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Hi everyone! Just thought that it would be nice to talk to other people regarding Forestiers Disease. Was only diagnosed three months ago after complaining for a very long time that something was not quite right.
Am wondering why they keep telling me it is genetic, we have done the research inot both side of the family and went back four generations, nothing!!!!
No one on either side has any form of forestiers or even any major arthritic changes!
I have since found that over thirty years ago I was given a range of steroid injections and non steroidal anti inflammatories that caused some contraindications within my bodily systems and was wondering if anyone else has no genetic history of forestiers but who may have been given incorrect medications that have had a very adverse effect on their bodily systems.
The reason I ask is that over the years I have suffered through every hormonal issue known and then the bones and joints decided to break down and then reform in some very annoying and even dangerous areas. I have a very large bone spur pressing into my oesophagus that is causing major issues with swallowing and eating.
Have 85% of my spine showing spurs and the melting wax syndrome.
Have nerve damage in neck and left arm and also in the lumbar and leg areas.
Really need answers as would you believe a lot of doctors here do not even know what it is!!!
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