks and it went back to flashing arcs all the time. I'm getting sick from it now. I hope it doesn't kill me. I'm really worried. What happened to your eye that gave you the flashes and how did it resolve?

Also, I don't know if it's the stress from constant flashes but I'm really tired all the time and fear I have depression from this.

Do you think I could have a.stroke from.this? I'm worried sick now. I've tried dealing with it for 10 years but I feel dull aching near the inner part of my eye.

.

I have had zig zag flashes which come on suddenly and make it difficult to read etc. No headache. Ophthalmologist says ocular migraine.  I am throroughly depressed by it and it seems to ve worse having been put on anti depressants.  I am wondering if the sun is causing it as imdidnt have many during winter. I am at a loss as there seems to be no treatment.  Can go a while without then they come back. Anyone else?