Frustrated of Devon!
Posted , 10 users are following.
Hi everyone. I am going to be greedy and ask two things in one post! Firstly I have been getting a very bad pain in my right upper arm which I assumed was due to the PMR. Then, a few weeks ago I noticed that if I stroke my lower forearm the pain becomes excruciating. So this sounds more like nerve damage to me which is confusing. Anyone else had anything like this? Secondly, I have now developed a very painful left ankle/heel. It feels like a bad sprain although I can assure you I have done nothing energetic enough to cause injury! Any ideas? Now for the technical bit. I am now down to 10mgs of pred a day from 15mgs over five months. I was on 15mgs for 10 months. Since reducing, I have noticed (I know this is three things. Sorry. lol) that some pred side effects are getting worse, not better e.g palpitations, veiny legs, those tiny little blood blister thingys to name a few. Is this normal? Every time I think things are starting to improve, I get something new. Help! To finish on a positive note, it is a beautiful, sunny day here in Devon, so I can hobble to the shop and get some fresh air. That ought to cheer me up! Wishing you all one of the 'good' days. Debbie
1 like, 20 replies
tina-uk_cwall debbie27473
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niw for the palpitations. I'm on 9.5 mgs of pred at the moment and I went to my Dr complaining of palpitations, she told me to cut right back on coffee and tea (with caffeine), I did and the palpitations have calmed right down! That's one thought. Can't help you with the veins, but I also have a blood blister behind my left knee, had it for years. Since prednisolone I've not developed any more. But honestly, if there's no logical suggestions forthcoming from any of us I'd defin pop along to the Dr. Have a great day. Regards, christina
debbie27473 tina-uk_cwall
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tina-uk_cwall debbie27473
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tricia11872 debbie27473
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Tricia
x
MrsO-UK_Surrey debbie27473
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One of the members of my support group has recently had a very similar experience and a very trusted rheumatologist has diagnosed adhesive capsulitis (frozen shoulder/rotator cuff injury), given her an injection, commenting that the pain would immediately worsen but should eventually help to resolve things.
The fact that you mention once being on 15gs for as long as10 months really makes the above highly likely. Have you got a good rheumy? If so he should be able to advise and treat you. Good luck.
debbie27473 MrsO-UK_Surrey
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EileenH debbie27473
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MrsO-UK_Surrey debbie27473
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I hope the CRP blood test tomorrow shows an improvement after recovering from the chest infection, and that flaring PMR inflammation doesn't turn out to be the cause - good luck!
debbie27473 MrsO-UK_Surrey
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EileenH debbie27473
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But pred alone can affect the achilles so do get it checked.
EileenH debbie27473
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Where is the pain in your ankle? If it is at the back, at the bottom of your calf do ask your doctor. Pred can cause achilles tendon problems and that needs identifying because once the achilles is inflamed it is very easy to do real damage as it is very delicate and just tripping is enough to cause a tear.
This isn't a UK GP surgery you know - we don't count the questions! I mention the UK simply because my GP also works through the list a patient has and even looks for more! She doesn't care how long it takes - I'm usually with her for at least half an hour! And you see her the same day, and she does house visits!!!!
It was a lovely sunny day at home when I left to come over here to Innsbruck, on the north side of the Alps - and here it is thick low cloud/high fog so cold and damp. I wouldn't have come but my husband has had hand surgery and would find changing gear uncomfortable and he's working here this morning. Plus our daughter and the grandkids arrive by plane this afternoon. Hope the sun comes out before then!
MrsO-UK_Surrey EileenH
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debbie27473 EileenH
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EileenH MrsO-UK_Surrey
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So can everybody send positive vibes and cross their fingers please ;-)
debbie27473 EileenH
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MrsO-UK_Surrey EileenH
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Mrs.Mac-Canada EileenH
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