Frustrated with the lack of support and advice

Having worked for teh NHS for the past 9 years on a wellbeing team delivering health checks, I thought I should go for my midlife check and practice what I preach. So in December last year age 41 I went along to my GP.

My results were all absolutely fine, my BMI and waist measurement are in a healthy range, blood pressure normal, I so not smoke and hardly drink plus ecercise 4 times a week - so when they said my GFR was abnormal I was shocked.

Four more blood tests over the past 6 months are showing my gfr go from 58, 54, 56, 53 so the last appointment they gave me the label 'ckd stage 3)

I have no family history of ckd, no diabetes, no high blood pressure - I have not taken drugs, never followed a high protein diet and dont take ibuprofen regularly.

So the GP sent me for a ct scan - this came back that my kidneys are in the right place and are normal size - my bladder is working normally and I have no blood or protein in my urine.

So back to the GP who referred me to a consultant (a little confused I think that I have absoutely no indicators or precursers to CKD and am considered young to have these results).

The consultant has read my notes and refused to see me!!! Sent a letter back to the GP saying he needs to expalin my condition to me??

I am absolutely disgusted with this attitiude as as 10 minute appointment with a specialist may have put my mind at ease and answred questions I have around 'why'.  I am booked in to see my gp next week and other than asking for a private referral I dont know what to do.  I feel like I am just being told 'oh well there is no reason why, you have been dealt a bad card - deal with it and we will see you once a year for a blood test'.

I know I am far from in serious bad health and may never go on to develop later stages especially given my healthy lifestyle however, my children will now have to report a family hisory of CKD and I am sure they will want answers, I have suffered with insomnia for some years and horrendous water retention in my lower legs too - i wanted to ask the consultant if this was linked - I take iboprofen when running long distance (recommended by nhs physio) and salt replacement drinks - I wanted to ask about this too. 

Reading about this disease I have found links to pre-eclampsia (which I had) and lupus (which my nan had) so had questions on this.

I am sorry for a long post guys and maybe its more common than I think  that people are diagnosed with ckd and have absolutely no reason why - I just feel very let down that I have been given this label for the rest of my life and the nhs I pay into and work for dont want to help me sort the questions out clogging up my head.

Any ideas, questions, answers you may have will be really appreciated.

Thanks

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