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Hello, I've just registered after having read many threads to do with frozen shoulders over the last few months. It's been a godsend!
Im waiting for surgery to scrape away the build up and to allow movement (rather than mua). Since the condition first surfaced in late June I've been amazed at the lack of knowledge I've encountered and the arbitrary treatment I've received by some in the medical profession. I can only put this down to ignorance.
The physical impact of the condition was outweighed by the pyschological impact of helplessness, reduced capacity and what I can only describe as a near breakdown through my drive to keep going.
I can't change that, but I'm interested by mention on one of the threads of the connection between fs and deputryens (which my father has) and also auto immune conditions ( I have an under active thyroid). Which I haven't seen mentioned, but I wondered if there is a link........
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ann75691 Jelly2016
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Jelly2016 ann75691
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jaycee1956 Jelly2016
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Jelly2016 jaycee1956
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linda37283 Jelly2016
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Jelly2016 linda37283
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I wonder why then in my case given that there were so many indicators that my GPs(I saw three over as many months) were reluctant to refer me for a hydrocortisone injection (which didn't work and which my consultant let slip that had a better change of success earlier on in fs.) and with whom I had to fight at every stage. I was seeing a wonderful physio, who couldn't do much for me, but her experience of fs, pain management and what I should ask my go for were invaluable.
I wonder how how much work time is lost through fs. I believe that bad sitting at desks and air conditioning units blowing out cold streams of air are also contributory factors. But I also understand that there have been cuts to the health and safety inspectorate for workplaces.
Its stupid things like not being able to do up a bra, zip up a dress and style my hair that take a lot of getting used to. I've got one normal sized arm and one that belongs to a child.
I know now that the op may not be a success, but it's a hope and it will get better one way or another.
I'm probably still angry about it all...... Thank you for your words of support.... Glad I found this forum!
jaycee1956 linda37283
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linda37283 jaycee1956
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penny54223 Jelly2016
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I had a fractured neck and a wrist and shoulder injury on non dominant side which led to FS. 15 months of severe pain and numerous conflicting messages from the medical profession later I was booked for shaving of the bone and MUA. 2 weeks before op date the pain suddenly lifted dramatically although my arm would not move. I was so relieved and called to cancel the op wanting to wait and see if the arm started to move on its own. Surgeon persuaded me to go ahead saying it was the best time to do the surgery and my limited movement was not likely to improve anytime soon and the inpingement would likely only trigger the FS again. I therefore went ahead (Aug 15) and immediately regretted it because of the severe pain it left me in once the arm nerve block had worn off - not FS type pain, bearing in mind this had already gone at the time of the op, but all sorts of pain. Surgeon says I was the 1 in 300 for whom it did not work and wants to repeat it. I am scared for this. 5 months on I am in less constant pain but have varying levels of continuing pain and aching in arm, shoulder, neck. I now have some more movement but not great so intend to work on this more before ever considering surgery again. Some it works well for others not it seems. Links to other conditions I think is under investigated and under recognised. I am 54 and was at the end of the menopause when I had my accident. I know the symptoms of menopause. After the accident and FS I developed a whole new lot of symptoms, some similar to but def not the same and more like thyroid problems but blood test apparently showed no thyroid issue. My elderly dad fractured his neck and now has thyroid problems. Like many of us you research yourself and I found that blood tests taken at the wrong time of day can affect the result and no breakdown of the blood results were given to me (just told 'normal') could mean a misdiagnosis. I was diagnosed previously with fybromylagia (I think triggered by a previous car accident) and get very swollen joints in some of my fingers but the doctors simply say to anything it is either Fybro, menopause or stress and I feel no one joins the dots and one chronic condition can lead to another before the first is addressed properly. I have a good positive life and lovely family but this is all taking my mojo completely and withdrawal from social activity and exercise the norm now. Friends and family have sympathy but not empathy. If I take my dog to the vet I am given a full explanation, shown xrays and scans and shown detailed blood results which are all done quickly and efficiently - as humans you are made to feel guilty should you dare question anything. Unless you go private - I have friends who could afford to do so and their support and treatment has been brilliant compared to mine. Two, who each thought they had FS (as diagnosed by GP's) found it was a neck problem when referred privately to the right specialist. Both had immediate surgery to necks, relatively minor, and both cured of apparent FS! Full and accurate diagnosis is key and doctors acknowledging you may have more than one problem going on might also help.
My conclusion is that there are definite links between conditions but that the blood tests may be insufficient and then avoiding referrals to rhumatology and endocrinology specialists by GP's. This is short sighted when you think of the long term savings to the NHS if conditions are caught early on.
Wishing you all the best in your individual paths to a pain free future. Love and hugs to all of you x
Jelly2016 penny54223
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