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Forum/help pls specifically for IgA Nephropathy ?

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Allymorris
Allymorris

Hi everyone. I hope someone can help me please. My 22 year old son has been told he has IgA Nephropathy and his kidneys are functioning at only 30%. He has a biopsy scheduled for next week. I am devastated. He is fit and well with no visible symptoms and this has come completely out of the blue from a medical he had to join the Police. They found microscopic traces of blood in his urine and quite high levels of protein. His BP is slightly raised so he’s been put on ACE Inhibitors. He feels his life is over and we are all so scared. The insensitive specialist even asked him if he realised how serious this is. 

He had secured his dream job with the Police and now he’s been told he will never be allowed to join the Force and is facing certain dialysis and transplant. We just don’t know where to turn for advice and support. 

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  • james63339
    james63339 Allymorris

    Posted

    Hi everyone! My family just found out that my 9 year old daughter, Amelia has IGA nepthropathy.

    Like anyone on this forum, we are searching for some answers on how to manage this diagnosis.

    Does anyone have any suggestions? Is this curable?

    Your response is more than appreciated.

    Sincerely, James (dad)

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