Friend's attitude hurts a little

Hi Lodger, how long were you on pred to gain over 6 stone?  That is amazing it came off in 6 weeks.

The first two years of GCA, I started on 60mg, twice I reached 20mg and then had to go back up to 60mg, took time to get inflammation under control (not unusual). What was unusual was the the axis, (hippocampus, pituitary, adrenal) went awol again and the enormous back pain stopped me from walking and I ended up in a wheelchair for quite a while.  As time went on, that sort of subsided and I became known as the 'Brandy Queen' and was able to dump the Chair for zimmer frame and walking sticks.  Mind no more than about two car lengths at a time.   We had fun with the wheelchair, especially when we went to buy new shoes and I got up and walked in the shop to try them out - faces were a picture and we fell about laughing.

5 year down the line, remission, weight loss, Bowen Therapy (which I wished I had triend sooner.   No walking stick, no zimmer frame, no palstic garden seat in the shower.   Normality, well nearly as I was now 5 years older. 

PS as my medics all said   I am a medics nightmare  I could have told them that years ago.

Just keep smiling.

 

Lodger, you mentioned you gained 6 stone.  How is the word stone related to weight?

I agree, it is a damn tunnel but there will be light at the end.  I Never liked any kind of tunnel - too chlosterphobic.

Audrey

 

Wow - "lost 6 stone in 6 weeks "  - I've never heard anything like it!  I would have imagined you'd be collapsing all over the place!!!  Most people would be happy if they lost 6 lbs in 6 weeks.  Are you sure it was 6 stone?!?  It's just mind boggling!

Big Oops, that should have read,  6 stone in 6 months.

Thanks Constance.

Lodger - wishful thinking.....!   6 stone in 6 months is certainly no mean feat though!

Everyday I learn something new from what has become  my PMR/ GCA friends.  This morning's  token of knowledge-a stone is equal to 6 pounds.

What would I do without Google?

From what I have read from Debbie and others in this group and myself as well it is my opinion that stress is a contributing factor to PMR/GCA.  It may weaken the immune system over the years.  

After my body started to wind down and I was Feeling a normalcy and  some peacefulness in my life that's when the demon struck.  

Twin

I did not do a thing, in fact the first time I noticed it a skirt dropped off in a supermarket   No I did not blush, I laughed and hitched it up  - it probably made somebodies day or an amusing conversation in a pub (no I don't do dinner parties).

Google got it wrong,  1 stone = 14 pounds.

and just in case

One 1 kilogram kg equals = 2.20 pounds ..

Sorry, my fault, a typo.  😥. Google was right and I was wrong and besides I just woke up. 

i use an iPad or my phone to send messages and a slip of one finger could change what I want to convey.  

That was a remarkable amount of weight loss you had in a short time.

Did it make a considerable difference in the way you felt?

I was already pleased because the GCA had gone into remission and I had had it confirmed.  It did mean I had to go out and buy clothes, as I had given all my ones that fit beforehand to the local charity shop as I could not stand the sight of them hanging up and laughing at me.

Tee hee, twin!  You weren't wearing a red hat were you?!!!   It reminds me of the day when I noticed that the Deputy Governor in the prison had come out of the loo unknowing that the back of her skirt was hitched up into her knickers.  My how her and I laughed about that.  And, no, before anyone asks, I wasn't an inmate!

Mrs O, you're incorrigable! You must be British if you call em knickers not panties! lol  Who'd be looking at knickers anyway if she was wearing a red hat?

When I am an old woman I shall wear purple With a red hat which doesnt go and doesnt suit ...

Guess what colour knickers  - read the poem by inserting that first line.

We are a bit of piste here, but it is lovely that we can all still laugh.

Talking about knickers (you started it)!!!!  Can anyone remember the gym knickers, school uniform?  Ours were brown and came down to the knees (no kidding).  We used to hitch then up with the hope they looked more like shorts.  Mam used to hate hanging them out in the garden - no dryers in those days! 

mine were the colour of the army uniform and itched just as much, awful!!!!!!!!11

Oh, I know, I'm sorry for hijacking this thread, especially Debbie's but I do hope she's enjoyed our little bit of fun!

As for school uniform knickers in those days, navy blue for goodness sake.  Used to hate undressing for gym as I was one of only two or three of us whose Mum's thought we needed liberty bodices over our vests to keep us warm!!!  And long grey socks, with garters!!!  St Trinians comes to mind.

Twin

Not to worry, the moderators on this site are brilliant, particularly Alan.

Hee hee!  (Never knew how to spell that)!  The mind boggles!  Oh for the good old days??!?  I'd completely forgotten about liberty bodices.

Ok.  back to Google for "knickers" which were worn way back by young boys here in the States.  I believe they were also worn by the "Founding Fathers" in the 17th century.  I didn't think they were panties or at least not bikinis. 

We wore gym suits in high school.  I hated gym especially after the teacher told me I should go home and Wheaties which was the cereal advertised as, The Breakfast of Champions.  I was always a klutz and not at all athletic.

Twin again Mrs O! I aked my Mum for bra at 13 and she said can't you manage with your liberty bodice a bit longer?!  I couldn't even get it over my head with arms up or any other way it was so tight! She wanted to protect my "modesty"! In other words, not let the boys know I was growing out as well as up. lol

Just another question!  What exactly were liberty bodices?  I can remember the name, but not the article.

It's a sleeveless bodice made of warm fleecy material.  It was designed in the UK in the very early 1900s and became very popular for children whose Mummys thought they needed keeping warm!  Believe me one of those worn over a chilprufe (woollen) vest did keep you very warm.  Google something like "image of a liberty bodice". 

Ellie, just imagine a girl of wearing a liberty bodice these days!  Some of them are as under-dressed as we were over-dressed!

Mine had rubber buttons on to hold up my ghastly over-the-knee black stockings and my bloomers went on over the top - still they did have a pocket!

It gets better and better! 😃😃  I know I wore them, but really can't remember how old I was and for how long.

Well I suffer from overheating these days! I only wear very light cotton clothing top half! I get heat rash plus allergy rash if I wear anything woollen, polyester, nylon etc. Any sctatchy fabrics in fact. I had a bad reaction to the BP cuff once when being monitored post op. All flashing lights etc and nurses came running to see what was wrong. It turned out be the cuff, my arm was bright red and swollen plus BP had gone sky high! It was an allergic reaction to the fabric of the cuff they said. I am or was a redhead, definitely Viking and we are a CF family too. It seems the Vikings were resposible for more than rape and pillage! (Liberty bodices too maybe!) lol

I'm so glad you mentioned that because I thought I remembered little rubber buttons. but didn't refer to them in case it was my imagination running away with me!  "Black stockings and bloomers over the top" - were you a St Trinian's girl?!!!!

The heat and allergy rashes sound most uncomfortable, Ellie - hope antihistamines work well when necessary.

Yes thanks they do help. The hot weather did not though, much more pleasant today even if it did rain! Nordic weather! lol

I wish - it would have been something to remember!  A Viella shirt went on next with our gymslips went on over the lot and we had the choice to either belt it or not (not, I kept losing it).

Two generations later and I wish I'd kept the school photos.  These youngsters today can't even imagine it.

 

Bloomers!  That's another word I'd forgotten- and they were definitely bloomers that we had to wear!

Do you remember gaberdine?  I used to wear a gaberdine belted coat over my uniform.

I had a gaberdine uniform - in the RAF - but it was my 'best blue' the everyday uniform was very hairy and rough but you got used to it.  If you are about underware the RAF called underpants - drawers cellular - which were very popular way back then ( they had lots of 'holes' to retain the air to keep you warm !!)

I wouldn't mind a gaberdine trench coat now!  In fact, can't find a trench coat at all over here.

I remember well the roughness of the RAF uniform from the days with my very first proper boyfriend!  As for the cellular underware, my hubby still sports the cellular vests!

Thanks for the tip about "image of", I've looked up several things since I read  it.

Plenty over here, Constance - Burberry do really some really genuine ones but they cost an arm and a leg!  Cheaper versiona are available though  and no doubt you can see them on Amazon.

Yes. we had blazers for the summer and gaberdine macs for winter, with a beret to wear.  I still occasionally see a youngster wearing a blazer (with the school badge on the breast pocket) and it instantly transports me to another age.

Two arms and two legs, I fear.   £2500 for some of them!!!!  Have seen loads on Amazon site (de) but they are all short.