Fluoroquinolone Toxicity Syndrome

Hi Donald, this may well help - where did you find out about this? 

The only thing I would add is that the pain may be localised to your ankle but the toxins from both the fluoride AND the Fluoroquinolone (whichever one you took) will be in every part of your body.  People often recommend to add Epsom salts to a bath and have a good old soak to get the magnesium in all over.  Many also take a magnesium supplement. There's loads of other tips in these discussions - good luck with it all.

I took cipro.I ad borax because my cities water is fluoradated.When I took magnesium orally i got diarrhea. I do not have a bathtub.

I assume you're posting this here because you've taken a fluoroquinolone and are experiencing adverse reactions, not just random adrenaline explosions?!

Yes, this is common.  Some describe it as panic attacks, some say they're just instantly wide awake for no reason - usually after finally dropping off.

It's to do with the way the FQ is affecting your central nervous system. They can cross the blood-brain barrier and cause all kind of havoc with depression, anxiety, insomnia, panic attacks and the light sensitivity and cluster headaches - and more.  All this is a free gift on top of any muscular/joint/tendon problems you may have.

The top tip is to not panic.  These feelings usually pass in time (often to be replaced with others). Panic, anxiety and depression can all encourage you inflammatory response which won't help at all so the best thing to do is try (try!) to remain calm and cheerful at all times!  Tell yourself that these feelings won't harm you (despite your racing heart) and that staying calm is the only option.

Being unable to function well - that's all part of it too.  Also you may be a oversensitive to sunlight - just as the weather is finally doing something. Many people find they get sunburn very easily.  Are you UK?  I should have asked before I said about the weather!

I'll mention this here as it may interest others. Re the EMA public hearing on  Fluoroquinolone  to be streamed live on their web site on Wednesday of this week. I looked at the site and assume that you are speaker number 5 if this link can be passed.

http://www.ema.europa.eu/docs/en_GB/document_library/Agenda/2018/06/WC500250066.pdf

I hope to get home in time to see your participation as my wife has a maxilla facial appointment at 1.30 following her second neurology appointment on Tuesday on a mysterious on going  numbness in her mouth and from under her nose to her chin that has been worsening over the past two years without a diagnosis. She has not taken Fluoroquinolone as far as we know but she has had several other antibiotics, She has always been allergic to penicillin and had a severe reaction to an antibiotic prescribed for a dental abscess.. 

I put in a link to the live stream that I though members might watch but it has been deleted by the moderator. However they can search for it on YouTube under European Medicines Agency and get the whole five hours of fascinating viewing.

Many new things to be aware of came up in it.

Thanks for posting the link Derek, (and the Moderator!).  I think it will be available indefinitely so something for the world to watch!

A lot of interesting things certainly came up, especially the inflammation specialist from Glasgow University.  We feel quite optimistic that something will be done - but it won't be quick.

One of the last speakers, a woman from S. Africa was good. Anyone know her name ? Debbie Kinrid (sp?)

Dear Veewat,

I assume you are referring to the EMA Public Hearing which took place in London on June 13th. I have a list of the "Registered" speakers but there are no Debbie and no one from South Africa. But it was quite an event and,as I understand, it went on for hours. So the one you are looking for was an ad lib speaker? Just guessing.

Warm regards. alan86734.

 

It lasted about five hours but well worth watching. I've copied the audio of the summing up and Miriam's part to give to my doctor. The Spanish pharmacist prescribed the drug by his doctor father in law shows that even insiders are not familiar with the effects and how they can occur many years later and be triggered by other drugs such as steroids many years later.

I was first prescribed it in 2012 and on later occasions but the full effects did not hit me until June 2015 when I initially blamed Bisoprolol.  

If anyone can't find it on Youtube and want the link PM me and I will send it to you.

The South African lady was prescribed it when visiting England.

Everything said in the summing up gives one hope but I worry about the scientists who it will be put to.

Will it open a floodgate of claims against the manufacturers ? Miriam said that there had been a successful claim against a British GP who prescribed it to a patient who had previously suffered from tendonitis and was more likely to be affected.  

Yes I am referring to that video. The woman I speak of ( Debbie Kinrid ?) was at the very end with two others called at the last minutes.

it was a great video.

Dear Veewat,

I've just been informed by Derek as follows:

"The South African lady was prescribed it when visiting England".

If I hear any more I'll be happy to pass it on to you.

Warm regards. alan86734.

 

I've whizzed through the video to her part but cannot make out her name because of her accent. I did not sound like Debbie Kinrid but perhaps others have a better ear for it.

Derek, many, many thanks for the EMA presentation. I'll get back to you once I have digested it.

Warm regards. alan86734

You are most welcome. I don't understand why the moderator did not allow my direct link to it. It was a public discussion with nothing that was copyright in it.

I think the software picks up any addresses than he has to decide about the content. I can message to ask if he will consider adding the link to the pinned post.

The South African/UK lady isn't listed as she and the last four speakers were attending as observers.  She did make her point very well.  It's perhaps best not to discuss actual names on this forum as it is open to public scrutiny.

Re claims, the one I referred to earlier was a fairly clear case in that the patient had a previous history of tendon problems plus was over 60 so, according to the PIL (leaflet), should not have been prescribed it.  Apparently it was a very difficult struggle with lots of legal insults but the claimant persisted with much help and support from family.  The compensation was a victory in name only as it bare covered expenses. Don't get too many hopes raised that claiming compensation will suddenly become open-house. It will be a very long time before any changes are made.

I think that the program holds them for the moderator to decide on as some later get through.

Not much hope of anyone being compensated in the UK but no doubt group actions will start in America. Our problem drugs seem from the hearing to be very individual dependent and any DNA or other testing would be too expensive and take too long.

I was in that patients category but the hospital who prescribed it in 2012 would not have known of my tendonitis about eight years previously. When I had an operation at the Freeman in Newcastle in 2004 they asked my GP for my previous medical history and drugs that had been prescribed.   He listed my history since I had been his patient in 1994 and added what he considered to be two major items from before going to him. One from Kingston Hospital was very obviously wrong in view of my later history and he removed it from my records.