Flu like aches with recurrant outbreak

Thanks i will go back to doctor and request different meds. i feel drained and nerve pain is relentless although sores seem healed. Don't know what's worse.

No he has not caught it ..we have been together 8 years.

Oh i went through menopause years ago.

Wow. That's amazing . how did he react to the disclosure?

Hmm..... Something has changed for it to trigger. Take a daily probiotic w over 2 billion bacteria and 3-5 different bacteria. I used to constant non-stop 24-7 have nerve sensations and nerve pains. I haven't had debilitating nerve pain since my primary ob. If the nerve pain is bad, tey wellubutrin if it isn't debilitating and if it's pretty bad, ask your doctor for Lyrica or neurontin. Think Lyrica has less side effects than neurontin.

I was up front ..he was fine, doesn't worry about what might happen and said we are together for keeps so we deal with with it as and when. He knows it is not my fault.

Hi.. just a quick update...been on Acyclovir 400mg for 8 days and slight improvent in flu-like symptoms but still getting intermittent nerve pain in vulval area in buttocks and down left leg..sigh I am functioning but it is getting me down..3 hour drive to Bristol for my daughters wedding Saturday could not have come at a worse time. Sitting for long periods makes my crotch area ache.

You seem very knowledgable do you think it will settle or is this nerve pain likely to be a permanant thing on and off. Also could my stress and stomach problems (gastritis) have contributed to this bad attack. I have been worrying about stomach cancer (which it wasn't) and not sleeping well.

If anything is off balance to an extreme level in your system, herpes will be sort of an alert to that, because it triggers it. The stress of your daughters wedding, the stomach issue, etc can all be triggers.

Some people do get nerve pain from obs, I used to have severe neuropathy from my primary OB that last months. I think for now you should just stay on the meds, until your nerve pain clears up.

In the meantime, I would also request to be given nerve lain eds like Neurontin or Lyrica. That's what I tool and it made life bearable once again and I could go about my life.

Make sure you start taking a daily probiotic.

I don't think it's permanent, but I do think until things settle w your life and your body, you should stay on meds daily.

Hi again, I saw the GU doctor this morning and she told me to stop taking the tablets for the time being as there are no lesiondas she thought they may have something to do with my weak legs and nausea. She did however manage to get me an appointment with the consultant GU for tomorrow so hopefully he may have some ideas on how I can settle this pain because the lesions have gone there are no blisters left just the pain. it is very tiring dealing with this pain. I will let you know what the consultant says. the doctor today didn't seem to think that nerve pain came after an outbreak she was only aware of pain prior to an outbreak, she was even hinting it could be sciatica, which it most certainly isn't because it's I can feel it really aching and painful in my vulval area as well as the back of my leg. I feel they don't believe me.

Thank you so much for being there..i feel lost and alone although my partner David is wonderful I still feel he doesn't really understand if you know what I mean. It helps talking to someone who's been/going through this..

You know, it's very unfortunate that over in the UK, you guys have such a hard time w getting treatment for this. It doesn't matter if you have lesions or not, you're having symptoms and you can also state you'd like to stay on the meds to better protect your partner. I recommend seeing a GYNO, not a GP, as they are rather ignorant when it comes to STDs and behind the times.

Request to be put on valtrex then, that's what I take and some people have bad reactions to certain antivirals.

Doctor's always think that in regards to the nerve pain, because they are taught the basics about herpes. I had no lesions for the months after my primary OB, where I had severe neuropathy so bad, I felt like a burn victim. If they even bothered to do some research on their own, they'd find out that this is more common than they think, as a result of herpes. I still have some nerve pain from time to time. Herpes can present as sciatica, don't let them blow you off and tell you it's not, because it is. Just request nerve pain meds and to be kept on meds daily for awhile.

It is sacral ganglitis you are experiencing from it. Sometimes our immune systems go into overdrive and starts attacking the infected peripheral sensory neurons and breaks the sheathing on the nerves, which causes pain and paresthesia. That means that the virus is in the sensory neurons and your immune system is detecting it and preventing it from going straight to the surface of the skin, hence no skin lesions, but it has not run back up into the sacral ganglia and gone into dormacy either, which is why you're still experiencing symptoms, because it's still trying to breakout.

Most of the time, i have a dull ache in my buttock and back of thighs; knock on wood I haven't had it for a couple weeks for the first time since I've had this. Do a Google search on neuralgia caused by HSV and bring it to the doctor to show them, that others absolutely do experience this.

You're not alone in doctors not believing you, this happens to people a lot w them not believing you. I would bring in evidence to prove to them others are having this. Make a request to be seen by an infections disease doctor, they'll believe you. Most docs are taught only the basics of herpes. Not much was done or researched on it when they went to medical school.

I know how you feel, when it happened to me during my primary OB, a good friend even said to me, maybe it's just all in your head, people can convince themselves they feel pain. I was so offended. I work from home and had to take 8 days off and I couldn't sit up for two weeks and worked lying on my side. Sitting for long periods would add further pain in my tailbone. It takes a lil bit for nerve pain meds to build up in your system, but it allowed me to go about my normal life again.

Do a google image search of the sacral ganglia. Those pictures will show all the nerves that come out of the sacral ganglia where HSV hangs out and you'll see the web of nerves from there that reach your entire anogenital region, buttock and back of thighs. To me it is common sense just by looking at the pic, to see why it could cause nerve pain, but doctors don't listen and learn from their patients anymore. They stick to their text book protocols. It's a shame, it really is.

I know how you feel and I'm here for support any time. Hang in there, it gets better.

I forgot if you told me how you got this. Did you get it from your ex husband?

I never knew for sure he never had symptoms possibly asymptomatic because there was only other one other boyfriend prior to that. and I had symptoms before I met my current partner so it definitely wasn't him. I can remember I only had one really painful blister around 12 years ago I can't remember whether I felt unwell like I do now as it was at a very stressful time in my life. but I can remember getting pains like nerve pains in the past as well however not as long lasting as the ones I'm getting now.

So you didn't have your ex get tested? I'm just curious how long you went w out being infected, before you caught it. My mother doesn't believe people can go w out being infected for 30yrs.

well I met my husband in 1971 I had one partner prior to that. I can't remember the first time I had a sore down below but I can remember once in a round 1983 but I did have some sores a cluster on my butt cheek the doctor gave me something zovirax cream I never knew what it was then. after that the only one that stands out in my mind was around 12 years ago in the canary islands where it was so painful I went and stood in the sea for relief. I still didn't know what it was and it just cleared up. since then I suppose I had 3 sores then this last one which is the worst. and yes it can stay dormant because i asked the gu doctor. I also ask my GP and he agreed so are they either both lying or is true and I very much doubt they're lying to me not very professional.

I think mum's and older gen still see it as something as a stigma...as my doctor said its just a cold sore but down 'there' nobody bothers with people that get cold sores. people walk around with them all over their mouths/nostrils and nobody bats an eyelid. At least ours is covered up haha.sorry I shouldn't laugh but sometimes you have to otherwise you'll go crazy.

I am seeing a Consultant/Specialist in Genital diseases tomorrow. So hopefully he will be more savvy x i have some info saved on my phone all ready to show him. I was told he's a really nice guy so hopefully he'll be open to what I have to say.

Oh no, it absolutely can stay dormant, I was just telling my mom this story and she doesn't believe me or of others who go 30yrs and then boom. So it upset me last night that she thinks that eventually a discordant couple will infect the other one and it made me feel like a leper. I stated to her she's been w her husband for 13yrs and he's never given it to her orally or vaginally, sh clearly falls for the stigma.

So you never asked your husband about it? Did he ever mention getting sores?

I know! That's exactly what I said and HSV 2 rarely ever transmit to the mouth, it's like 1% of cases and in immune comprised patients, yet HSV 1 spreads very easily orally and to the genitals, so it is completly lost on me why society can make it like it's not big deal, but HSV 2 is. I'll tell you why, because the majority of people have it orally and you can't hide oral herpes and make it your dirty little secret, so they had to down play it and act like it's nothing, because it was the elephant in the room. This convo w her last night bothered me so much, that I even teared up today, because after how much I have educated her on this, as I am very well versed in this, it was shocking to have such an ignorant reaction from her. It also seemed cocky thebway she did it like, yeah right, I'm pretty much doomed to infect anyone who touches me.

Good luck and I'll say a prayer to you!

Well I guess it's just one of those things we're going to have to live with. if people don't believe how common it is and how easy it is to catch it there's not a lot we can do to prove it. do you live with your mum? I suppose they just come from another generation and don't understand. I will pray for you too.

I tend to believe there's a reason for most things happening, although for the moment I can't understand what this could be I'm off to see the consultant specialist this evening I hope I get some good advice and I hope he is willing to consider that I am suffering from post herpatic nerve pain. my main problem is, yes the pain is bad sometimes but I can deal with it going about most of my daily chores however working sat at my desk for 9 hours is terrible :O if you've got any ideas of how I can ease it I wpuld be grateful. I've tried cushions I've tried standing up and moving around every few minutes but it just makes me so grumpy and I end up snapping at people which is not fair on them. I don't want to dose myself with pain killers all the time. let's just hope the pain eases but it's been 3 weeks now. I feel as though it will never end. Anyway hope you are ok x sorry to ramble on so.

speak soon.

Hey I work from home too what a coincidence.Thing is because I'm at home my boss thinks I shouldn't be off sick and if I do get sick I should still work because I'm at home if you know what I mean.

No, I'm 33, so I don't live w her. :-)

Nothing eases it except for nerve lain. When I'm feeling aches I'm there, the more I sit, the more it feels tender. It's too much compression on irritated nerves.

Nerve pain meds are not narcotics, narcotics won't do anything for nerve pain. They are actually anticonvulsants. The only aide effect I had from them, was feeling off balance when I stood up and a little sleepy, but that was it.

You're not rambling on, I understand the frustration. I was on them for 3-4 months, as mine was so severe. Then I've never had to take them again.

Oh I know what you mean. My boss called me on vacation and reemed me out, because in wasn't working on vacation. Yeah... Nice right?

I'm leaving to go and see the specialist in an hour. please could you tell me the name of the tablets you are on for nerve pain. thanks very much speak soon.

Neurontin or Lyrica... I think Lyrica may have less side effects.

Excellent, I have had Neurotin before but as a prophalactic for migraine so I know I am ok with that. I will let you know what he says

So your gyno believes that you can get nerve pain from HSV ?

Yes, but she's never seen anyone who got it as severe as me. I was withering in pain and crying. I was pushing my feet into the car floor board to lift my butt off the seat as I drove to the ER.

I didn't get nerve pain until after the initial breakout.. Like a week later

How awful for you :'( hope you stay free of it x

Just to let you know the specialist agreed with everything that you said. he has no doubt that it is post herpatic nerve pain. he is convinced it is the stress of my other health issye (my gastritis) and my daughters upcoming wedding that caused my OB He advised me to go back to my GP and request gabapentin if it doesn't settle by Monday.thank you so much for your support please keep in touch.

I will remember you in my prayers.

Ooohhh good!! I am so glad you found a doctor who actually listened to you and believes you. Did he at least write a note for your GP to prescribe this for you, because I worry they might not agree? Why couldn't he just write you a script?

Lol... Did you have him read my posts? Lol

I read him your posts and he was smiling and nodding. He said yes that is exactly right.so I am to ho to my GP when I am back from Bristol if the pain has not settled. My GP is a lovely lady and I have no doubt she will be willing to give me the neurontin especially as i have had them before. He also said if i feel another OB coming on just start the acyclovir again. He reckons once the wedding is over and i am back in my routine it should settle down.

So tomorrow I am off to Bristol my daughters wedding is Saturday and I will be home Sunday..I will be glad when I am home as I have not spent a night apart from David in 6 years and I have been stressing about this x which has also contributed to my OB x

thank you for being there, you are a sweet caring person and I hope you keep in touch. I will let you know how things go.

Bless you x

I'm so happy for your outcome w this doctor, nothing can feel than when they look at you like you're crazy.

Not many people have nerve pain from it and that was a huge reason why I wanted to be an advocate on here to help people, because I've been through the doubt.

I at the time when I got this was going through testing for symptoms id been having for a yr or more w a rheumatologist and I was diagnosed w two autoimmune diseases shortly after infection. That rheumatologist looked at me like I was crazy when I told her about my nerve pain and how for months I was breaking out on my extremities, what looked to be small blood blistered, which I was convinced was small vessel vasculitis. That can happen from medications or your immune system freaking out. She said only people w herpes zoster gets nerve pain like that and promptly diagnosed me w fibromyalgia. I know I do not have this, but she just didn't want to believe that my nerve pain was caused by herpes. Even when I was on nerve pain meds, if I tried to get off my valtrex, those red bumps would pop back up and the nerve pain would come back.

That just goes to show you the ignorance in the medical community and how much they don't listen to their patients anymore.

Feel free to send me a private message on here any time.

Now try to enjoy your daughters wedding and breathe a big sign of relief!