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Frequent muscle twitching

Posted , 7 users are following.

charcey97
charcey97

Do you get frequent muscle twitching with your CFS? I get 1 -3 twitches a minute (sometimes less) and it drives me crazy. No discomfort...more so  just because I know it’s there and it’s abnormal. 

0 likes, 15 replies

15 Replies

  • Guest
    Guest charcey97

    Posted

    Hi,

    Yes I get muscle twitching. Neurologist said I have Small Fibre Neuropathy after ruling out Large Fibre Neuropathy.

    Quite common with CFS apparently.

    I find it annoying when it's my face but like you say it's not uncomfortable.

  • Guest
    Guest charcey97

    Posted

    Hi,

    Yes I get muscle twitching. Neurologist said I have Small Fibre Neuropathy after ruling out Large Fibre Neuropathy.

    Quite common with CFS apparently.

    I find it annoying when it's my face but like you say it's not uncomfortable.

  • lisa00385
    lisa00385 charcey97

    Posted

    That's very normal for us. We get so much weird stuff. Bizzare symptoms in all parts of our bodies. Everyday it's a new surprise!!

  • tracy47348
    tracy47348 charcey97

    Posted

    Do you take magnesium? It really helps with my restless leg syndrome. 450mgs a day or when needed. It may help your twitching. And yes Lisa, so many unwanted surprises!! Maddening!! Like every other day I'm saying "really???". Ugh

    • charcey97
      charcey97 tracy47348

      Posted

      Thank you all for responding. Yes, Tracy. I take Magnesium 450mg at bedtime. 😊

  • jeremy04366
    jeremy04366 charcey97

    Posted

    Yes, I do get twitching. It comes and goes frequently. My emg showed neuropathy, next one didn't. It comes and goes when it pleases with no rhyme or reason. No deficiency in vitamins or minerals. My worst symptoms is when I wake up with burning skin in the morning, like acid...ugh!!! I think our inflammatory cytokines love to play with us.

    • tracy47348
      tracy47348 jeremy04366

      Posted

      That is just awful! My heart goes out to you and those that suffer from fibromyalgia. I dont do well with pain! I just have the achy flulike ME/CFS and Pots(which sometimes causes heart pain- a scary one!)But my dysautonomia plays tricks on me with certain pains at different times. I had burning pain many years ago and my Dr prescribed nortryptoline. It was a godsend. Went off of it soon as symptoms subsided.
    • jeremy04366
      jeremy04366 tracy47348

      Posted

      CFS is fun isn't it? I always hear, "you look so good". I'm thinking..."try being me for a day" lol

    • lisa00385
      lisa00385 jeremy04366

      Posted

      I know I get that all the time. I mean thanks for noticing but turn me inside out and then tell me what you think.
    • Guest
      Guest lisa00385

      Posted

      Turn me inside out.......oh that made me chuckle. 😁😁

    • jeremy04366
      jeremy04366 lisa00385

      Posted

      Yes....it's the invisible illness. I'm always like..."trust me, it's there"!!!...lol

  • charcey97
    charcey97

    Posted

    I totally get it. I feel like crud most days (flu like aching in my neck, head, shoulders, and upper back, muscle twitching, shakiness, low back aches) and still drudge on to do my activities of daily living (some days with make up and a sense of style, some days not so much- lol). I know people have got to think I’m makin’ this stuff up! 🤦🏼???

  • charcey97
    charcey97

    Posted

    Speaking of...anyone have sciatica type pain with this? My low back gets so achey sometimes and it will occasionally go down my rear and into my left hip,  but not usually down the leg. Started about three weeks ago and comes and goes (but mostly there). Ugh...

    • jeremy04366
      jeremy04366 charcey97

      Posted

      My lower back and hips ache but of course....x-rays and MRI are normal
  • caroline_74621
    caroline_74621 charcey97

    Posted

    I get a light vibration that comes and goes down my leg. I also get restless leg where out if no where my leg will shoot out. It’s usually at night when I’m resting. It’s quite funny to watch 
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