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Found doctor in Orlando, FL who specializes in PMR

Posted , 14 users are following.

audrey80537
audrey80537

Today is a really bad day for me and i really needed it not to be.

Good news, I have a  new Rheumatologist in Orlando who lists PMR as his number 1 specialty.  I had been to him several years ago for my knee which is good because he is not accepting new patients.  Also, right before I called they had a cancellation for tomorrow.  Otherwise next appt. Is October.

Aside from my lower back pain and headache and fatigue I have a UTI and the antibiotic is upsetting my stomach. I'm a mess!

i will bring you up to date later tomorrow and perhaps I will have some new information to offer. It's the slight headache that frightens me.

 

0 likes, 33 replies

33 Replies

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  • Danrower
    Danrower audrey80537

    Posted

    Hello Audrey, 

    I am in central florida, and I think that the heat and humidity has effect on how we feel with PMR. Hope today is better.

    • audrey80537
      audrey80537 Danrower

      Posted

      Hi Dan,

      i wrote you a long note in response to this mornings post but my iPad froze and the post disappeared.  This heat is bad and I think unusual for this early.  Besides that we are having our kitchen done over and they turned the electric off for most of yesterday and today to knock the dropped ceiling down and redo the lighting so no AC. A bad time to do this but I can't tell when it will be a good time.  I think this is the worst part of the job at least I hope so.  

      Loved your poem.

      were you an Admiral?

  • LisaCACO
    LisaCACO audrey80537

    Posted

    sending your positive thoughts.  i hate it when it seems like everything happens at once. hope this doc is a good one. 
  • Mrs.Mac-Canada
    Mrs.Mac-Canada audrey80537

    Posted

    Hi Audrey,

    Sorry to here your having troubles.  I to have a UTI, first in 35 years or so.  Don't know if we can blame this on PMR or pred???

    best of luck with your appointment tomorrow.  Hopefully he will help you get straightened out,  I wonder if he knows about this website?  

    Hope your day gets better🌻🌺.

    Hugs, Diana🌸

  • EileenH
    EileenH audrey80537

    Posted

    That is great - hope he lives up to his claims!

    What antibiotic are you on? This is a good moment to repeat the advice: DO NOT EVER TAKE A QUINOLONE ANTIBIOTIC if you have been/are on pred. The combination can cause achilles inflammation which can mean months on crutches! Always check.

    The UTI may not be a UTI - have they done a culture? PMR can cause comething called irritable bladder syndrome, the lining of the bladder becomes very sensitive, and the symptoms are identical to any other form of cystitis. It is componded by the PMR affecting the bladder muscle and the bladder doesn't empty fully. The stale urine can easily lead to infections. Make sure you empty your bladder properly.

    Also, if you are taking calcium supplements and have a day where you don't drink enough it is possible for calcium grit to form in your urine - it irritates the urethra (the connection between the bladder and the outside world) causing pain - and you think it is an infection.

    • audrey80537
      audrey80537 EileenH

      Posted

      I did have my urine tested at a walk in clinic on Saturday.  It showed a slight infection.

      i am on Nitrofurantoin 100 mg. 2x a da

    • audrey80537
      audrey80537 EileenH

      Posted

      I hesitated in mentioning this but the heck you'll never see me😃 I also get a strong uncomfortable pressure in my rectal area from time to time.  It is not constipation, (I don't think) but I don't know. It comes and goes.

      i don't take calcium 

    • audrey80537
      audrey80537 EileenH

      Posted

      I never heard of a Quinolone antibiotic. If it has sulphur in it I wouldn't as I am allergic.

       

  • MrsO-UK_Surrey
    MrsO-UK_Surrey audrey80537

    Posted

    Audrey, as if PMR isn't enough!  Although, a pain, I wouldn't have felt you need to be too concerned about the "slight" headache at this stage and, in any case, that probably isn't being helped by the UTI.  

    Do you already eat 'live' yoghurt?  If not, that may help with your upset tummy, helping to line it against the antibiotics.

    I hope you feel better soon - the new rheumy sounds a good find...hope it goes well tomorrow.

  • penelope10875
    penelope10875 audrey80537

    Posted

    Hello. Canyou tell me what Quinolone is in English please. I tend to get UTI's (checked with a dipstick) and have been given an 'in case Antibiotic for my forthcoming holiday. Incidently this is my first in 3 years because I havent been well enough and I'm so excited and making myself ill wit worry, in case I get ill!!!
    • EileenH
      EileenH penelope10875

      Posted

      Quinolones are a group of antibiotics - like penicillins are a group.

      As a general rule, all quinolones substance names (not the same as brand names) finish with -oxacin: such as ciprofloxacin.

      Always ask your pharmacist to be sure - though that didn't help me, neither the GP nor my pharmacist managed to put 2 and 2 together and make 4 until it was too late!

    • penelope10875
      penelope10875 EileenH

      Posted

      Thank you again Eileen. Unfortunately that is just what they have given me!

      Back on the phone tomorrow.

  • faye______00403
    faye______00403 audrey80537

    Posted

    Wish you the best.   I'm near Orlando and curious about doc that

    specializes in PMR when a lot of them know absolutely nothing.

    • audrey80537
      audrey80537 faye______00403

      Posted

      Hi Faye,

      i have to send you a private message to give you the doctors name.

      i haven't the time to figure it out right now but if you know how perhaps you cand send me a private message and I'll respond.  Waiting at doctors office-got here early.  

      Audrey

    • faye______00403
      faye______00403 audrey80537

      Posted

      Just curious as to how he will treat you down the road.  I'm

      actually pretty happy with my local GP.   He's been my

      primary guy for over l7 years.  Like to know if the guy

      in Orlando does anything different.   PMR is such an

      individual disease.  After reading all these blogs it seems

      everyone  has a set of different symptoms and response to

      treatment.  I'm fortunate in that I've never had any real bad

      pain.  My doc spotted the PMR pretty quickly just because I

      had difficulty getting up out of a chair.   Good Luck and hope

      this new doc can give you some good advice which I know

      you will be kind enough to pass along to us.

    • EileenH
      EileenH audrey80537

      Posted

      Under every name and avatar at the side of someone else's post is a silver envelope. Click on it to bring up messages and you send a post just as you would anywhere else but only the person it is sent to can see it. It will need a title I think (can't remember if this forum does).
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