FND diagnosis, but rapidly deteriorating, help.
Posted , 2 users are following.
My wife woke up on a sunny UK November morning 12 weeks ago to find she couldn't walk, she had MRI of brain and cervical spine (both normal), and left hospital a week later with a diagnosis of Functional Neurological Disorder, it wasn't something we understand, and the explanation that it was probably caused by stress was strange, I'll not explain why at moment, but she was in the least stressful position in her life.
She was able to walk with a frame when she left hospital, but slowly she lost the ability to get words out, and developed serious shakes, she slowly lost the ability to walk again, and half of her fingers became locked in the fist position, there's now no feeling at all in both legs, and she's incontinent, she's had tests on leg muscles and nerves and they're working as normal, eventually we went back to hospital, this time she was there for almost 2 weeks, but the neurologist done many physical tests and concluded the FND diagnosis was correct (no new MRI's).
She now has 2 carers, and things are still getting worse (though amazingly most of her speech has returned), but now she's losing strength in her arms and I'm terrified the arms will go the same way as her legs and leave her completely helpless.
We've got nowhere left to get answers, and I'm so tempted to try to get her to Turkey for some reasonably priced MRI's, I feel we're sitting back and doing nothing as her body closes down, she was a fit and active carer before this happened, and I'm a live-in carer.
Has anyone any idea what's going on or how we might get answers?
0 likes, 1 reply
julie888 steven52721
Posted
thats terrible im so sorry. Im in Canada. How is your wife now?