frustrating doctors appointment
Posted , 11 users are following.
I have osteoarthritis in both knnes and right hip confirmed by xray. I think I have OA in my left hand and possibly my neck but haven't bothered to mention these to my GP. I had knee xrays about 8 months ago and again last week. I went to my doctors this morning to discuss the results. Unfortunately my GP died in November last year and since then I've seen four different doctors.. I also have polymyalgia and fibromyalgia. Today my doctor confirmed that both knees have deteriorated since my xrays last year. I am only 56 but am in such horrible pain and can only walk a very short distance that I asked to be referred to a specialist. She refused and said there was no point due to my age. I pointed out that I can't manage like this for another 10 or 20 years. Her response is that she will refer me for physio. I can't see how physio can stop bone on bone pain. Am I wrong? Is there any point in paying to see a specialist privately? I know that they don't want to replace knees too early as they don't last for ever but surely I should be helped to live a normal life for my age!!! I don't find painkillers any use except to help me sleep. The only thing that took all the pain away was the steroids for my polymyalgia but they cause more problems. Advice anyone please. Deb
1 like, 27 replies
Pinoyboy grandmaDylan
Posted
Enna1 Pinoyboy
Posted
I have in the 6 years I have been here, found out that if you demand, you may get somewhere. The Spanish don't muck about - if they want an appointment at the hospital they tell the doctor to give them a referral not chit chat - perhaps you are like me, I remember the last time I went to an English doctor and she sat down and told me all about her son who had reading difficulties. I mean I went in there with 3 prolapsed discs. Do I really want to hear her problems.
It does need thinking about. I went to change doctors and the doctor asked why I wanted to change doctors and I told them and they chat to each other and I had to go back to the same doctor because the doctor I was hoping would take over my medical records chatted to her over the phone.
Deborah is also right about bones, you could ask about having a bone scan though. Its quick and tells you about your bone density. Although I had one in England before I came here and they said I was OK, in Spain I wasn't so I take vitamin D every day (twice a day at first) I'm a lot older than you and I think the same, what am I going to do in future. I went shopping today and by the time I found what I wanted I couldn't try the clothes on because of such pain.
I am sure that the doctors are over worked but I don't think its right that they should say that to you. I certainly wouldn't go to another doctor in that practice I would pay to go to a private doctor.
There are exercises you can do but doubt that they would make a lot of difference but the vitamin D sounds the first port of call as you do have X Rays be interesting what a private doctor would say.
Just another point, what medication are you taking. Mine does tone the pain down but I don't want to go onto morphine etc. so have to stick at it. i go for a long walk to tire myself out but you can't do that either. I think its something for a doctor!!! Hope you get some satisfafcion, let us know how you grt on.
Ellie1943 grandmaDylan
Posted
Enna1 Ellie1943
Posted
Honestly I only thought it was me who had treatment like you two. I understand that knees do need to be absolutely bad to have them operated on but did they say, come back in such and such a time, then you would know that there WAS something they could do I agree, about the difference between the UK and USA but then the USA have private insurance, but when as young ens paid into the State Health system we thought that we were going to receive adequate treatment. I have it in the spine also, and its no joke - i have now got 3 prolapsed discs and fingers and one or two toes, its not nice getting older especially when you have a crap doctor. I'm 73 - well nearly - I walk when I can but since last yr have to space walking - 3 days to get over it lol. I agree, we have to do whats best, but I am damned if I will go into a wheelchair yet as I was told by 1 surgeon 10 years ago. We never know about other peoples' health do we? I do yoga which is brilliant and its very slow and precise and if you can't do anything you just rest. Best of luck everyone
elizabeth20203 grandmaDylan
Posted
Go back to see a different GP and insist that you want a referal to a consultant. A consultant is the one who decides what needs doing. It's getting past the GP that's the problem. GP's are now being asked to cut down on sending referals. In my opinion physio is not gong to help if you have bone rubbing on bone. You could ask about steriod injections if you cannot get past the GP. I did however get to see my consultant who wanted to do a partial knee replacement on the right knee, i have declined at the moment due to living alone, and having nerve pain in my left knee so feel i want to wait. However i have been offered steriod injections and i am going on Tues to try them. I have heard good results and also personally know of a couple of people that have had them. Mine are being done at the hospital because i am under the consultant. Most GP practices offer them. The only way is to get someone to listen so try a different GP. Age is inmaterial when you are in pain suffering. I also can only walk a few yards because of severe pain, my mobility is poor. Pain is debilitating. What medications do you take, you could ask for a reveiw of these. I remember years ago a GP refused me a consultant when i lost the ligaments in my groin, my tibia and fibia were misplaced. my leg was bowed and my knee was totally deformed, just before my first knee replacement. However years later i complained about this same GP for another reason, he was nasty and always mde me cry. and had the chance in a letter to ask him why he refused me a consultant years ago, he replied it was because of my age. I saw a different GP who without even examining me sent me to a consultant, this resulted in my first knee replacement aged 39. I would of been i a wheelchair otherwise.
Let me know how you get on.
Wishing you the best.
Elizabeth.
Enna1 elizabeth20203
Posted
It makes me really cross to read these messages. Yes we do have a right to be referred and we shouldn't have to pay to see another dr or surgeon but if you are in pain what else can you do. We all seem to be of similar health issues, I had the good luck to know spanish people and through them I got my first appointment but the lady took me to the GP and very very firmly said that I needed to see a surgeon. Mind its not done any good as the surgeon said because of scar tissue he wouldn't operate.
But there is good advice on here and some I have made a note of. I put the referral back from the surgeon to the pain clinic and got an appointment next week so thats fairly quick. The dr at the pain clinic speaks excellent English too. I am not sure what one dr put into my thigh but it was the best I had, 4 injections in one side and 3 in the other - brilliant it lasted at least a year. I don't know how much these philes take so will just have to see how i go. Physio in England, I went 3 separate times and I think they thought that I was putting it all on, it wasn't offered after that.
Some of these medications by the way - you need to drink plenty of liquid, I've had to go to hospital twice since I was here in Spain and in both cases I wasn't drinking enough but i think the water dilutes the medications in the stomach. I used to drink tea with ginger but somehow got out of the habit but there is some in the fridge so will give it a go again.
It just proves one thing thought, drs are the same whichever country you live in but I have to say that Spain has been the best and there are a lot of British people here who won't go back to England because of the excellent treatment. The last government made us pay a contribution towards our medication and they have been chucked out so we don't pay anything. However, my dr would only give me 1 pazital 3 times a day - not enough so I have to buy the extra, 3.50€ so its not much. But.. The British Government pays Spain £2,000 a year for us pensioners towards our medical care. There is an underlying fear now that people might vote for us coming out of the EEC which would mean that it would be very difficult for us to live in Spain, i.e. pensions, we would be immigrants etc. etc. So watch this psace
Thank you and Deborah for everyone who has contributed towards the conversations and help.Brilliant
sparkle1 grandmaDylan
Posted
My experience with GP has also been hopeless unless you have private cover, when they are happy to refer you straight away (not on their budget). However, this is what i have done - dont know if it helps you or not but here goes:
1. Hands- went to see a hand surgeon - Chris Khoo in Maidenhead. He was fantastic. Immobilised for 3 months. Now entierly manageable. Just wear splint occasionally when typing or if doing something that is heavy. Dont need meds any more or anything. Really he was realistic but explained immolbilisation casued slow growing scar tissue to form to cushion the join and at least for me, has done trick. It cost me £250 for the appointment. Worth every penny.
2. Feet: went to very good podiatrist (£150) who made custom insoles (£400) to spread weight. 95% pain free a year later. Sometimes wear them, sometimes dont but the thing which helped me more were buying a pair of Sketchers Go Walk shoes. Anyway, 95% pain went and can cope easily.
3. Shoulders!! Seeing someone this week!
4. Knees and Hips: changed to softer mattress; changed diet, went to physio and started lots of stretching. Had tons of crepitus before and i kind of thought this cant go as its wear & tear and once its there, its there. But i appear to be wrong. 80% of crepitus gone, quite quickly after i started religiously doing exercises and stretches. Also took up one mutivit per day, one omega 3 per day, Gopo and radically changed diet. Dont know if any of this helped me or not - not sure what helped of any of this but basically i have a LOT LESS crepitus than i did have. Also took nurofen plus for 2 weeks to try and lower inflammation althought the packet says only take for 3 days so i cant recommend this but i thought if i could get rid of inflammation, then it would work...
5. Myalgic pain - had stupid itch - still have it a bit - on one spot under shoulder blade in lower back. Realised that if i didnt use laptop for a week and bent head to one side it went almost immediately so realised it was neck related. SO have just booked to see physio for neck!!
I basically gave up on NHS for OA and myalgia as no-one really knew what to do other than surgery. I kind of decided to take my fate into my own hands until such time i could not stand the pain. To my utter surprise MOST but not all of the pain has gone through exercise / diet / temprorary immobilisation. It might not work if you are too damaged but for example i thought crepitus could never go - but it largely has. I thought i was fit but discovered how unfit i was expecially in my core muscles (didnt even know they were there!). The core seems to hold all the bones inthe right places. I think my body was bio-mechanically wrecked and doing all the physio really helped me - i thought the physio was 5 star and happily pay her to help me. So the only 2 people who helped me were the hand surgeon (who treated me without surgery) and the physio and my own mind was determined to try everything before resporting to surgery. Incidentally a knee replacement is about £14k! I;d give it your best shot and give it 6 months to see if you can improve by yourself and physio and diet and core etc etc. I'm amazed it works for me - if i relapse all the pain seems to come back - but frankly, it des seem to work.
Trixybelle sparkle1
Posted
Any information regarding diet would be greatly appreciated.
Thanks a million.
Triona
sparkle1 Trixybelle
Posted
The interesting thing is that it did actually change my good cholesterol significantly; it also got rid of most of my cellulite (but that took 9 months to work). I just feel a lot younger and my hips knees and feet just gradually got a lot better. The swimming has knackered my shoulders a bit so i am seeing a physio for that - its a known issue if you swim too much without strong core as you dont roll enough doing front crawl. Anyway i am hopefull of getting a good result. I think my posture was all wrong as well. I am not weird or anything - i just thought i can give up or determine to try everything possible to see if i can alter this. Then i went to see the 3 doctors working on cures rather than pain killers. I've now set up a resarch programme to see if we can track the triggers that set it off. Thing is every GP asks a different set of questions so really hopeless for researchers so we are piloting a questionnaire for everyone in a few surgeries, so that we have a common set of answers to see if we can peice anything together.
Good luck.... dont give up, cos you are too young. I think i was also lucky as i dont think i have OA genes in my family. Some people have bad genes which you cant really do anything much about - but normally in hands. I honestly think if you catch it early enough you can get better or at least make it manageable. I also find if i dont exercise literally every day, then the pain comes back again... if i sit around too much then the pain comes back... i may be wrong but i kind of think the joints need the right vits and mins and need exercise to lubricate them. If too much cartilege has gone, then none of this may help. But i;d give it a go. The other thing is that the stem cell cures wont be too far away for hips so i'd try everything before hip replacement at 39 as within 5 years stem cells will be able to re-grow the cartilege... already on test in phase 3 real clinical trials in UK on knees but getting better all the time so i'd try everything at your age as you wont be too old before stem cells or other cure coudl take over from hip replacements. Not tomorrow but cant imagine it will be more than 5 years... massive advances being made all the time in this area now. Anyway, give it a go and see if it helps...
Enna1 sparkle1
Posted
Enna1 Trixybelle
Posted
sparkle1 Enna1
Posted
When cooking for my family, i give them lots of fish and veggies for the main meal and i often roast meat or chicken for them and then pop in a fish for me 10 minutes before the end of the meat, so really not a problem. I do eat chicken now. I just dont eat the potatoes they do but not an issue as i normally do lots of vegetables for any main meal. are all much healthier now too - really the only thing they miss out on are pies and quiche but sometimes i buy them one from M&S! The children eat the same as us. its not an issue...if we go out there are always tondsof veg and fish or chicken is on most menus. If we go to Pizza Express then the kids and husband have pizza (realy treat for them!) but i choose their salads... which are super actually. I dont really know why it works - and it did take a while, it gradually got better... maybe i lacked something that was key or maybe i just get a lot more nutrients now. I sprinkle seeds on most things now; really cant go wrong increasing and varying your fruit and veg. The other thing i did was see a hand surgeon as i had terrible painful nodules on my fingers. He immobilised them for 3 months - which is unusual - but the pain went and whilst it has taken a year, the last nodule has nearly disappeared - only i woudl know it was there. He explained that immobilisation of the hand meant scar tissue had a chance to grow (its very slow growing) between the joints which acts to protect the joint. I was really surprised the nodules have gone - but they did take months to go. Also i did this as soon as they started to appear so maybe i halted whatever was happening. I dont know if this will work if you have bad genes but i;d give it all a go as you have little to lose. The worse thing that can happen is that you will lose weight and get healthier so i kind of 'went for it'. Good luck to you.. xx
Enna1 sparkle1
Posted
sparkle1 Enna1
Posted
I cant imagine we'll come out of the EU either so no point in worrying about that one yet... and in any event they would all come to some deal or other as we have as many europeans here as are over in europe so something would have to be agreed and that would take forever - it would go to being like Norway or Switzerland which are kind of half in and half out so i really wouldnt worry about that until it happens as it will just stress you out and make your pain worse...
I live down in Cornwall... blowing a gale at the moment so not a lot of sunshine here... i'd stay over in Spain if i were you as sounds great...
Enna1 sparkle1
Posted
Yep I will ask the pain clinic about the Vit D regarding bone spurs, if the boss sees me - he was quite good, don't people like to talk about themselves though when they can speak English and about their visits to England, bless him. The nurse though was crap. He lost his temper with the computer, like we do!!!
Well I'm not sure Spain is idyllic, we are getting ready to go home anyway, flat up for sale and ours is up for sale in England. Want to move, not far, from Kendal but will probably rent out first we will never sell this flipping place. people don't seem to want old properties like they did in beginning of the 2000s. Some neighbours are nice but some are horrible to us, despite the fact they are immigrants too lol. Because we live in the old Moorish part, we have to walk about 10/20 minutes to home unless there is a parking place in the square which is rare. If I continue as I am I will get worse at walking and so just thinking ahead. really. My pain is in the groin and my thigh (sciatica) I take lyrica which is not a good drug to be on it puts weight on and you lose your memory but then so does cortisone have side affects. I can't have an op because of the 2 stupid surgeons that have had a go and have left scar tissue. I went to a private surgeon in Valencia he walked out of the health system because he and others hadn't been paid for months)I had more thorough X Rays and MRIs done and because I had scar tissue I am unable to have an op. The ops were in England, 1 was practicing on me (I know for a fact - think I have said on this page) and the other was cockey and think once he opened me up there were more issues than he thought but it cost me £7,000.
Not sure whether it was windy last night, we have a high wall surrounding us so very rarely get any wind, the wall protects us, but I did see the plants doing a shakey when I got up. Don't really have time to sit on the beach believe it or not, we are always doing something, 40 minutes to Benidorm/Alicante and the other side, Valencia. Plus we like the fiestas so at the moment just finding out where they are, but if there are no seats to buy I can't go unless we take our own seats.. Love the costums for the Moors & Christians, the medieval markets etc. We like history too and it is absolutely loaded with history, and the walks, we sometimes go along the riverside/campo snashing a manderin or two (quite legal) did you know that Spain used to export to England raisens? that was until they had a big epidemic and it stopped. Things like that - a lot of people (local) don't know there was an airport just up the road which was built to attack Franco, probably took too much time building it (see many siestas) and he arrived before it was built. We sometimes go for days off and we have been all over for a day - my partner never researches and never knows where he is going so we have to go again !!!! But sitting for hours doesn't do the sciatica any good and there are fiestas coming up in March so hoping for a cortisone injection before then.
Sounds like you do a bit of yoga, stretching etc. do some before I get out of bed but its difficult on our floors being tiled lol. I love the cat.... makes me feel so good afterwards.
Most of Aldi have closed here but Llidl is usually packed with all the expats but we do our shopping there most times. Was staggered at christmas when we parked the car in their car park and got a parking fine of £45 - didn't see the sign. That was bingley....
Speaking of tomatoes, there were over 30 varieties in the supermarket (not Lldl) Al Campo in Valencia the other day.
Stick at it sparkle, you are doing the right thing, I try.............
sparkle1 Enna1
Posted
.. probably not a good time to buy in Kendal due to the flooding hitting the news .. we are on third floor and hte insurance company told us it was a flood risk LOL!!! Valencia sounds great. I had the same problem with woodne floors - dead hard - so bought a really thick yoga mat. A yoga band helps too as then you only have to do little movements. I dont know if what i do is yoga or not - went to a great physio in London and she wrote me a load of exercises that i could do and then about every 3 months i go back and she varies it a bit to what i can then do. Has helped me no end. I liked it as she only gave me exercises that i could do at the time and gradually changed them over time so i was never in pain or anything. They take one hour and i do every other day normally - all stretching and stuff... to be honest the physio helped me way more than the doctors and gp (other than the hand surgeon, who was magic although he didnt do any surgery..).
I woudl think the physio may give you stuff for the sciatica - i seem to recall straight leg raises are meant to help but thats about the only pain i havent had so best to ask ... I'll try and ask who is a good guy near Kendal for you next time i see the hand surgeon... joined the charity he supports (the healing foundation) so now see him even though he no longer treats me...
dont get discouraged... you only have to live one day at a time ... next time you go ask them to give you a stretching and exercise programme for the sciatica... I just seem to recall straight leg raises and getting your partner to gently push your leg towards you a little bit more every so many seconds... you should ask...
PS I LOVE Booths in Kendal... my fave shop but sis lives in Kendal and i live in Cornwall so a long way to go... but every time i go, then I love Booths!
LDW sparkle1
Posted
your email ail information is fabulous.
very informative and reassuring that looking outside of the mainstream. NHS can really help.
i have OA in my hips and am about to have a THR (tomorrow in fact). I think that a 2nd one on other side is potentially unavoidable, but hoping that good physio could help. I would be very interested in knowing who you physio is in London?
i too am noticing crepitus, and what appears to be creeping arthritis pain in my thumbs and big toes. I have an appointment this afternoon with a podiatrist, but am very interested in consulting with Chris khoo. Although I did notice that in a previous post you mentioned that he might be able to recommend a consultant closer to me (I am in the Midlands).
i am 51years old, so not happy to accept that this is wear and tear.
i too believe that something I am doing is weakening my cartilage.
anyway, look forward to hearing back from you.
lindsey