Posted , 53 users are following.
I first noticed the symptoms of FS about 4 months ago - it seemed to come out of the blue for no reason at all. Just as mystifying was what should I do about it - do I go to a physio, GP, acupuncturist, osteopath, chiropractor - or am I better off doing nothing at all?!!
After doing some research, I decided my best course of action would be to go to an osteopath. However, what I would advise other sufferers is to be aware that this can be a very, very long process and can end up costing you a fortune!!
They gave me twice-weekly appointments at the beginning which I didn't mind paying for as I wanted to get myself cured as soon as possible.
The appointments involved gentle manipulation and she would give me exercises to do at home. My arm is gradually getting some small amount of movement back (although my practititioner did say that this was largely due to my hard work at sticking to the exercises) and the pain has diminished (although from what I understand this is part of the disease process and is probably nothing to do with the osteopath!)
In retrospect, I am glad that I sought treatment with an osteopath, but in my naivety I had not realised what a long process it would be and how much it would cost. I am still going to sessions but, at my request, I have staggered the appointments so that they are further apart.
I am now getting pains in the other side and unless I win the lottery, I feel that I couldn't possibly afford to go through it all again!!
2 likes, 221 replies
Steadyang
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My doctor told me I can get quick fix, but until now I still feel pain, I not too sure if it is normal, but since u also have same experience that pain still remain, it kind of make me feel more relief as I know that I am not alone. As of now, 5 days after the MUA, my only noticable result are, I can lift my arm up from the front and by the side 90 deg, though still has some pain, but compare to before, I only manage about 50 deg and the pain was already unbearable.
For any one who wish to do MUA including David from Singapore (I am SIngaporean as well) let me share my experience until today:
1) After the procedure, your affected arm will be numb and heavy as they will give you a nerve block as well as anaesthetic. It will last for about 1 day before you get your feeling back.
2) Don't expect to get to normal after the procedure, you need to go thru physio therophy, and trust me, you will not like them, as some said, it is torture.
3) I develop blue back under my arm, I am not sure when it happen, but I just discover 2 days ago, though my feeling after the procedure was that the pain actually move under my arm. My doctor just told me it is normal. I kind of suspect long needle injection during the procedure cause that.
4) All I want to say is, I still in pain, not some say that MUA has amazing result, however I am still only in 5 days after the procedure. I hope that if my condition really able to get improvement within a month, I will continue the report here and encourage those who wish to go thru MUA to go ahead.
Good luck to everyone, it is nice to find you guys here, but it is really not nice to have Frozen shoulder, it is in fact hell. Please keep the reports coming.
Oliveria Steadyang
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Steadyang Oliveria
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The MUA work for me perfectly, it has been 1.5 year from now, I totally forgotten my right frozen shoulder by now. I went swimming, play bowling lately, and everything go well
I remember after the MUA, I still have plenty of pain for 1 month or slightly more, and I even have blue black bruise under my affected arm, which my doctor said was normal.
I am however feeling a bit tight on my left shoulder now, which I do plenty of stretching on my arm these days, such as bending your arm behind your back like a folded chicken wing, the other arm fold over the top of your shouder from the front and try to meet your both hand behind your back. I determine not to get frozen shoulder on the other shoulder, because I was told for those who get it on 1 side,the other shoulder will also prone to frozen.
Thinking back, yes, it was so painfully, whether during sleep or sudden jerk action such as slaming close a door, could give you the unbearable pain for about 1 min.
For your case, a frozen hip, I am not too sure about MUA help. But I hope you can get a speedy recovery. Everyone here understand the hell of pain that this disease in causing us.
Oliveria Steadyang
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It was so nice to heard from you. When you go thrugh this terrible nightmare you wish you can talk to someone that went already thruogh the same, specially after surgery. It gives me relief to know that you had pain after your MUA. I still can have hope that mine will work. My problem is that is the hip and this carries all other problems with spine alignment and so.
Thanks and I hope you don't get the other shoulder that would be a nightmare. Im just so afraid that will happen to me.
I know one person that had it in one hip few months kater other hip, after this was resolved she got them in both shoulders. Just to think about it gives me chills. If you see her now she is perfectly fine she says it was too much for her.
But I also know that just 20 % will get it in another joint. So we just can hope.
Thanks once again and I wish you all the health of the world.
Steadyang
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Steadyang
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judyb
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For anyone else out there considering this procedure I would say do it. It isn't an instant - and definitely not an easy fix - but I am convinced that I would still have a frozen shoulder if I hadn't had it done. Bearing in mind what state my muscles were in after 9 months of little use I think I would have been much worse off if I had waited for it to fix itself - not an option as it's my right arm.
Good luck to anyone else out there, I'm hoping I will be normal soon but will continue to post and let you know!
judyb
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Steadyang
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I only have 2 sessions of PT after the procedure, most of the time I do it at home by myself.
This is something that I keep asking, should we push ourselve on PT or should we rest our FS, there are mix suggestions in this Forum,even my doctor ask me to do but not to the extend that the pain is unbearable.
I stretched myself on those exercises that suggest by the physio, but at times it was too painful which I am worry it do more harm than good, so I am wondering what is the best way, to work it out even at pain or go general?
Anyway I will continue to post on my progress, I will be returning to work next week.
judyb
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My physio said that I must stretch myself straight after the op even though it was painful but afterwards I must apply ice. Also I had to keep up the painkillers day and night for 2 or 3 weeks until the pain got more manageable. Now that I have quite good movement I am doing more gentle muscle stretching and this also helps maintain the movement in the joint. I don't take many painkillers now - mainly anti inflammatory gel. I even played golf today and it wasn't too bad!
HeatherL
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My experience has been one of 5 months of agony. I have a constant ache under the collar bone that radiates up my neck to feel like an ear ache and toothache. It hurts right through - front and back. At times it feels like a heart attack or that something is squeezing my lung. Another pain runs from there through the rotator cuff and down my bicep. I have intermitent pains (stabs and spasms) in the shoulder, bicep and forearm. Right now it is my left shoulder but the right has started too. I have done chiro, tens machine, ultra sound, laser, physio, and accupunture. None of these treatments helped - most made it worse. I am scheduled for cortisone shots in October. Like another post I sleep about an hour - hour and a half and then cry in pain for the next two hours to repeat again. When I jar it or accidently use it - it feels like I have ripped the shoulder off, I can't breathe, I feel like throwing up, it drops me to my knees. Heat helps sometimes. I see a massage therapist 2x a week. He presses on the trigger points (which leave me bruised) that causes a burn and pain of its own. I'm told that it is the muscles receiving blood flow again and the adhesions coming apart.
Louielouie123 HeatherL
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Then I was surprised after I woke up and my husband said, "you're lucky no anchors or any real bad damage just capsulitus and manipulation". So I cluelessly thought this would be a breeze.. So my husband told me(he's had a torn rotator cuff). Look I'm not a baby. I'm sobbing right now. I now have on and off stabbing neck nerve pain, nerve pain down to my one finger and forearm??? Why? I don't get why after 3 weeks this is getting so ridiculously painful. I live with enough back pain, why if this was just FS or whatever name people want to give it, it's not letting up? I feel it's getting worse. My husband said, "you didn't really have surgery, you'll be fine". Umm really it feels like someone took a ice pick and is still cramming it in there. Did I do this? I took my sling off on the 4th day and tried to push it.. Do you all think I did too much too soon. I tried to blow dry my hair on the 6 day and now as I put shirts on I scream out loud, but I still push it b cause he said I can't hurt myself it was just pulling on scar tissue(not as bad as his rotator cuff). I just started PT, he just pulled on it and dug into my joint. I've been to PT several times in my life, shouldn't they ice it or give me exercises? The kid said "no these aren't backs, we have to hurt you to move it again. He added that, "there are many more nerves in your shoulder then your back so it will hurt more". Well, first off not true. Hmmmm our spine has a lot of nerves buddy, they spread out from out spine to our arm, legs etc..and wth does that have to do with anything anyway? I just want to sleep again, breath again, Dress again and not feel this ridiculous sharp pain. Will it get better? Thanks and sorry for sounding like a big baby, but I've been dealing with chronic pain since I've been 34 and I'm really getting grumpy. Blessings~
HeatherL
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naida45292 HeatherL
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Heather L - you described my situation exactly. The tears and sleepless nights makes life hard.
I had shoulder surgery in Jan. 2014 after about 5 yrs of building pain and misery from overuse - fishing. Physio was hard - tried doing exercises on my own - but couldn't get back to physio for 5 wks. Did intense physio with massage after for a month straight - and hurt like h--l whole month. And all the pain killers etc. now it's 5 months and I'm going for MUA with arthroscopy in couple days. Hoping and praying for good help. After studying everyone's experience. It's scary but I'm better informed. All the massage & physio didn't get me anywhere - was over straining other muscles trying to compensate - for scar tissue that simply wouldn't move. One site said sometimes physio can make things worse - for that very reason. The massages helped and we're often horribly painful but $1000. Later had to quit - and condition didn't change. Think all said - I'd have been better to get the MUA 3 mths ago and then do the follow-up with swimming. As others have said. Thank you - all sharers.
james80413 naida45292
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naida45292 james80413
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1 week today since MUA & arthroscopic scar tissue removal.
Ortho surgeon said it was the worst frozen shoulder and scar tissue in a
Joint - he'd ever seen. Made me feel somehow - a bit comforted for
The horrendous pain of last 5 mths. I can lift arm up near my head now
But am still in soooo much pain. Swelling and bruising from manipulation
Are going down. Have done 3 physio and manipulation is horrible but I
Know I have to maintain movement. I ice couple times a day. Had to get off
Narcotic pain meds - which would help me sleep - but was getting impacted
Bowels. Bad news. It's 2am - took 2 Tylenol 2 hrs ago and still in so much pain. I think I worked joint to hard at home today. So afraid of shoulder freezing up again. Had impingement in shoulder (Jan.), with bone spurs
And calcified and damaged rotator. 2 tendons screwed to bone and bones spurs removed (Mumford procedure). Scar tissue apparently completely
Cemented rotator cuff in place. I believe I also had capsulitus going in
Cup as there was so much pain in back of shoulder and down back side
Of arm for years. Other shoulder is going the same way - bad - since surgery
In Jan. hadn't heard of chronic pain due to brain change. Am trying to
Relax and not be so angry at enduring this - and trust in God. Many days
I'm ready for heaven now. Things of earth don't hold the interest they did.
I think I may try cortisone shot. Don't like those, but - hurting so much.
May God bless each and everyone who is in pain today.
Oliveria naida45292
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I had MUA 7 weeks ago and even when gave me more ROM im still under a lot of pain. I feel the same jarred scarry pain if somebody get close to my hip. I don understand if I still have some adhesions around. im going to physio now but I dont know if I should continue is deadly painful. I just get in my car and cry my eyes out. I hope is a light at the end of the tunnel. We just have to have hope that like everyone else will be some relief and full recovery.
All the best for you Naida hope you keep posting here so we know how these precedures can help others.
All my best wishes for you.
terry74787 Oliveria
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Oliveria terry74787
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I just checked mine and thyroid was fine but I heard people with thyroid problems are more prune to get this disease.
Wishing you all the best .
terry74787 naida45292
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Oliveria naida45292
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Just wondering how are you doing after your surgery. I just eish you got over it and you are much better.
I had terrible pain for almost 2 years. I have to say this last week seems to subside much better, no pain without movement Im happy with that.
is hope Naida just a week ago I was in agony still and now I can say Im a little better. No perfect since I cant still walk but at least not that nagging terrible pain.
Im just hoping by now you pass the worst of all.
My very best wishes for you, wishing you a speedy recovery.
We have to believe that one day no too far we will be having fun and smiles again.
J
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