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FOG go away!

Posted , 5 users are following.

Maley_Bear
Maley_Bear

hi guys and dolls

my brain has really been getting on my nerves lately! I keep mixing up my words and the other day I put the remote for the TV in the FRIDGE!! Sometimes I wonder if this fog we get is masking it self as FM and is in fact something else? I quickly mentioned it to the doc the other day and he just laughed like I was telling him a joke! I don't want to sound like a hypercondriact but with my other diagnosed problems I certainly feel like one!! What should I do?

1 like, 14 replies

14 Replies

  • christine26761
    christine26761 Maley_Bear

    Posted

    Lol...I reckon we get brain fog..just to keep our sense of humour in the right place...what this Fibro doesn't give us at times  grrrr..or maybe it's to show others we do have issues..???? .have a lovely fog free day Marley Bear...be blessed....:-) xxx
  • caroline87056
    caroline87056 Maley_Bear

    Posted

    Hi, I am not sure anyone who hasn't got this horrible fibromalgia really understands. It may sound in passing as a joke but the way it affects our lives is nothing like a joke. My fog has got so bad that most of the time I can not leave the house on my own. I get lost by the time I reach the top of my road. Not only do I not know where I am, I can't remember how to get back home. It is so frightening. My latest thing is using the ATM. By the time I have put my card and pin in and asked for my cash, I take the card and leave already forgetting to take the cash as I don't remember asking for any.

    but you should go back and tell the doctor again how bad it is getting, I am being referred to the Memory Clinic. They cant make you much better but can give us ways of remembering things.

    Don't be fobbed off, write it down in the form of a letter and give it to the doctor when you see him again as there is help out there. I used to think the fog may be something else but the amount of people who have fibro who have this fog I now am sure it is part of the condition.

    Luckily the people I have around me just accepts I say things in the wrong order, and am always using the wrong words ( as driving with my other half today. Me- it says slow down ( the light up sign) don't you know the what the " temperature "of this road Is. 

    Also if I move anything indoors my girls just quickly raise their eyes as I reply yes I did move it the other day but have no idea where I put it. And believe me ,anything I move or tidy up could be anywhere. In fact half of my Christmas decorations that I could find last Christmas were found to day!

    joking apart go back and make your GP listen and take it seriously. Also don't let him put it down to age. I am 43 which I think is no where near old enough for my Fog to be do to my age

    rolleyes

    good luck and soft hugs

    caroline 

  • kaz_40
    kaz_40 Maley_Bear

    Posted

    Morning Maley Bear Im for ever getting my words mixed up, and coming out with words that are nothing to do with the conversation Im having people look at me gone out. I have been known to pour fabric conditioner in my tea? and put milk in the fabric container of the washer. Ive put polish in the fridge and jsut yesterday put teabags in their. Because of being so forgetful and not knowing what Im doing half the time. My gp last year sent me to a memory clinic mainly to rule out alzhimers. I did tests the lady that tested me said she had seen 8 people recently inscluding me that all had fibromyalgia and all had gone to her with the same problem.I dont go out on my own,I dont cook any more hubby does it, as ive burnt my self several times and not realized plus Ive put saucepan on cooker and forgot about it. it was by sheer luck my son went into kitchen and noticed it.I have to write stuff down as memory is so poor..Fibro for is connected to fibro but it has all different symptoms of its own.My dr took me very serious when I saw her about it she was quiet worried. Your dr shouldnt of laughed at you its not a laughing matter. I think you should go back and see if you can be refered to amemory clinic. Just to rule out anything else mine was put down to fibro. take care
  • diagnosisisalie
    diagnosisisalie Maley_Bear

    Posted

    I UNDERSTAND. I walk around, and sit saying you just don't understand. My brain isn't working. I am know stuttering and it is sometimes taking me a few minutes to finish a sentence as I forget the word I need for the sentence. I blame part of it on LYRICA, look up what it does to the brain.
    • caroline87056
      caroline87056 diagnosisisalie

      Posted

      Hi . I also take lyrical and was told it would help with both the pain and the depression I got because of fibromalgia. I take 200 mg at night and 100 mg in the morning. Have you found that your " fog " maybe linked to lyrical. I must admit it is not a drug I know that much about, which I know may sound like I am ignoring side effect but I tend to read the leaflet when I first go on to a new drug then forget about it, thinking that the doctors wouldn't be giving me something that would make me a lot worse, would they?
    • diagnosisisalie
      diagnosisisalie caroline87056

      Posted

      I am not sure where to begin, I take 50 mg at night, and sometimes during the day. It knocks me of my feet. It helped me at first with my pain, I can't say that it does so much know. I am still taking it as you must ween off of it ,and I need to make sure that I have my plan in action.I am going to a pain management clinic , until I figure out how to get rid of this . I also started acupuncture, never tried it before, been three times . It does not make you better all at once but I see improvements, I go in walking like I am 90 with the hunch back, and come out straight and tall for the evening. First off you realize that not all countries have accepted this medication. Next you realize that it is a medication that is often used for people who have seizures. It tottallly makes me spacey and tired. As my brain hasn't been working up to par , I started reading an article about it and from what I can tell is that it destroys the new neuron(it is a different word) to the brain.

      I am learning that some of these things have been a problem for half my life, so I am trying to fix the cause . I am the only person I know that can get lost in their home town when I have lived here30 years. Even sadder I can get lost finding my home being in the same block , or using GPS. I have given up driving, I hate it and it stresses me . I take Cymbalta for depression, I am 60 mg I can't say it works miracles but I don't want to find out by not using it. I am learning that as I wake up if I am having a bad day , I wear bright colors, I wear my neon organe hat or my neon pink flower laui , it makes me feel special as all eyes are on me , and I smile and I get smiles back.It is something fun, that many wouldn't do in their daily business. I am with my husband 24/7 as we are concern about my pain and what I will do , to over extend myself. I am a go go go person. I was raised you can rest when you are burried. I am a full time student , wife, mother, and a owner of a 501C3 bird rescue so I never knew the word rest. I have done pretty good up until recently keeping a 4.0 through college, but now I can barely move and can't finish my degree a semester away and I had to drop it.

    • caroline87056
      caroline87056 diagnosisisalie

      Posted

      Hello i take it from your answer you are not from England! I take a much larger dose than you and yes some reports say it can be bad, for me it has helped me with my pain. I also have to take two types of morpine and lyrical has stopped the need to incease that. As to my memory, mine has been bad since getting fibromyalgia and slowly getting worse. I can not go out alone as I can get lost at the end of my road and there are only 35 houses in

      my road. I am sorry you had to give up on college so close to ending, maybe if they either find a cure razz or better treatment you could go back. Before this happened I used to run a betting shop working 50+ hours a week and still be able to look after my two girls. We can dream through cant we. 

      It seems you are still able to have a some what full life, running the bird rescue must be really amazing. 

      Do you run it out of your back garden, and how many birds do you care for. You wouldn't like me for a neighbour as I have two cats! But neither cat stopped the birds eating all my figs from the tree the other day!

      hope you are having a good day

      take care and soft hugs

      caroline

  • caroline87056
    caroline87056 Maley_Bear

    Posted

    Hi, I hope you have been able to re see your GP about muddled words , muddled behaviour and memory lost and if you have I hope you have got on better this time. Please let me know how you get on

    soft hugs

    caroline 

  • HOTpicks99
    HOTpicks99 Maley_Bear

    Posted

    Hi i think there are many of us including me who at one time anothersuffer from the dreaded fog when i start having a episode i quickly tend to write what i have to do for that day and place on my fridge freezer its a bit harder when im in work one thing though my jobs the same every day and i have a lot of things wrong with me as well as fibro keep going there are plenty of nice friends on here who can give you the right advice take care
  • Maley_Bear
    Maley_Bear

    Posted

    Hi all

    thankyou all. I have rebooked to see the doctor again a double appointment too, and I have started to write down everything so I don't forget lol!  My husband said he would come with me if I wanted him too. I didn't know about a memory clinic so I will ask.

    I have been on Lyrical but was taken off it as I was suffering quite a few side effects. Yes I have side effects on other meds but not as bad.

    I think what gets me the most is all the complications that go along with the main issue, eg FM pain condition has side effects such as fog. I have a back condition too which effects my walking, so it effects my legs my knees my wrists elbows shoulders neck! A lady came today to asses me for a stair lift, when she asked me my pain levels and I told her 10 being the worst ever I said 5 to 8. She replied once a day once a week? I said every minute of every day! She looked at me like she didn't believe me. I had to explain what FM was and I still don't think she believed me. She was a social carer so I was surprised me she didn't know about it already! 

    Thankyou all for your replies I will let you know how it goes the the doctor.

    sleep tight and as comfortable as you can. Maley x

     

    • christine26761
      christine26761 Maley_Bear

      Posted

      Good for you Marley Bear,,,well done you....be blessed, have a lovely day..hooe things turn out favourable for you...:-) xx 
    • kaz_40
      kaz_40 Maley_Bear

      Posted

      Hi Maley Bear Im badly need of a stair lift can you tell me who I need to see or contact. Hope all goes well for you at the drs. some people havnt heard of fibro sounds like she hadnt. Take care x
    • Maley_Bear
      Maley_Bear kaz_40

      Posted

      Hi Kaz

      sorry I haven't got back to you sooner but I have been in hospital for a few days AGAIN! I really think they might as well keep a room just for me! I'm there often enough! Anyway. The situation with the stairlift is slightly different for me. My husband is in the forces, so they will (hopefully) provide one for me as we live in forces accommodation. I just needed to get a OT report to say that I am now in desperate need of one. Saying that though I did ask the OT about it and she said you need to ask your GP and get an OT to come and see you. It comes done as always to your situation. I know this isn't much help. I wish I could do more. 😓 Maley x

    • kaz_40
      kaz_40 Maley_Bear

      Posted

      Sorry to hear youve been in hospiatal bless you xx I will speak to my gp and see if she will get some one to come out see me. Thats excellent if the forces will provide you with a stair lift hun. Im definitly in need of one. You have been of help . you take care gentle hugs xx 
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