Fructose

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Just wanted to say I've just been diagnosed with fructose intolerance which has reconfirmed to me the link between the gut and lichens. I did suspect as I always have a massive flare when I drink wine. So I'm now thinking of doing fodmap diet any advice welcome xx

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  • Posted

    That's very interesting you mention fodmap, I was told I was fodmap intolerant about two years ago and was diagnosed with LS a few months ago but when I think about it symptoms probably appeared around a similar time... I don't really understand it all, but cutting out/reducing those food really improved my digestive problems, unfortunately that hasn't seemed to have had any positive implications for LS... I did read an interesting article on the bbc the other day though about new research that has found strong links between gut bacteria and hormonal conditions like polycystic ovaries...
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    • Posted

      My gut problems started before my Ls so I do think I need to look at my diet again. But I'm so going to miss a glass of white wine 😒
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  • Posted

    I have found that wine and too much sugar cause my skin symptoms to worsen (I have lichen planus, ichthyosis and psoriasis.)  I can drink a glass of wine with a meal but that's all and not on its own.  I have cut out sweets and biscuits (but not buns yet).  I also find that bread gives me indigestion so I avoid too much of it.  Toast is better.  Acidic things like oranges give me indigestion.  I also find that sugar and wine make my heart race and thump , as if I've been running.  I also get terrible constipation even though I eat the same food as my husband and he has no trouble.  I would like to learn more about how food affects the skin and gut and I wish I could cure this awful constipation as nothing seems to work!
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    • Posted

      gill, prune juice is good for constipation, a small glass every day might do the trick.  I am sulfite intolerant, and so wine is off the table, it makes my heart race and hands shake, and so you might want to check that your okay with sulfites, the way to test this (apart from drinking wine) is to take a handful of store bought raisins, (which contain sulfites), and see how you feel afterwards, if you have no reaction then your fine with sulfites.  It might be worth keeping a food diary for a while to see if you have some serious allergens or problems with Gluten as that could cause problems with bowel movements, and there is a link between Gluten intolerance and LS for some women.  
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    • Posted

      Thanks for that.  I am OK with raisins although they are full of sugar, but wine makes my heart race.  So does too much sugar (I suffered after eating the Christmas chocolates).  I have tried prune juice but I got so much tummy ache and terrible wind so gave it up.  The GP did not seem interested at all.  I am trying dried fruit - figs, apricots and dates.  Senacot is a last resort.  Fybogel is useful but not the answer.  Lactulose is useful.  Plums seem to help.  I really must try and sort this out.  My husband is diabetic and was told to avoid grapes - too much sugar.  A therapist who gave me aromatherapy said very dry skin can exacerbate constipation as there is not enough moisture and to drink plenty.  It is an interesting thought that what we eat might influence skins problems. 
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    • Posted

      Hi , have you tried upping the green leaves in your diet?home made Broccoli soup is good, I like cabbage soup too. Lots of good stock of choice, I sometimes add cheese to my soups too. I love to lightly butter saute young cabbage ... All will help the gut and I don't get tummy ache. But don't go overboard, I said to a friend that broccoli is great to prevent constipation and she had a WHOLE head, and she suffered. Drink A Lot of water, exercise also stimulates the gut

      Do keep an eye on your bowel habits cos there are other complaints that may be the cause of constipation. Do NOT be brushed off by you GP when you visit and tell them. Show your food exercise and fluid intake for a couple of weeks, to demonstrate you may need further investigation. There is a worrying trend of GPs to think of their budget now they are fund holders...so their salaries may be in competition with investigation and treatment regimes...this is in the UK....where the NHS is under pressure

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    • Posted

      Thanks for that.  Now I remember I went to a Lent lunch a few years ago hosted by a lady from the middle east and we had a delicious green pea soup with basil and some lovely oily bread full of olives etc.  Had no trouble next day - might have been the peas!.  A relative in Italy says we don't consume enough oil in the UK and she wonders how we manage to "go"!
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  • Posted

    Hi Justine

    There is a connection between food and LS.  I can't have sugar which is terrible.

    I am having huge flare up right now!

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  • Posted

    The gut is like a second brain!  It is awful when you find you have to start cutting out foods, but at least you now know and can avoid these foods.
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  • Posted

    The FODMAPs diet is excellent and a life saver for me to get my IBS type C under control.

    Constipation has caused my entire alimentary tract from oesophagus to rectum to cause me misery and discomfort from one end to the other. Oesophageal disease to IBS to constipation to prolaps bladder from straining to 'go'. PPIs for twenty years plus ranitidine and Lactulose etc etc were just band aids.

    Went on the FODMAPS PLUS cut out gluten and dairy as well. The results started to show. 

    Then due to LP of the eroding vulval kind I was forced to make futher huge changes, cutting out all sugar, preservatives, all nightshade family, alcohol free already,

    Caffeine (the HARDEST, also tea) 

    Dried fruit is the worst as it concentrates any sugars.

    I never eat food that comes from a packet, large amount.vegies are the secret, some fruits like bananas and occasional apricot.

    But grapes sadly very high fruit sugar. Organic meat in small quantities and loads organic chicken, fish including oily. Recently started probiotic sauerkraut. Yummmm.

    I also take  flax seed oil twice a day plus a good probiotic and slippery elm in a smoothie with rice milk and blueberries. 

    A specialist physio is working with me to do the keigels to help with mild prolapse.

    the LP was a blow and I developed osteoarthritis with it in my fingers which are bent and twisted in just two months. 

    I believe  stress and the wrong food are literally killing us if not crippling us. It took me huge shocks to my system to start to fight back. I am seventy and in my last eight months fight for wellness I lost weight so fast from just stress at my illness, at how unfair life was and how much pain I was in, It caused electrolyte imbalances but they are being addressed and now I am healthier by dropping over two stone. Just don't do it in a few months!!!

    The family member who causes me the big stress, I have had to truly distance myself from. He's my son but he's as toxic as a box of chocolates. Worse. So for now he's mostly a distantly polite phone call now and then. 

    Joe, the FODMAPS is invaluable for gastric problems but for LP and LS you have to go further, especially with the sugar intake. It's really worth it. It's my bible now.  good luck.

     

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    • Posted

      Thanks Lynne and all the other ladies that have replied. I am trying to sort the food out and have started to do a food diary but I do feel like this is so much information to learn. As I think I'm also intolerant to histamine and dairy. I will keep pushing forward xx
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