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Functional Symptoms

Posted , 3 users are following.

jimmyjimmy7
jimmyjimmy7

Hey Folks,

Hope you are doing as well as possible.

I have recently been diagnosed with a Functional Neurological Disorder which is really miserable. I started with a tingling sensation all over my body, this went away after 5 days and left me with terrible burning pain in my arms and legs.

I also have alot of bloating when i eat and have an overactive bladder. I am wondering why we dont know in this day and age what causes this and how to reverse it. All the tax we paid when we was productive citizens and now we are dismissed and left to get on with it, what a miserable world.

The burning pain settles down for a week and then comes back really badly. Is this my life now and will things get much worse, will i have seizures, paralysis, speech problems, vision problems in the future? Or with sensory symptoms will things get stay the same or could i have more sensory symptoms?

Sorry for sounding so negative and angry it is not aimed at anyone, just how i am feeling at the moment. A thousand apologies.

Regards,

Jimmy

0 likes, 2 replies

2 Replies

  • nathan44583
    nathan44583 jimmyjimmy7

    Posted

    I was diagnosed with FND in November 2018 after an absolutely miserable February - May of that year, with the symptoms you described above and some additional ones (persistent dizziness, stinging extremities, pain in my lower abs and privates, hot flushes, general unwellness etc.). I was also very angry with the apparent lack of knowledge/interest from my doctors and scared it would get worse.

    After May my symptoms slowly improved to the point I could do 85% of what I wanted to and have been very gradually improving ever since. I do get strange sensory symptoms still, but these are minor and go away after 2-5 days after me ignoring them.

    How long have you had symptoms for? Of course your experience will be different from mine, but you should have hope that eventually your symptoms will settle down and you can get back to doing the things you want to.

  • Humdiddydum
    Humdiddydum jimmyjimmy7

    Posted

    I have a diagnosis of FND finally. I started with dizzy spells throbbing in my whole body anxiety sensory synptoms. ubfortunately my sensory symptoms are progressing. I did have about 5 months of less severe symptoms and controlled my ears with ear plugs. Alas after several flares im back being severely affected and can barely use my phone, read or watch tb without setting off full body spasms that just keep building. my Neurologist has washed his hands of me and ive tried 5 different drugs with none really helping. im trying CBD oil but im on Zopiclone for sleep Pregabalin amd Diazepam. im depressed and feel like a ghost in my family and friends lives. im angry I dont get to have a family and scared for my future. This is my story not yours though I just wanted to empathise and send love. I have a slither of hope for the future as it aint over until its over but its a struggle and I feel your pain xx

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