Forteo reaction?
Posted , 9 users are following.
FOR THREE DAYS I BECAME MORE AND MORE ALARMINGLY SHORT OF BREATH AND MY PULSE OXIMITER GAVE LOWER THAN NORMAL READINGS.
I went to the ER where they suspected a pulmonary embolus but all tests were normal of my heart and lungs. I suspected Forteo because I had absolutely no other symptoms/ illness. We discussed stopping the medication after the dr. did A LOOKUP showing FORTEO CAN CAUSE difficulty breathing and tight chest.
No what do I DO ABOUT THE SIGNIFICANT OSTEOPOROSIS IN MY HIPS? I WILL CONTINUE THE MICRONUTRIENT BONE PROTOCOL.
Any ideas?
0 likes, 14 replies
EileenH karenjaninaz
Posted
What is your t-score? Can't remember.
Prolia? Although that has its own problems...
karenjaninaz EileenH
Posted
Eileen when I posted the value last time you indicated it was significant.
lynda62707 karenjaninaz
Posted
karenjaninaz....if you find any answers, please let me know. I've been having much more problems w/shortness of breath lately. my doc is now concerned it may be a "heart thing" as well. I'm scared. I've got a cardiologist appointment in about a week.
take care and please keep me me posted. thx!
margaret22251 karenjaninaz
Posted
yes please keep us informes, as i too have found my breathing is worse.
Anhaga karenjaninaz
Posted
Was there a reason you were on Forteo rather than a bisphosphonate? I wouldn't go the Prolia route if you can possibly avoid it. Or have you already done the Prolia thing and Forteo was to deal with discontinuing that? Yes, micronutrients, but also whatever exercise you can safely do. I'm sure you've already found out about safe ways to move to protect your spine, as well as maintaining your sense of balance. Best wishes.
karenjaninaz Anhaga
Posted
I opted for FoRTEO because it us the only bone drug which would build normal bone as opposed to bisphosphonates.
IT is parathyroid hormone.
I tried fiosamax when I first STARTED ON pRED AND MY TEETH moved. I was continuing to use micronutrients until now but I WAS too weak for any strenuous exercise other than taichi. I feel stronger just being off the Forteo.
Whats the problem with PROLIA?
EileenH karenjaninaz
Posted
When you are put on Prolia it improves the bone density very well - and the idea was it would be used for 2 years, sometimes 3, and then stopped. It has now been found that when you stop it, there may be an immediate rebound effect of very rapid loss of bone density which has caused vertebral fractures. That means that you either stay on Prolia for life OR you switch to oral medication for some time until you stop that too.
So it's a rock and a hard place. The trouble is, many doctors are unaware of this yet, it is a very new finding, and they still tell patients it is just for a couple of years and there are no side effects. We really do need a lot more information and discussion of the pros and cons of any of them.
karenjaninaz EileenH
Posted
I started to read about Prolia's adverse effects one of which is 20% users get respiratory problems. Thats a no go for me since I already have reactive airway disease and restrictive lung s from scoliosis. ONLY 3% of Forteo users had pulmonary problems from it and I turned out to be one of them. Too scary for me.
My only path appears to be micronutrients and appropriate exercise. I Have a message to my rheumy but since stopping F I feel much better.
EileenH karenjaninaz
Posted
Seems to answer that question then!!! That's interesting - I didn't know that, thank you.
But the comfort is that low bone density doesn't necessarily mean fractures - my great aunt was tiny, skinny and MUST have been osteoporitic. Died of food poisoning at 88...
noosat EileenH
Posted
Thanks for information !
margaret22251 EileenH
Posted
My mother in law was six stone wet through 4FT10 and drank, smoked and died t 96 of natueral causes never broke a bone in her body.
she had a sharp mind and was the most sarcastic women i ever meet bless her.
i had many happy timrs with her. she must have had low bone density but she was ok, i think your genes must play apart in it all.
i often ask myself why did i get pmr, i ate well excerside, never smoked, drank a little whiskey. glad i did now.
sorry for ranting, must be the pain, aw well hope you all ave a good night.
EileenH margaret22251
Posted
Glad you had a nice MIL - mine was poisonous... Perhaps she'd have been better if she'd drank 😉
karenjaninaz margaret22251
Posted
I suspect, since physical activity has great bearing on bone health, that generation was out in the sun more, not riding in cars and sitting hours on a computer. Their diet probably had more bone nutrients than our fertilizer fed foodstuffs.
margaret22251 karenjaninaz
Posted
M MIL never had a twin tub washing machine most of her life, and had to work, thought she sat for her job(sewing machinest) she made my bridemaids dresses.
sorry should have said she HAD a twin tub
she was orphaned at 16 and had a really hard life
i do think are way of life is more sedate now.