Frustration and curiosity

Posted , 8 users are following.

Has anyone heard of the AVIS CTD test? I went to my fourth rheumatologist who was not

"convinced"upon clinical examination of my hands that I had RA even though previous regular RA blood panels showed I had. Well this test showed all negative and like a tenth of a point off of postitive on the RF factor. Crazy, dr is redoing my MRI on my hand and could be I dont have RA? Wow, this has been going on for 2 years.

0 likes, 11 replies

Report / Delete

11 Replies

  • Posted

    https://www.lupus.org/resources/new-blood-test-can-help-doctors-diagnose-lupus

    may be of interest to you. It isn't always bad when a doctor expresses doubts!

    Report / Delete Reply
  • Posted

    My RF Factor was negative. My CRP is just a little elevated. My doctor diagnosed me with RA just on the basis of an MRI on my right hand showing some erosion. My hand has never gotten worse and I don't seem to have erosion anywhere else. I have been at the same job for 27 years where I am constantly keying with my right hand. Maybe my hand is just severely over used? I would really like a second opinion but there are no other Ra doctors around here and if there where they would be out of network for me. The medicine makes me feel miserable. I had to go off it for a month when I had a sinus infection. My body felt better than it had in a long time despite the sinus infection. And the overwhelming fatigue I always get from the meds was going away.

    What is the AVIS CTD test for and did your new doctor order it for you?

    Report / Delete Reply
    • Posted

      Hi I was diagnosed 20+ years ago and I am the opposite to you I argue that I don't have it and my rheumatologist is adamant that I do.

      She says that every test I have is positive and what can't speak can't lie.

      I take 0 meds and eat healthy and exercise as much as I can and I don't feel too bad

      Report / Delete Reply
    • Posted

      Hello

      The best bit of advice i ever got was off a nurse who had worked on the rhuematology ward for donkey,s years.

      I do have RA but you seem to have strong doubt,s as to whether you do or not.

      The advice i got was " do what works for you as this thing is with you for life".

      I would say to you sack the meds and see how you go, as they seem to make you worse anyways.

      I know the doc,s do their best and God Bless Them For That, but we have a responsibility to look after ourselves to.

      All the best to you

      Kind Regard,s Gaz

      Report / Delete Reply
    • Posted

      I like my doctor and he seems extremely knowledgeable. I hesitated to take the meds but I scared myself into taking them because a former boss of mine also had RA. I watched her hands become so badly deformed over the years that they now go completely sideways.

      Thanks everyone for all your feedback. I wish you all the best!

      Report / Delete Reply
    • Posted

      Im exactly like you. My RF is 230 as of 3 years ago and they are anxious to put me on meds. I feel great and until I see or feel something I wont take them. I exercise and eat healthy too.

      Report / Delete Reply
    • Posted

      For me and you it is personal choice and so it should be, sometimes meds are their first port of call, not convinced its the best option though, surely if it makes you feel so ill how can it be for the best

      Report / Delete Reply
  • Posted

    I don't know that test but my diagnosis of Ra was also based on MRI of hands with joint erosions both hands. Have not been on any med in over a yr but it is slowly getting worse so will try a biologic again in a couple weeks. If i again have side effects then not sure what I will do. I also have crohns so the biologic will treat that too. It's really a tough decision since I don't have a lot of pain/ and can walk well and do most activity. I am easily exhausted and do have joint pain but minimal swelling. hard decisions. Good luck to you. Let us know your test results.

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up