Posted , 11 users are following.
i was diagnosed with lichen sclerosis in April. I have been using clobetasoll with marginal results. I have a lot of irritation and a little itching. I cant wear underwear anymore. Now my skin itches in different places, but no patches or marks. i tried baking soda and borax with no relief. i''m going to ask my doctor for tacrolimus. I cant live like this. I'm so glad i found this forum. i feel so alone.
Wendy
0 likes, 25 replies
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SnappyCat DrWJW
Posted
steroid can make me prone to yeast (exterior). my doc gave me nystatin and it works like a charm. someone else said otc clotrimazole. you can get these at the drug store.. use it WITH the clob and see if it helps. mine resolved within a day. if not, call your doc.
the totally frustrating thing about LS is that it is often not what it seems...can be yeast, uti, or allergic reactions. you treat one and cause another.
DrWJW SnappyCat
Posted
It's so hard to tell sometimes! I was using petroleum jelly for a while, but my friend, who is an RN told me that it was not a good idea, because it keeps bacteria there. I sometimes use coconut oil, but I really haven't discovered the best thing. My OB/GYN dropped me shortly after my diagnosis, as the clobetasol wasn't working. They sent me back to my primary care physician. I haven't reached out to him yet.
Thanks for your support! 😃
SnappyCat DrWJW
Posted
DrW - Ahh...I'd heard that vaseline can be a problem for yeast...perhaps that's why. The vaseline was my go-to for awhile...now, mostly coconut oil as I'm tapering down the steroid. Yesterday, I mixed some vit E into the coconut, that seems good too.
beverly52803 SnappyCat
Posted
I was given a tube of nystatin to add to the hormone cream if I got itchy. I'd actually forgotten about it. (There's only so much room on my nightstand!) Will have to use it now that the weather is warmer. I find heat makes for more of an itch.
beverly52803
Posted
I have continued to mix a little nystatin with the estradiol and I do think I see less redness. Or then again maybe it's just wishful thinking.
Guest DrWJW
Posted
My latest doc (have to keep a list now, there have been 6) says Eucerin healing cream and it has helped a lot. She also said switch up with vaseline but I didn't care for the vaseline..... Coconut oil does work well for me too.
Ifeellostnow DrWJW
Posted
Having only recently been diagnosed myself I do not have any tips or helpful information for you bu I wanted to say I am sorry you're going through this. I understand beyond a shadow of a doubt how scary and depressing it is. You're not alone. ❤️
beverly52803 DrWJW
Posted
If you google protopic for LS a lot of patient.info posts come up!
SnappyCat beverly52803
Posted
There are lots of good medical journal articles.
Guest DrWJW
Posted
Hi Wendy,
You are not alone. All of us here support and listen to each other. It's a good pace to learn what is working for other women, what their symptoms are and maybe what will work for you. I tried the borax as well but it did not help. Clobetasol, I think is making me worse. I have called the dr.and am waiting for a call back on "what else" to do.
I have been dealing with this since Christmas of last year and it has radically changed my life. I know it is possible to get better. The things that stand out to me are:
If you do, please let us know.
Hang in. the biscuit