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Frozen Shoulder, Thoracic Outlet Syndrome & edema

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Nooooope
Nooooope

howdy, I have had a tedious case of frozen shoulder for 6 months that is complicated by Thoracic Outlet Syndrome (had that for 23 yrs). I had a Scalene Block (intramuscular anesthetic injection in the neck) 2 weeks ago to release muscle spasms temporarily and allow me to do some PT.

After the injection I had an allergic reaction to the disinfectant scrub and noticed that my clavicle was puffy among other things. The allergic shenanigans are now over but my collarbone area is still puffy and upon a better look, the swelling is all across the front of my shoulder/upper chest. This area has felt swollen and tight for months, but I thought until now that it was just muscular tension from the Thoracic Outlet Syndrome.

Soooooo... anyone else had this trifecta of ridiculousness going on in a single limb? I can’t find any reference to frozen shoulder and edema.

Caveat: I know you’re not a doctor. I am seeing lots and lots of doctors and will ask all of them. I just wanted to see if any fellow Frozen Shoulder sufferers had experienced or heard of edema.

 I also have both legs in afo braces and something wrong with my other wrist. The frozen shoulder is the only limb not encased in velcro and rigid plates. No underlying connective tissue disorder or anything has been identified. I’m just super lucky.

also: it’s definitely definitely a frozen shoulder. My mum had two, my older sister had two too. They don’t have my other health issues.

0 likes, 2 replies

2 Replies

  • lisa80451
    lisa80451 Nooooope

    Posted

    I have not read of any others experiencing any of your other conditions. Sorry to hear so much going on. Hopefully your frozen shoulder starts to thaw quickly
    • Nooooope
      Nooooope lisa80451

      Posted

      Thanks for responding. I didn’t find any cross reference between frozen shoulder and edema, but did find something about Thoracic Outlet Syndrome and edema. My physical therapist also said today that it’s likely just that there’s no space for anything to drain properly from soft tissue and that perhaps the planned long lasting Scalene Block with botox will help relax the muscles enough that everything can deflate.

      Thankfully I’m out of the acute stage now on the frozen shoulder. Knowing it’s probably temporary has really helped my husband and me cope. The posts here that list practical tips for coping have also been a huge help; many thanks to the people who posted such great information. 

      Hope everyone here makes a full recovery soon.

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