1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Fluid retention?

Posted , 2 users are following.

Guest
Guest

I was just wondering if anyone had alot of fluid retention when this started? Within a few days I was retaining about 10 pounds of fluid when this started. I had swelling in my ankles, feet, knees, wrists, and hands. At the time I was stiff and sore in all those joints, but felt that my hip, shoulder, and neck joints were good. I could not make a fist. It was really hard to move. After blood work, I was told that my aldolase, ESR, and C-reactive protein were all elevated. Its been about 5 months since this all started and I can notice what feels like a pinched nerve in my left neck/shoulder area. Thighs feel a bit fatigued, but no pain anywhere. I am currently on 9 mg of prednisone a day. I was 43 at time of onset and am now 44 years old. I was just wondering if anyone else had a similar onset.

0 likes, 6 replies

6 Replies

  • mrs_k
    mrs_k

    Posted

    mom2

    Water retention is a common side effect of Prednisolone. (Read the leaflet supplied with the steroids - don't frighten yourself - not everything happens - just some of it).

    I gained, like you about 10lbs of water (apart from the other weight gain).

    My GP prescribed water tablets and they do help to get rid of it to a mangeable level.

    After about 6 months the water retention settled down and I lost that weight.

    But I still take the water tablets once in a while as it creeps back up.

    mrs K

  • Guest
    Guest

    Posted

    Thanks Mrs K for replying. I am aware of the side effects from prednisone. I actually had the 10 pound fluid retention before I started on prednisone. Then my GP put me on furosimide (diuretic), but that didn't do anything. It wasn't until I started on the prednisone (from my rhuematologist) that I lost those 10 pounds in a week. I just didn't seem to present like most people do with PMR. Sometimes I think my doctor has the right diagnoses and sometimes I don't think its the best match. That's why I was asking. Thanks.
  • mrs_k
    mrs_k

    Posted

    mom2

    Care to email me via this site?

    mrs k

  • mrs_k
    mrs_k

    Posted

    mom 2

    Sorry hit the wrong key.

    Look at the item in the index headed -

    PMR-GCA: Diagostic Procedures : NICE.

    mrs k

  • Guest
    Guest

    Posted

    Hello Mrs K:

    I would e-mail you privately but I can't at this time. I am currently working with the administrator to get registered. I have not been able to register successfully yet.

    I did fill out the equisurve listed on the other sight. It will be great when all that data gets analyzed and others can view the findings.

    These sights are great because as much as family members and friends love you they just don't really understand what one is going through.

    mom2

  • Guest
    Guest

    Posted

    Hi mom2

    Sorry I get 1,000's of emails a day through the Patient Site and I can't seem to find one from you with regards to your problem registering.

    Please can you send me an email to avoid it going into my spam inbox and we get the problem resolved with you.

    Regards

    Lin

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.