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I was diagnosed with Chiair in Dec. 2015. I had an MRI because of headaches, dizziness, blurred vision, disorientation, photosensitivity. I also have restless leg syndrome. The MRI said I had a 7 mm tonsillar herniation. Then I had an MRI of the cervical spine, thoracic spine, consult with a neurosurgeon, balance test, tilt table test, lumbar puncture, eye exam. Now they are telling me that I don't have 7 mm herniation- more like 4-5 mm. They aren't sure my symptoms are due to Chiari. They don't think I need surgery. They want to load me up with steroids and pamelor. I just want it fixed!! I'd rather have surgery and get it fixed than be stuck on a bunch of mind-numbing drugs forever. I'm getting a referral to a neurosurgeon who specializes in Chiari and we'll see what they think.
After research and comparing MRI photos to normal photos, numerous tests which showed nothing, I just wondered if anyone has a perspective on this. The cerebellum looks crowded in the MRI. Don't know if it is cutting off any CSF or not. If the first MRI shows 7 mm and the 2nd one is 4-5mm, which one is right? How far does it have to extend to be considered for surgery? I'm very frustrated that my doctor doesn't seem to think my symptoms are important or indicative of anything. All the sources connect these symptoms with Chiari. Meanwhile, I can't drive anywhere, I get tired really easily, I can't sleep at night and am tired all day, I feel like I'm drunk when I'm walking.
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