Frequent muscle twitching

Posted , 7 users are following.

Do you get frequent muscle twitching with your CFS? I get 1 -3 twitches a minute (sometimes less) and it drives me crazy. No discomfort...more so  just because I know it’s there and it’s abnormal. 

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15 Replies

  • Posted

    Hi,

    Yes I get muscle twitching. Neurologist said I have Small Fibre Neuropathy after ruling out Large Fibre Neuropathy.

    Quite common with CFS apparently.

    I find it annoying when it's my face but like you say it's not uncomfortable.

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  • Posted

    Hi,

    Yes I get muscle twitching. Neurologist said I have Small Fibre Neuropathy after ruling out Large Fibre Neuropathy.

    Quite common with CFS apparently.

    I find it annoying when it's my face but like you say it's not uncomfortable.

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  • Posted

    Yes, I do get twitching. It comes and goes frequently. My emg showed neuropathy, next one didn't. It comes and goes when it pleases with no rhyme or reason. No deficiency in vitamins or minerals. My worst symptoms is when I wake up with burning skin in the morning, like acid...ugh!!! I think our inflammatory cytokines love to play with us.

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  • Posted

    I totally get it. I feel like crud most days (flu like aching in my neck, head, shoulders, and upper back, muscle twitching, shakiness, low back aches) and still drudge on to do my activities of daily living (some days with make up and a sense of style, some days not so much- lol). I know people have got to think I’m makin’ this stuff up! 🤦🏼???

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  • Posted

    Speaking of...anyone have sciatica type pain with this? My low back gets so achey sometimes and it will occasionally go down my rear and into my left hip,  but not usually down the leg. Started about three weeks ago and comes and goes (but mostly there). Ugh...

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  • Posted

    I get a light vibration that comes and goes down my leg. I also get restless leg where out if no where my leg will shoot out. It’s usually at night when I’m resting. It’s quite funny to watch 
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