Fribriods, swollen legs, anaemia galore!

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Hi, I've just found this forum and am new to it so please bear with me! Its comforting to know there are ladies out there with the same problems as me. I had a mirena coil fitted and renewed every 5 years or so since I was mid 30s. Im now 48. Always had irregular periods and mid month bleeds. This year started suffering from really heavy bleeding/gushing, so had coil taken out (thats another story, it took 4 attempts (ugh), in the hope that it would sort the bleeding out, it didnt, the bleeding got worse. Noticed for some strange reason my left leg/ankle had swollen up, and had constant pain in right arm and left leg. The periods which happened every 4 or so weeks got closer and closer together. Doctor eventually sent me for a scan which showed several fibriods, they wouldnt tell me how big, and I'm seeing consultant soon. Ive now been off work for a month because its just not safe to go out (for fear of flooding/clots), apart from the unbelievable tiredness due to anaemia, and having to walk at snails pace. Just when I think things are calming down, hey presto there's another deluge, apparently its cos the bleed can't always get out when there's fibroids in the way. It would be great to hear from other ladies in the same boat, the tranexamic make me feel sick, I think the iron tablets do too. I'm getting fed up with the sight of pads, having no clothes that fit around my stomach, generally feeling like I'm going mad and feeling guilty about having had so much time off work, its unbelievable (maybe not) that its taking so long to get seen to - it really does seem that whenever I am more active, i.e. spend more time on feet, floods happen, last week unfortunately it went all over the sofa. If the consultant says I need a hysterectomy will I feel better, will my stomach go down, will I feel normal again. Would be pleased to hear from anyone, its not like I can go anywherejavascript:emoticon(':roll:')

Rolling Eyes

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  • Posted


    I can completely understand how you feel because I to have a fibroid and waiting to have surgery..I suffered too with heavy periods and flooding. I suffered anemia as well. Drink Prune juice its not very nice but it's full of iron. Have you iron tablets with freshly sqeezed orange juice. My blood count was only 8.5 and went to 11.8 in just 2 weeks.

    Good luck


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  • Posted

    Hi there

    Poor you, I know exactly what you are going through - it totally takes over your life and any self-confidence that you ever had goes completely out of the window. Hopefully, by now you will have perhaps seen a specialist. I started having really heavy flooding from the age of 38 and a feeling of tremendous congestion in my lower abdomen - and at times I felt as if I had been kicked in the stomach. It got to the stage that during a period (every three weeks), I didn't dare to socialise as I needed to visit the loo every twenty minutes to change tampons and towels - it became an absolute nightmare. As an ex-nurse I really should have sought help earlier - I ended up having to have an emergency hysterectomy as a fibroid was so large that it perforated my womb (rare)

    and is now pickled in a jar somewhere for medical students to view (nice!). Luckily, during the time I was flooding I drank Floradix Iron Tonic (available from Health Food Shops) on a regular basis - it doesn't taste very nice but has non of the side effects of iron tablets. I think this actually probably saved my life - as my HB was 11 on admission to hospital which was amazing considering how much I was losing. I have to say that the operation was the best thing I could have had done, and really should have had it much sooner. I kept my ovaries as they were fine which meant I wasn't plunged staight in to the menopause. From day one I felt really well, despite the scar and went on to recover really quickly. To be free of periods is absolutely brilliant - you feel so clean and DRY! I could actually wear light-coloured trousers for the first time in years and it was great to be able to chuck out towels and tampons from all my various handbags. So, if you end up having to have an op. don't worry - you will really feel the benefit afterwards. Good luck.


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    you poor thing, i know exactly what your going through, mu symptoms are exactly the same as yours, its unbelievable h0ow these fibroids affect your whole body, ive also got terrible pain in my arm, my hip, back,leg, behind my knee. has just been discovered that my largest fibroid i the size of a melon and its putting pressure on my spine and my bladder has shifted upwards. i was 9 stone and ive gained 10pounds now , my abdoman is enormous, beeding galore, and i have to phone monday to book in for hysterectomy, if your in the uk can usually ask for a hysterectomy, ive tried everything else, and now its the on,ly thing left to do and i cant wait!, so maybe you could try asking your gyne right out for one??.......just know this, your not on your own and we all know what your going through, i wish i hadnt have waited so long.....everytime my smptoms eased i thought that if i left it , it would go away, but it doesnt! so there was any advice to give, it would be get it sorted one way or another asap,and be free lf all these probs, good luck!



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  • Posted

    I’ve been struggling so much with walking due to pain in lower back and pelvis. I’ve been told I’ve got a large fibroid which is pressing on my bladder. It’s enlarged my uterus a lot. Before I knew I had a fibroid I had time off work for 5 weeks because of the back pain and lack of mobility. Since then I went back to work on shorter shifts. However between Christmas holidays and continuous back and pelvis pain I’ve not managed a whole week in work. I was sent home from work last week before I started my shift because I couldn’t even stand up long enough to walk down the corridor. I’ve not been back in since because I am struggling to walk or even get about without holding into something. I’m considering getting a Drs note to cover me until I can get mobile again but feel that I’m just giving in too easily or not trying to push through the pain. I feel like I’m making a mountain out of a molehill. Has anyone else had this problem? 
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    • Posted

      Hi I started on zoladex implants 4 weeks ago and this week the side effects have been huge (night sweats and very bad backache and itchy skin and headaches). I work full time and have always had lower back pain until a chiropractor found a joint out of place but I wasn't expecting to have backache again due to the fibroids or meds. Now struggling and have 2nd injection implant tomoz!!!

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