Full Recovery Stories...Anyone?
Posted , 11 users are following.
please tell me your stories/experiences.
what did you do to aid in full recovery?
sorry i keep posting
just needing a boost here!
thank you
0 likes, 28 replies
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Notes on Full Recovery Stories...Anyone?
willis42 starrA
Posted
Hey Starr,
First of all, I second this. There aren't nearly enough positive recovery stories on this forum (I know you're out there!). But the thing is, both of us probably won't be spending as much time on here when we're fully recovered. I'm sure the people who have recovered were eager--just like we are--to put this all behind them. I don't blame them, but let's promise each other that when we're both fully recovered that we will post our stories here to lift the spirits of those still struggling.
Second, I'm not fully recovered yet (going on month 5), but I will say that the most helpful thing I've done for my body and mind is learn to accept the situation. I've changed my lifestyle in so many ways because of this virus and this has been by far the most difficult thing to do, but also the most beneficial. This virus feeds on stress, which makes it self-perpetuating as being sick is stressful and the sickness thrives under that same stress it causes.
For this, I would recommend a meditation practice and a therapist (who will also recommend a mediation practice), to learn how to keep the stress at bay. Also, if it's an option for you, maybe consider taking some time off from your work-related responsibilities and focus on diet, sleep hygiene, and doing things that you enjoy primarily. I'm a college student who had to take this semester off because of this virus, so I'm currently living with my parents and doing nothing full-time (which probably sounds great to a lot of people but I was very active, high-functioning person before this took me out). I definitely get a little stir-crazy sometimes (especially when I'm feeling pretty good), but with the constant swinging between feeling good and feeling awful, it's comforting to know that when those awful times come, they won't reflect poorly on me. I just accept that I'm feeling terrible and do my best to pass the time with things that I enjoy (reading, watching movies, etc).
I also hope that you have strong support system of people that will listen to you and acknowledge that what you're going through is really hard. One extremely valuable thing this virus has done for me is shown me who genuinely care about my well-being. I'm incredibly fortunate to have been able to distinguish people like this in in my life.
I know that we want to be in control, but unfortunately we are not. This virus just needs to run it's course. The only thing that will speed it up is to have a healthy mind and body. Nothing special. Just take care of yourself and look forward to the forthcoming days of health where you have completely forgotten that you were ever sick. And when you do remember, don't forget to come back here and let all of us know that you're doing okay and that we will be soon too.
I hope this helps!
katelyn09436 willis42
Posted
this was nicely said willis....im in the same boat was a college student had to take this semester off and am still living with parents i am blessed that they are very supportive of me also during this rough time im 9 months into this now and still feeling overall pretty weak and fragile my blood sugar drops at random times..this virus does crazy things to our bodies...i agree with starr just needing some encouragment lately feeling down about it all but i also know that a lot of people that have recovered do want to put this in the past and not even think about it any longer i know thats how i would feel too...but i also know how hard this is so once we recover i agree its super important to at least share our stories and shed light to those suffering too i cant wait to post a recovery story and im sure yall are eager to do the same....gosh i am praying for us to all have that recovery story just right around the corner!
starrA willis42
Posted
yes
agree!! thank u so much
i hope this wraps up! 100%
ready for life!
take care
what are your symptoms? curious
willis42 starrA
Posted
My symptoms are off and on. Most days I'm just incredibly exhausted and require 10 hour nights of sleep. If I get that much, the fatigue is manageable--any less and I feel like I was hit by a truck. If I'm having a bad flare up, my heart rate spikes, I have a crushing headache, I get hot with this really strange/uncomfortable tingling sensation on my face/around my nose, I get moderate pain in my right shoulder (weird) and in my spleen-area, but all of those things are things I can work through. The fatigue, malaise, and brain fog are the real problem. It's a difficult feeling to put into words, but the best way I can describe it is feeling like my head was zapped/electrocuted by something. It's really uncomfortable.
katelyn09436 willis42
Posted
have that same feeling in my head very weird nothing like a regular headache the fatigue brain fog and malaise are the worst too for me as well as getting hot flushed and feverish
starrA willis42
Posted
thank u well put
im on 1yr
stronger
but fragile
still having issues
i will be here helping others
i will not leave even when well
although its taking so long
i feel like is this it
tough
take care!
starrA willis42
Posted
thank you
agree!!!!
craig07920 starrA
Posted
Hope you're doing okay this week Starr, still been thinking about you and praying for you - praying for God's healing hand for and us all on here.
Craig
Terry0123 starrA
Posted
There is a thread with 251 replies that I read through to help let me know things will get better.
https://patient.info/forums/discuss/mono-recovery-story-collection--559301
It doesn't hurt to start a new discussion though!
Willis, you hit this right on the head. There is no point to stress about something that cannot be cured with anything but time. I have just recently changed my outlook towards this and I have to tell myself that it can always be worse (cancer, etc.) and that I will get through this! (You all will too!)
craig07920 starrA
Posted
Sorry for all the posts Starr, a combination of things helped during my recovery, taking vitamins and herbs, finding the balance between rest and activity, trying (hard as it really really is) to be patient, just managing things day to day and not looking too far ahead, and most definitely praying and trusting God was the no.1 thing, it's not at all easy to hold onto strong faith during trials I really do know Starr and have been finding it difficult at times myself lately, but knowing that God is there looking after you and will pull you through is something to hold onto, great hope.
There is a British man called Phillip Day who is into vitamins and herbs a lot and recently I went to see a talk with him and learned a lot of useful new things - he advised taking much higher doses of Vitamin C and Vitamin D, particular during times to stress, his company website is www.credence.org I have learned a lot it's worth looking up his views / thoughts on vitamins.
Craig
vancityraincity starrA
Edited
i made a full recovery, but i already wrote about it lots so click on my username to see allllllll my posts from sickness to latest update.
i am now 95% normal
craig07920 vancityraincity
Posted
So pleased to hear you are doing much better van - this is wonderful to hear. And that 95% will get back to 100%, there is more improvements to come I do believe!
Craig
Mono_too starrA
Edited
Hi Starr,
I was diagnosed with mono in Ocotober of 2017, I have recovered, I drink green tea for anti inflammatory properties and take Advil as needed and plenty of rest. I did take monolaurin,
starrA Mono_too
Posted
thanku
good to hear
so you said you rink tea and rest /advil etc
does that mean now or past tense? is this a prevenative measure?
youre 100%?
im so ready for life/body back
it feels like its coming.....glimpses of normal
but not a full symptom free day yet*
the normal moments seem more and closer than ever at this 1yr timeline of mine
will my body cont to heal
??
thank u so much
you have helped me a lot
my jelly legs scare me so very much
the head stuff too
ugh
thanku again!
Mono_too starrA
Posted
Hi Starr,
Yes pretty much recovered, have down days now and again, especially after a virus. I would say I am 95% and very grateful for that. The weakness in the leg lasts for a long time. I was 54 when I got this, so i think it lasts longer when you are older.
When I was sick I thought I would never get my life back, it is a very slow process but you will get there.
starrA Mono_too
Posted
thank u
concerned
seems like no one recovers 100%?
?
do u think monolaurin got u well
i dont want to take that?....
craig07920 starrA
Posted
I believe people can and do recover 100% Starr, with God's help of course. Of course it can take time and for at Year 2 you might get to say 90% or 95% and then get the extra 5 or 10% after that.
Still believing for Mono_too also that the extra 5% is coming.
Craig
starrA craig07920
Posted
thank u craig
how are you?
sorry im not responding much
i feel better then backslide
over nothing
im on my best behaviour here!
eating good etc sticking with it!
feeling pretty good then bam
it comes back????? still dealing with nasty symptoms feeling stuck ugh
ready for 100%!
thsnk u for yoir time
care
concern
sincerity
God works through you
you are a guardian Angel
i appreciate you
not a lot of people care like you these days in this crazy world we live in!
hope you are well and are seeing brighter days
i pray for all here and i pray for God to diminish this curse once and for all!
take care & happy weekend to you!
Mono_too starrA
Posted
Hi Starr,
I am not sure what made me feel better, I did not take the monolaurin powder only a tablet. I think it is a pretty natural thing.
The green tea seems to be a help. I also took vitamin D. I always thought natural remedies seem best.
Some people have mentioned anti virals. Maybe someone on the site has had experience with this.
The first recovery signs are the periods of feeling better. Then the relapse phase. You will recovery eventually this is just a very long road. I wish you all the best.
craig07920 starrA
Posted
Hi Starr,
What lovely words I can only say thanks, I wish I was as good as you portray! I find it hard to keep positive attitude too and to hold onto hope and faith in hard times, not been coping too well at times lately, having issues with my foot which has upset me, compaining and moaning about it too much too I know I need to be more grateful and keep putting my hope and trust in God.
You're doing all the right things, sometimes it's just about patience, time and perseverance. It's such a hard thing I know. I still believe there is 100% there for you Starr, I'm not giving up on that and I have confidence that God is working on things behind the scenes for you and that the manifestations of your FULL recovery will be seen.
You are such a wonderful person and support to me and everyone on the forum too - I'm very grateful for that - hoping and praying for a good week ahead for you, today might just be the day that the corner turns I hope and pray for this and for breakthrough for you today Starr!
Craig
starrA Mono_too
Posted
thank u
at one year
i was noticing more periods of feeling better closer together
but only for hours not days or full days?
13+ mos in?
i feel deafeated
im on 800 Acyclovir one daily antiviral dont know if that helps
on lexapro for anxiety 5mg it helps
feeling like progress is made
then taken away
achy
etc
i do not understand relapses?
if i have good moments
am i in recovery phase?
or relapse?
im very mixed up
as ive yet to have one good day
good hours not days
?
i eat well
juice etc
all things perfectly
supplements etc
feel so stuck
how do i get better day to day?
how do i improve more quickly
i feel like what does post viral mean?
anymore advice would be wonderful.....
right now
im dealing with weak legs
low back pain
knee aches
feet too
arms
back spine
neck
basically my spine and back of whole body
strange
headache
clogged
tired.....
things have lifted but others just keep rolling
i wake up
make bed
get dressed
make bfast
walk out back
twice day
move my body
gently
pace
dont work
dont run around
as i want to not push and just rest
but have to function
cannot lay in bed
which before i had no choice
does this end?
who will i be
8/13/18
i was working
doing yoga feeling incredible
8/14/18
got this
sick overnight
life changed
will i ever be me
its getting to me
if i saw more improvement
id be lifted
but feel like ok is this it?
thank u for your advice!
sorry to be blue
i just miss me
what do i identify with now?
me what i love is on hold?........
glad to hear you recovered
im 39 when hit
now 40
btw