Four year old with LS

I find Epson salt baths are key.

Three times a day.

Overuse of the steroid cream can make it worse.

Loose clothes and no underwear.

Plenty of Vaseline to keep everything moist.

Hope this helps.

i am so very sorry to hear this. i know how badly things are for me far less being a child and experiencing this awful thing. until recently i didn't even know that children could get this. my gynaecologist told me that this is part of an autoimmune illness. if you are say, arthritic , diabetic etc etc you are more likely to have this occur to you. i hope that your daughter is being seen by a specialist gynaecologist who has experience with skin conditions such as this. i wish and hope that your wee ones flare up settles down soon.

Call your doc and ask if you could try a lower strength steroid...

you could try epsom salt water but dont put to much in and dont get it to hot. YOU Also could try a little bit of baking soda water. you can see if this helps Im 70 years old and yhose steroids burn the crap out of me.

Dear Woodlet,

She is 4 and you discovered it? What does it look like and where are the white areas? Sounds like she is steroid-intolerant. That does happen. I would try some Vit A & D cream, comes in tube, inexpensive. Soothes but does not cure. Stop all consumer type of soaps and Maybe try Cetaphil body wash. My pharmacist recommends it. Have you tried Coconut oil? It is so hard t o watch your children hurt. I will pray for her and suggest maybe another dr. Yes? No? Also try some over the counter calming tablets with valerian, hops, passion flower, etc. . they definitely help with anxiety. Hope some of this helps.

Which steroid was prescribed and how were you instructed to apply it? I have no experience with this disease and children , but my gyn started me off with triamcinolone which is mid strength. Because I once applied a tiny bit more I had a rather severe reaction even to that level steroid. It must be used very sparingly. I had to stop its use for at least 5 days. I would definitely call the dr if you haven't already to make him aware of what is happening.

I should think this doctor would have given you additional options to control the pain involved, particularly if he has treated children in the past. The options suggested so far would be a good start, but try small amounts. You can't go wrong with vaseline at least for the time being. It is thick and has a neutral PH.

I do hope your daughter is spared more suffering. Heartbreaking that this has to happen to a child, but it is known to affect children as well as men. It is we post menopausal women who are diagnosed most often though.

If everything suggested here hasn't worked, try to get a quick appointment to your family doctor or a clinic and see if they can help. Hope she can get some help. How devastating and heartbreaking. I have 4 grand-daughters and can imagine how this feels. Good luck and let us know what happens.

I am so sorry to hear that! What helped me was not a steroid (I react to strong steroids, too), but a mix of an anti-fungal and a low-strength steroid my ObGyn prescribed me. As she is 4, I would contact a functional doctor and have them do all their tests and figure out why she has inflammation in her body. I bet it's diet-related, but also there is always some genetic cause that gets triggered by the environment. I also use emu oil and a drop of manuka oil into the emu before I apply it. I started that after I healed the wounded tissue with the antifungal/low-dose and strength steroid. Hemp oil helped me initially the best. Upping my iron helped me, as I was anemic. Low hormones also affect me. Now, she is too young for that, but I mention that, so you are aware for the future. Hormones depend on minerals such as iron, copper, zinc and magnesium. Again, the first line of defense is to probably moisturize the tissue, lower the inflammation there to prevent damage, and then long-term manage all-body inflammation after you test her and see what's off balance. Functional doctors also offer fecal gut tests that would rule out/confirm bacterial, fungal or parasite infections.