Posted , 4 users are following.
Hi Michelle here. I love this sight and the advice from everyone. I live in Florida and there are only 3 specialist here. They are associated with a university, which is pain. First University of Florida, insisted on all kinds of paper work and said no thank you, Second University of Miami MIller School of Medicine. Sure we can make an appt. a year from now. Third University South Florida that has a specialized clinic just for swallowing disorders 2 doctors. Sent all my records was told it would take 7-10 business days to hear back and then appts. where 3 - 4 weeks out. Here is my problem. They don't have any idea how to fix this disease. I've read everthing on here and on the internet about the 2 surgeries and I've had botox and ballooning, the botox p*ssed it off. Made symptons 100% worse. Everyone says oh yeah I am better but I still throw up from time to time, have horrible acid reflux, still eat a soft diet and this is AFTER the procedures. Okay doctors are treating this like if you went to your mechanic and said hey my engine light is on and he cuts the wires to the check engine lite. Now he didn't find out why the engine light was on, but you don't have to worry cause it won't come on anymore. I don't want butchering. I don't want surgery. I want a more indepth treatment. a) smooth musle relaxants, b) nausea medicine when needed, c) pain medicine for the chest pains from muscle spasms, d) BETTER acid medicine e) better research. This disease will only progress and YES it effects every aspect of your life. Am I the only one who feels this way.
2 likes, 13 replies