Posted , 15 users are following.
I’ve read some very interesting threads over the past few days about foods that work and foods that don’t. I thought this might be a good opportunity to reach out to the PMR community to ask you to comment on your own experience with different foods and food groups.
Thanks is advance for taking the time to answer.
0 likes, 7 replies
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Michdonn Daniel1143
Posted
Think positive and smiling. ☺️
sherri74011 Michdonn
Posted
Hi thank you for your positive input. Can you give us some specific information on your diet?
I know that diet can make a huge difference in how you feel. I've heard alot about going g low carb but for me I feel horrible on that type of diet.
I just recently started juicing my breakfast and when I'm not starving I also pull thru lunch with a carrot ginger juuce. Personally trying to eat more fruits and vegetables and limited meats. I was hoping for miracles, but so far disappointed.
Flutterbie57 Michdonn
Posted
My husband suffered terrible migraines too, but cutting out chocolate, coffee and cutting down on cheese, made a major difference to him many years ago. I think he has only had 1 migraine in 30+ years and that was due to overindulgence in alcoholic beverage on a merry occasion.
margot34956 Daniel1143
Posted
Hi Daniel, I have been on the anti inflammatory diet since Feb this year. Diagnosed PMR in Nov last year.
Since being on that diet I have lost 9 kilos. The pain hasn't improved. I have got the foods list although a bit confusing from the internet. Iv'e just ordered a book by Susan Parker called the anti inflammation diet. hoping that will be helpful.
Before the diet I was feeling nausea most of the time and generally unwell. That has now gone. Also as soon as I ate I would get very bloated. Not anymore.
I ate a very sweet tart this week just to see what would happen. The nausea was back as was the bloating and feeling really unwell.
Everyone is different.
I hope this helps. I wish you all the best
EileenH Daniel1143
Posted
My cutting carbs led to loss of all the PMR and pred associated weight gain - could do with losing more but I'd have to go totally ketogenic to do it and that requires consistency!
As it is I eat almost no fruit, few root veg and no processed carbs at all but loads of veg and salad as well as meat/fish and dairy in moderation. I don't refuse to eat carbs - pizza and icecream are occasional treats which I enjoy
I have at various times tried eliminating all sorts of things - gluten, alcohol, nightshades, tea. Nothing made the slightest difference. Except the highly commercialised wheat used for most processed products. I have an allergy to something in the structure of the starch and the local coeliac specialist at the time felt it was part of the autoimmune disorder underlying PMR as they appeared about the same time. It caused a severe itching rash - even with small amounts then. Now I'm obviously reasonably desensitised as I can eat small amounts which does make life simpler. I can also eat other less commercialised wheats such as spelt and kamut as well as other gluten-containing grains such as oats, rye and barley.
Twopies EileenH
Posted
Perhaps dermatitis herpitiformis? Celiac that affects the skin? My sister has it. You said its only when yu eat processed wheat, so maybe that's not it but your symptoms sound similar to hers.
EileenH Twopies
Posted
That was what I had thought because the rash really was typical of DH (you will know what I mean I assume) so was referred to dermatology where I met a rude and uninterested Frenchwoman who sneered "it isn't cancer..." (honestly, she really did!). No-one had told me I needed to be on a high gluten diet for 2 months before a biopsy (though in fact it is finding the marker in healthy skin that is the point so it shouldn't matter). So, I contacted the coeliac specialist and discussed it with him. As he said, if you can manage it with diet the only difference having a DH diagnosis will make is that you can have bread on prescription! Yuk!!!
But it isn't gluten - I couldn't eat gluten-free products in the UK made with the washed wheat starch Juvela uses for example but spelt, kamut and rye are all fine.