Frozen shoulder - choices of treatment
Posted , 53 users are following.
I first noticed the symptoms of FS about 4 months ago - it seemed to come out of the blue for no reason at all. Just as mystifying was what should I do about it - do I go to a physio, GP, acupuncturist, osteopath, chiropractor - or am I better off doing nothing at all?!!
After doing some research, I decided my best course of action would be to go to an osteopath. However, what I would advise other sufferers is to be aware that this can be a very, very long process and can end up costing you a fortune!!
They gave me twice-weekly appointments at the beginning which I didn't mind paying for as I wanted to get myself cured as soon as possible.
The appointments involved gentle manipulation and she would give me exercises to do at home. My arm is gradually getting some small amount of movement back (although my practititioner did say that this was largely due to my hard work at sticking to the exercises) and the pain has diminished (although from what I understand this is part of the disease process and is probably nothing to do with the osteopath!)
In retrospect, I am glad that I sought treatment with an osteopath, but in my naivety I had not realised what a long process it would be and how much it would cost. I am still going to sessions but, at my request, I have staggered the appointments so that they are further apart.
I am now getting pains in the other side and unless I win the lottery, I feel that I couldn't possibly afford to go through it all again!!
2 likes, 221 replies
terry74787 jillgrace
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Oliveria terry74787
Posted
Just wondering which kind of surgery you had and if it was successful?
Thanks
terry74787 jillgrace
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Oliveria terry74787
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Thanks for your propmpt replay. Mine is in the hip. I hope you are doing better. Do you recommend it? Im very tired of mine. I have 2 years without any resolve. Im basically disabled unable to walk or do anything of my favourite activities. I wish If I could only walk.
Thanks a lot.
terry74787 Oliveria
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mema_again jillgrace
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leslie61028 jillgrace
Posted
YIKES! My adhesive capsulitis people! I have been suffering from this awful disease in varying degrees -mostly severe- for over two years now. The first signs were pain and stiffness (I thought regular shoulder pain). But after six months I went to my GP, I had very limited motion and LOTS of pain - I could not grab my purse, wash my hair or wipe my hoo-hoo well, and taking a shirt off brought me to tears. I dreaded the shower and if bumped anywhere on my arm (sometimes anywhere) I hit my knees and could not form sentences. For me it is important to acknowledge the amount of pain that comes with this because those around us have no idea.
To qualify me in the pain department. I'm a woman in the trades- construction and horticulture. I have had two C sections, one forceps delivery with no pain meds and (at the least) five kidney stones with no pain meds. I think I have experienced pain... THIS AC IS AWFUL!
My GP referred me to a specialist. Orthopedic specialists move conservatively and even though I could not move my arm and I was in (yes, tears) excruciating pain, he diagnosed me with bursitis and gave me a cortisone shot in my bursa and sent on my way. I knew he was wrong, the shot relieved no pain and I got worse. I went back to the OS and BEGGED for an MRI which I finally got and was told that I had bursitis, tendinitis, impingement, type II acromiom and a torn rotator cuff and I was sent to PT where I got worse. (did not think that possible...)
I then went to a recommended OS specialist who diagnosed me with adhesive capsulitis and scheduled me for a manipulation. That really is great, I do recommend it. They put you out and have their way with your shoulder and the worst is over! I went home and immediately started to work with a different and fantastic PT and I was almost as good as new when I graduated a few months later thanks to her.
Unfortunately for me... a few short months after graduation, pain came back -same shoulder, similar pain- I returned to the PT (who is now betting on a complete RC tear), and then the Orthopedic surgeon to get another MRI because of the oncoming severe pain. I was diagnosed with AC again and bursitis (only?!! Yes, I cried again). I am opting for surgery this time because MRI's don't see it all. I want the Dr to go in and repair any and all things that he finds and hope that I get to forget about this whole ordeal one day.
My new plan has been to stay as pain free as possible till surgery (in three days). No PT and minimal chores. I grab my faithful ice packs, ibuprofen, T3 and or Tramadol and a channel changer or book as much as I can for less pain. I am not saying I am sleeping well or attending to my hair -I can barely get a rubber band on for a low disheveled ponytail- I got my blood checked for diabetes, thyroid, autoimmune- I am all good in the blood department. Must be something inside I think. I am hoping to avoid any permanent damage. There are things I would like to continue doing in my life
The lessons learned that I want to convey to my fellow sufferers is to get your blood tested, get a great Orthopedic Surgeon and a great Physical Therapist. Those are your new best friends. Oh, and loose braids and ponytails for ladies with longer hair and a 'Pineapple Moon' mu'u mu'u from K-mart. The stretchy collar and polyester are a good god send. Take it easy and trust yourself and your instincts. Don't be stoic. No one else can fathom this pain because they are not in it. I know there are a thousand things that need to be done- forget about them. I continued to mow several lawns for months and remodel a few bathrooms along with all of our many women chores because I discounted the pain I was in, trusting in the first OS that I had bursitis and received no good care advice. Total idiot- I wish I would have heeded my trusty body's warning- I would not have had to stay in so much pain for so long. This ice and rest thing is working better than the PT for me that seems to only aggravate the untreated AC and not really give any range.
My sympathies to all and good luck! Many mahalos to jillgrace and others for sharing your stories of pain and solution. Alooooha!
Oliveria leslie61028
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I appreciate all your info is so informative for this forum.
You are basically describing my case. Please I would love to heard from you after your surgery since manipulation (MUA) didnt really worked for me.
I would loe to know how effective is arthroscopic surgery in adhesive capsulitis.
Once again thanks a lot and all the best in your surgery.
leslie61028 Oliveria
Posted
I am four days after surgery and fine.
I had a LOT of bone spurs but no torn tendons. The surgon was great at showing me photos inside my shoulder especially because I did my homework and had asked him about specific areas.
I had part of my bursa removed, my acromium shaved, bone spurs removed, a cortizone shot in my joint, another MUA, shave & remove scar tissue and the bonus of a good look around and peace of mind.
I am happy with it and hope i can get moving on to recovery. The pain is not much more than i had before. I am able to take care of myself- basics like shower, food. maybe drive in a few days-. I'm sure PT will be harsh- I go tomorrow but am able to do the wall climb with my fingers and a door jam.
I think Idid the right thing for me. I'll check back in in a few.
Oliveria leslie61028
Posted
Im so glad you are doing great. I hope this really bring the joy and relieve you are looking for. I wish you a quick and easy recovery.
Please, do not forget to post your progress, most of the time we dont know the final outcome. Is just nice to reasure everyone that at the end everything will be o.k.
Im still waiting for the day when my condition is over and I will be here letting everyone know that, yes, have hope it will be o.k.
I think the worst beside the pain is the uncertainty of this condition.
Thanks, once again Leslie and all the blessings to you.
Oliveria leslie61028
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leslie61028 Oliveria
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Thanks for your well wishes-
I had 'Subacromial Decompression' surgery along with the other proceedures. Bursitis was one of the issues the MRI's picked up and my "in" for surgery. (taking out part of the bursa and shaving the acromiom (bone))
I (and my PT) REALLY thought I had a complete tear of my subacromial tendon. So I pushed for surgery- MRI's can't see it all-.Once I was open everything could be seen and repaired. My big surprises were bone spurs. I had a lot, everywhere, also very red and swollen everywhere. Very unhappy shoulder.
So far this hurts a little more than the MUA- that hurt about as much as the frozen shoulder... BUT people around me are nicer because they understand surgery.
No one understands frozen shoulder. I am so happy for this forum.
How are you today? Tell me your story- I am listening and feel your pain- Have you had a MRI? Do you like your Doc? how long after the MUA till you froze again? Did you go back to work shortly after? What do you do?. And your PT... how do you like your Physical Therapist?
Oliveria leslie61028
Posted
I actually was diagnosed with adhesive capsulitis of the hip. Nothing was shown in the MRI I had 2 of them along with ct scan and bone scan, radiography, etc...
So it was really hard to convince my doctor end everyone around me that was something wrong with my hip.
Like you said nobody understand adhesive capsulitis but everyone is simphatetic if they can see something.
I'd being suffering with this for almost 2 years. I had MUA in April this year I gain some flexion ROM but never exterior rotation. Now I have the same jarred pain as before. My hip joint seem to be really stuck and glue in to the other joint.
This is being the nightmare of my life. Im not able to walk for more then few steps.
I had to quit my job. I jus basically can not walk. The pain was unberable even with meds. Now seems like meds advil and tylenol with codeine help somehow, still in pain but not as bad. If I try to walk pains come back.. Im not in constant agonizing pain as before but I have so many other problems that goes along with gait and alignment. Im out of alignment most of the time. Doesnt matter how much I exercise since the hip doesnt move is no way to address that 100 percent.
I just dont know what to do next, maybe surgery but my doctor insist to go to physio. I couldnt stand physio before my pain was at 10 and after physio my pain went out of scale for few days. I had to stop, even the theeapist told me I needed some pain managment. So I did went to see other pain and rehab doctor. He told me he never saw a case like mine in the hip and he also insists in .physio. I think doctors never went trough this themselves so they dont really have an idea. He gave me a cortizone shot, but I had that before and didnt help. He gave me a second one and nothing change. Im so desperate, I cry of helplessness. Plus you dont have sympathy from anyone, they think is all in your mind. This is probably one of the most frustrating, painful and misunderstood diagnosis out there.
I just have to keep hoping I will see the end of the tunnel at some point.
Im glad you are doing ok and I really wish you all the success in your surgery outcome.
Hope all this will be a thing of the past for you.
Please keep us posted to all the ones here having some hope.
Blessings to you.
james80413 Oliveria
Posted
It would freeze, stay frozen, then, as they say defrost. We hear of people having a frozen hip and even diagnosed with a frozen hip but I can find nothing about one defrosting and returning to full range as in a frozen shoulder. Anyone who has lost range like yourself should be investigated for osteoarthritis of the hip. Rely on a good examination rather than medical imaging.
leslie61028 Oliveria
Posted
Thanks for sharing your story. It is truely heartbreaking and I am so sorry that you have been in that kind of pain for so long.
A few things get my attention. One, was that your heath care professionals let you remain in so much pain for so long. That is incredibly shameful. May I ask how old you are? Any other conditions that would make your doctors hesitate? My healthy gal pal is suffering from her hip too -tear in her tendon- and says because she is not a cute 25 yr old (she's a gorgeous 62 yr old) she gets dismissed. She went to several doctors before one finally diagnosed it.
And a big problem in my shoulder was the large amount of bone spurs (athritis) I had and that did not show up on my MRI. (I'm 50!)
My PT was happy that I had had the surgery. She said I would of only gotten worse- never better- with it. Also, she could tell from our past sessions that I should have progressed further with the stretches but could not because of the pain. Sound like you?
Again, I am glad that I got the surgery, I have more range of montion with less pain than I did going in, and I am only five days out from surgery.
I agree with James 100%. You should be investigated and not rely on imaging.
Please keep us posted- I wish you some wonderful painfree days ahead.
Oliveria leslie61028
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Im 48 yrs old. Yes I think my next step will be arthroscopic surgery I guess.
I will see my doctor again this week and see what he thinks.
I personally know a person that had adhesive capulitis of the hip both and shoulders both and all of them resolve by themselves in a couple of years. She was actually the one that told me after nothing wrong in all the studies that checked in to adhesive capsulitis.
I believe all my symptoms were as those in adhesive capsulitis.
Im so glad you are doing great in such a short time that gives me hope that I will be walking in the future.
Blessings
leslie61028 Oliveria
Posted
I am on day six of post surgery. I am getting close to getting off pain meds. Last night was only a T-3 to get out of pain and to sleep. This morning i was able to reach for my keyboard with no assistance or pain. It was wonderful!
I just got back from PT. It was a little intense, but it wont last forever and I got to do it right. I am a little ill from pain at the moment. Lunch and two ibuprofin ot to do it for me.
Please keep me posted with your journey. Any questions you want me to ask my PT for you on Friday?
Stay safe, you are in my thoughts and prayers. L.
Oliveria leslie61028
Posted
Thanks for offering asking your PT. I think my problem is really complex that I need to be in person for anyone to asses me.
Which country are you in? You are so lucky to be able to have surgery that easy. Here in Canada takes you from 6 months to a year just to see a specialist.
Im so really happy to heard you dont need much pain meds any more. Im so happy for anyone in this forum that pass through this nightmare.
I really thank you for keeping us posted since you became a hope for everyone here that are having a hard time.
Thank you so very much for your response.
Blessings
leslie61028 Oliveria
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I really hope I can be a success story. I'm tired of pain.
Thank you for all you do too- stay well
L.
leslie61028 Oliveria
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It is day 8 post surgery. My last session of PT was hard. It's a strange thing to be intentionally taking oneself to intense pain as the solution to escape it. In trying to get off the meds. I did not manage my pain well and got into the cycle of pain and nasua for a day. Thank goodness I had the next day off to get my bearings. I am still off the oxy but have taken the T3 a few times just to get a grip. Started to worry about dependance but think I am OK. I just need to take asprin before i start to feel the pain (all day).
I hope you are resting and well. Any news from the OS?
Oliveria leslie61028
Posted
You still will have some pain is just the way to recovery. Is just so hard after all the pain we have to even endure more pain. I just dont know how good this physio is, if is too painful.
But you are so close to recovery is just so nice to think you will be out of this nightmare pretty soon.
Thank you very much for the update. I would say, dont be afraid to become addicted to pain killers, take you dose required, you need them for now. Pretty soon you wont need them anymore.
Also remember, they say when recovering you have good days and bad days.
I will go to see my doctor Monday just to remind him of my standing appointment with the O.S. and to see if he can book me with an additional O.S. I would like to have two opinions. I.dont know how long until they give me these appointments but for sure I will have to be patient. I will let you know.
All my best wishes to you. Take it easy and have a good rest. Hope tomorrow is a better day.
Blessing to you.
leslie61028 Oliveria
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Today is 14 day post surgery. I took two aspirins at 3pm today is all- much less discomfort and range is quickly improving. Sooo glad I'm finally in the solution.
How are you doing?
Oliveria leslie61028
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So glad to see you are doing great. Seems like surgery was the right solution for you. Feels good not having to be concern of taking so many pain killers.
I can say, Im feeling better in the last few days. I do not have that throbing pain lately and I coming to the conclusion that my pain was related to the physio and trying to do more then I actually should it done.
I guess I was so desperate to get better that I push myself to the limits. I totally believe now that if you have pain you should let it rest, instead of forcing more pain.
The problem is, you become so concern about your diagnosis that you start thinking you have to do something about it.
Im so taking it easy and see if that makes a diference. Im already noticing it.
I still have no exterior rotation at all in my leg but I want to see whats next since now I dont have that terrible tendonitis I had. With the tendonitis I was feeling really stiff and my range of motion felt worst.
I will let you know how it goes. Is always good to heard someone else experience.
I wish you a fast recovery without pain and please keep us posted.
Have a great start to the weekend.
My best wishes.
J
Oliveria
Posted
I hope your recovery is progressing. Just to say hi and wondering how everything is going. Im thinking I will be next for surgery.
Best wishes
J
leslie61028 Oliveria
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Sorry for delay. Been traveling for family wedding and just got back to my computer and P&Q.
I am over 1 month now and still happy about my surgery. FS is still gone! Travel was a bit hard though, I tried to take care but I was not able to keep up with stretches and missed my PT. I came home sore and tired but have gotten back into the swing of things and my arm has forgiven me quickly. Still very limited and look longingly at my lawn mower, hand tools and a few other long lost loves. I guess JUST another 2-4 months and I will be close to normal. Beats going in the wrong direction with FS...
New in-law suffered FS in left shoulder. He only did PT once, said it hurt more so he stopped... That was three years ago and he (almost) has full range with minimal pain. Interesting. He also works as a teachers aid and was able to continue life OK. Sounded like he did not suffer severe pain like me and others. Needless to say, I am impressed that someone came out the other end of this intact.
I do not regret my choice to have surgery at all. I don't think that would have been my lot because of the chronic pain and other issues.
I think you have other issues going on with your hip and am glad you are still in hot pursuit of a solution. Keep me posted!!! Stay well
Oliveria leslie61028
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Really nice to heard from you. Im so glad you FS is.not longer existing.
I just went to my doctor, he still insists that I dont need surgery. He really believes physio would help me to bring back my ROM.
What I noticed is that if I dont exercise or walk more then I should I hardly have any pain.
The pain at night is really gone for good. I suffer of the most terrible night pain for almosy 2 years. In the las month or so I really notice not as aggravating.
I decided to go back to accupuncture and physiotherapy and see how that goes. This is my last chance to get better without surgery.
Im just a little hesitant myself because is my mobilty in play. I think if would be my arm I wouldnt think twice about it.
I wanted to recommend you a special set of tools that may be able to help you recovering after your surgery is call the King brand shoulder wrap. Just google it and read all the reviews of real people claiming is the best for injury recovery.
I just order mine and I will give it a try. I mention it to you because they claim is the best for after surgery, specially from a frozen shoulder.
Im glad you are doind great. Please keep us posted of your improvement.
Have a great start to the week.
Blessings
leslie61028 Oliveria
Posted
Hi Nic!
Sorry I lost our conversation and was slow to find it again.
First off- how are you doing? Is the acupuncture working for you? Did the doctor rule out a labral tear? I hear those can be painful, limiting and hard to find with imaging. My girlfriend has one and is limping around. She has tried stem cell treatment and is waiting to see if it will work for her. Most of us don't have that kind of money- especially after loosing work and or jobs-. Good god thoughts and prayers always.
I am coming out of this mess. I am done with the stretch portion of my PT and working on strengthening now, I have 4 more PT visits and then it is all up to me. I don't have all my ROM but feel I have come a long way especially when I read the new posts. I am going to take it easy as I don't want a messed up shoulder for the rest of my life. I was able to pick up my drill and hammer last week and help my husband with our new construction home. I felt a complete dork because I am so protective and weak from these last two years of FS but followed my PT's instruction to take it easy and stay in safe (Tyrannosaurus rex) position -not a bad 2 month after surgery celebration-.
My Dr did a distal clavicale resection or mumford, along with the decompression, MUA, tendon repair and scar tissue removal. Me and my PT were unaware of this till I received my billing. I think she would have been a little slower with a few things but we still had to get my shoulder moving ASAP as historically I am prone to freeze. The bone hurt like hell-o but, I did not have to fight the tendon like I did with my first MUA. I am more often than not pain free. Sleep can still be difficult if I was not as careful as I should have been. Still completely happy I pursued this direction and sure I never would have recovered any other way.
K. there is my update.
Stay well and safe my friend. Let me know how you are as you are always in my thoughts and prayers. L.
Oliveria leslie61028
Posted
Im so very happy to heard you are doing great. Thanks a lot for having me in your thoughts, believe or not I think about you quite often. I didnt want to ask you in case you wanted to remain silent.
Seems like you are getting better day by day and that must bring you peace and happiness.
Im actually doing better myself. Like I mentioned to you in the past. Im doing physio, but I find this physiotherapist works so diferent then the ones I try before. This one is great, she is just giving me very basic exercises to help my muscles and tendons. She doesnt wanted to irritate the joint, instead she is giving me low intensity laser or cold laser and I feel so much improvement. She said she will work in the ROM later when she feels it is appropriate. Beside the physio Im going to accupuncture, and she also applies some laser (same as the physio). I think everything is helping me big time. I dont have much pain anymore.I would say I have discomfort but I feel is getting better every time. I could say I can feel 30 to 40 percent improvement . Im still not able to walk freely on my own but I can walk much better with my cane. Is strange but sometimes I feel better then others. Some days I have this bouts of pain but then they go away. The therapist says is the healing process, so I want to believe her.
Will see, I will let you know. I just have hope that we can be out of this nightmare pretty soon.
Send you a great hug and many blessings to you.
All the very best. I keep you in my thoughts.
J
leslie61028 Oliveria
Posted
Nov. 28th will be 3 months post surgery for me. I am done with PT and other than a few aches, pains and a little less ROM, today I feel great. I have to be sure to do my stretches and exercise or I will be stiff and in more pain than I need... and I should get better as I continue with them for the next year.
Let me and others know how everything is working for you with your various treatments.
L.
Oliveria leslie61028
Posted
So nice to heard from you. Im still suffering with my hip but I really feel that very slowly is getting better.
Im doing accupuncture with low laser therapy and I just stopped physio since I do not feel a great progress. I feel better the day of physio and eventually goes back to the same. I really believe this illness had to run his course. Im sill waiting for my appointment with the specialist. I hope by then I will have a noticible difference in my progress. Im not discounting surgery at all.
The problem with this condition, progresses really slowly, so frustrating.
Right now the horrible, trobing pain I had at night is gone but now Im dealing with different kinds of pain. My leg stiffen up so bad and then my tendons, ligaments, muscles are constantly rearranging, just strange feelings, wondering if anyone goes through this same feelings. Im still not able to walk without my cane but I just want to believe that at some point I will.
Like I mention to you before, I done so many therapies, even MUA, cortizone injections, chiropra tor, massage, physio, accupuncture, etc....that Im so afraid If i go for surgery nothing will change and I have to start all over again just like I did after my MUA.
I just have to say I have good days and bad days.
Tell me how are you doing, you think the surgery was worth it. I really hope you are one of the lucky ones and you will be free of this nightmare "tomorrow".
Sending you all my blessings and wishing you all the very busy.
Please keep us informed with your progress.
Judith
leslie61028 Oliveria
Posted
Yes I am very glad I did it. Even though I had hard and frustrating days I don't think that i would be where I am today if I did not go in. Best case scenario is I would be waiting in the frozen stage and hoping to be better in a few years. Today I can think of living my life almost normal but certainly without the horrid pain. I was able to mow a lawn and am finally looking to safely help my husband do some painting on our house. That is a miracle. This is what i had hoped for two years ago.Sounds like you are still struggling. So sorry. I hope things change for the better soon. L.
Oliveria leslie61028
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Blessings!!!
leslie61028 Oliveria
Posted
It's been 2 months from my last post and over 4 months from my surgery.
My results are still very good. The pain never more than what i had already experienced with FS and my healing is constant and progressive. With surgery I have finally hit my goal to be part of building our home. With FS I had no chance. I realize now how depressed, angry and difficult I was to myself and others. A real rabid bear.
I am so happy to be able to be pain free most of the time and function about 85% only 4 months post surgery. I say 85% because I expect a lot from my shoulder and I still don't have the strength I used to but I have most of the ROM.
My left shoulder is showing signs of impingement and bursitis now, so I will do my stretches and excercise and I will not hesitate for a surgical fix if needed and avoid the years of pain and suffering like my last.
NO WAY!!!!
I hope you all are on your way to recovery- especially you Judith. I know it's been many years and I hope today is a good day for you.
Stay safe and keep posting your way out of this!
L.
Oliveria leslie61028
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I have soo much to ask.
Have a great day!!!
Thanks a lot
leslie61028 Oliveria
Posted
Yes I thought the same but have no way to give you my address without puplic posting.
How are you?!!! Where are you at with your hip? What has worked if anything?
You are always in my thoughts and prayers too.
L.