Posted , 7 users are following.
Do you get frequent muscle twitching with your CFS? I get 1 -3 twitches a minute (sometimes less) and it drives me crazy. No discomfort...more so just because I know it’s there and it’s abnormal.
0 likes, 15 replies
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Guest charcey97
Posted
Hi,
Yes I get muscle twitching. Neurologist said I have Small Fibre Neuropathy after ruling out Large Fibre Neuropathy.
Quite common with CFS apparently.
I find it annoying when it's my face but like you say it's not uncomfortable.
Guest charcey97
Posted
Hi,
Yes I get muscle twitching. Neurologist said I have Small Fibre Neuropathy after ruling out Large Fibre Neuropathy.
Quite common with CFS apparently.
I find it annoying when it's my face but like you say it's not uncomfortable.
lisa00385 charcey97
Posted
That's very normal for us. We get so much weird stuff. Bizzare symptoms in all parts of our bodies. Everyday it's a new surprise!!
tracy47348 charcey97
Posted
Do you take magnesium? It really helps with my restless leg syndrome. 450mgs a day or when needed. It may help your twitching. And yes Lisa, so many unwanted surprises!! Maddening!! Like every other day I'm saying "really???". Ugh
charcey97 tracy47348
Posted
Thank you all for responding. Yes, Tracy. I take Magnesium 450mg at bedtime. 😊
jeremy04366 charcey97
Posted
Yes, I do get twitching. It comes and goes frequently. My emg showed neuropathy, next one didn't. It comes and goes when it pleases with no rhyme or reason. No deficiency in vitamins or minerals. My worst symptoms is when I wake up with burning skin in the morning, like acid...ugh!!! I think our inflammatory cytokines love to play with us.
tracy47348 jeremy04366
Posted
jeremy04366 tracy47348
Posted
CFS is fun isn't it? I always hear, "you look so good". I'm thinking..."try being me for a day" lol
lisa00385 jeremy04366
Posted
Guest lisa00385
Posted
Turn me inside out.......oh that made me chuckle. 😁😁
jeremy04366 lisa00385
Posted
Yes....it's the invisible illness. I'm always like..."trust me, it's there"!!!...lol
charcey97
Posted
I totally get it. I feel like crud most days (flu like aching in my neck, head, shoulders, and upper back, muscle twitching, shakiness, low back aches) and still drudge on to do my activities of daily living (some days with make up and a sense of style, some days not so much- lol). I know people have got to think I’m makin’ this stuff up! 🤦🏼???
charcey97
Posted
jeremy04366 charcey97
Posted
caroline_74621 charcey97
Posted
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