Friends I have never met

Posted , 5 users are following.

This is for Judith and others who remember their day of diagnosis. It was posted over a year ago.

Do you remember the day of diagnosis - How did you feel? This is called Friends I have never met.

I still have that piece of paper

With its scribbled word Fibromyalgia

It’s tucked away now crumpled with dried tears

Tears of frustration or grief or relief

I really don’t know.                                                                      

So many years of not knowing the how or why

I felt so ill.

So what of now

Well from that lonely day of diagnosis

When sent away with the words

Be positive how could I be positive

I knew nothing, knew nobody afflicted with the same illness.

I looked around me the sun was shining

How could it shine today of all days did it not know

I watched the world go about its business

It seemed in slow motion

Oblivious to me and my tears

I watched people wander by and it struck me

They too had their trials and tribulations and may or may not

Have an invisible illness

I felt abandoned until

One day I discovered an on line world filled of people like me

Names,  no faces but characters all the same

With kindly words of advice and support

Friendly banter for the good and not so good days

And suddenly I feel alive, understood, appreciated

For I am one of many in a global fibro family.

3 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    Very well put, Maggers...

    We don't wish it on anyone

    But at the saw time

    we're glad we're not alone with this!

    I really feel for all those who have suffered

    Years before it was even recognised as a reality...

    Report / Delete Reply
  • Posted

    Hi Maggers, Yeap poetry does it every time, reminds us what sadness, anger or hard fought for acceptance we carry around inside us.  In the end the mantra, I try to remember is , BE  KIND TO MYSELF. Some days are easy others incredibly tough, I wish there was a an easy way to deal with this???

    Please more poetry 

    Report / Delete Reply
    • Posted

      Life isn't easy with or without fibro. Everyone has their own battle and we should never judge our fellow man. Acceptance of ourselves is the first stage to accepting others for who they are.  That one selfish comment could be the one that tips someone over the edge.  The reason we were given two ears and one mouth is that we should all do twice as much listening as talking!!   Will post some of the other poems in due course. Don't want to bore the pants off peoplelol

      Report / Delete Reply
  • Posted

    Oh Maggers,

    Wow...this truly says it all....I was told it was in my head!

    Frankly, I didn't care about what the diagnosis was because all I heard was "you are not crazy"

    And yes, you, all of you are my happy, smiling family...thank you...

    Big Hugs


    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up