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Friends I have never met

Posted , 7 users are following.

Maggers
Maggers

Do you remember the day of diagnosis - How did you feel? This is called Friends I have never met.

I still have that piece of paper

With its scribbled word Fibromyalgia

It’s tucked away now crumpled with dried tears

Tears of frustration or grief or relief

I really don’t know.                                                                      

So many years of not knowing the how or why

I felt so ill.

So what of now

Well from that lonely day of diagnosis

When sent away with the words

Be positive how could I be positive

I knew nothing, knew nobody afflicted with the same illness.

I looked around me the sun was shining

How could it shine today of all days did it not know

I watched the world go about its business

It seemed in slow motion

Oblivious to me and my tears

I watched people wander by and it struck me

They too had their trials and tribulations and may or may not

Have an invisible illness

I felt abandoned until

One day I discovered an on line world filled of people like me

Names,  no faces but characters all the same

With kindly words of advice and support

Friendly banter for the good and not so good days

And suddenly I feel alive, understood, appreciated

For I am one of many in a global fibro family.

 

5 likes, 30 replies

30 Replies

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  • lisa52101
    lisa52101 Maggers

    Posted

    I cried with complete and utter relief that I had a name to explain the madness and betrayal of my body. It's only been in recent months that I've come to realise just how little I understood about the impact this illness was to have in store for me.

    I have to admit this site and you amazing people have really helped to minimise the isolation I had begun to experience. Maggers your insight into how this condition affects us is staggering. Thank you for sharing!!

    I have had 2 referrals to a rheumatologist, the first was very dismissive and left me sore, tired and demoralised. The second ran the tests, saw me 4 months later to tell me I had FM 7months ago and I'm due to see him for review again 6th July. I haven't had any changes to medication and was just handed a booklet from Arthritis UK. despite the lack of medical support the day of diagnosis was still one of the happiest days just because I could say I wasn't making it up, being lazy, or soft. I really, truly have something wrong with me.

    • Maggers
      Maggers lisa52101

      Posted

      I can understand the relief. Sounds like you have a consultant who will actually treat you rather than  just send you back to your GP.   Think it depends where in the Country you are as to whether or  not treatment is available.  I'm waiting for a referral to a hospital that believes fibro can be managed.

       

    • kaz_40
      kaz_40 lisa52101

      Posted

      Hi lisa I know how you feel to finally be told whats wrong with you is a huge relief, as you feel like your going mad when specialists are so dissmissive of you. I felt a huge sense of relif when I was told. My rheumatologist just said to me go back to your gp for pain relif and that was it. hes no intention of seeing me again, unless my gp refers me back to him. it was like get on with it. so I went our nhs site and read up on fibro on their, when I saw my gp she sorted me out some info on it. the endless list of symptoms fibro throws at us how it affects our daily lives its a huge impact on us and our family.  I finally got my diagnoses last march, after 10 years trying to get an answear and countless tests mris scans blood test. I was so relieved happy to finally get an answear and be told what it was take care gentle hugs
  • Bee70
    Bee70 Maggers

    Posted

    You have done it again Maggers. So So True !! wink x
  • christine26761
    christine26761 Maggers

    Posted

    We'll done Maggers,...spot on once again...got to admit though...I actually celebrated once. I was diagnosed, I felt sooo validated all thise years of differing Symtoms being treated seperately..with no name for years...far toooooo many tests too. with Dr's saying there's nothing there.grr...that's gotta be the worst...in the end I really did feel like a hypochondriac....I was actually beginning to believe it was all in my head,!! Like most of us have done... Also people started to treat me different once they knew it had a name??? Wow!! It might be real....mm...

    I just love this blog site..being able to share with people all over the world, like we do..is really a saviour for many of us..such genuine empathy....well done to you again Maggers..be blessed and have a lovely day..:-) xxx

    • Maggers
      Maggers christine26761

      Posted

      I cried whether it was in relief or despair I am not sure - probably a bit of both.  I had resigned myself to the fact I was an oddity (probably still am!) and was destined never to have a name put to the symptoms.  I always tell people the condition does not define who I am. I am a person first and foremost and I just happen to have fibro. Fibro does not define who  I am.  I am still game for a laugh and if anything my humour has increased.  I am a great one for practical jokes.
  • TeresaJS
    TeresaJS Maggers

    Posted

    “Tell me, what is it you plan to do 

    with your one wild and precious life?” 

    ― Mary Oliver

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