Funding for nebulised antibiotic Tobramycin?
Posted , 4 users are following.
I realise this is rather a specialist topic but would like to hear the experience of anyone on nebulised antibiotics. I have had bronchectasis for 45 years and over 10 years ago I became colonised with the bug Pseudomas Aeruginosa. I was prescribed a twice daily nebulised antibiotic called Colymicin and this enabled me to continue working in a senior management role for a further 5 years. I had to retire on ill health grounds 5 years ago. It takes me 5 hours a day of physiotherapy and medicine administration to keep me out of hospital and this has a significant impact on my life. My consultant now wants me to try alternating Colymicin with Tobramycin to slow my declining lung function and also to reduce my reliance on steroids (which have given me painful legs and very thin skin). However, she is unable to get funding as it will cost approximately £10k per annum. Is anyone else is in this position?
0 likes, 7 replies
susan71068 Columbine17
Posted
Columbine17 susan71068
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Unfortunately I cannot have the Tobramycin IV as I have hearing problems and it is known to make these worse, hence the idea of nebulised Tobi.
I am sorry your husband did not tolerate it as I am sure it has helped me. I did hear that using water instead of saline to mix the powder can help with tightness.
I hope the IVs are working for him - it's a rubbish situation to be in...
All the best to you both.
susan71068 Columbine17
Posted
Columbine17 susan71068
Posted
susan71068 Columbine17
Posted
elizabeth49611 Columbine17
Posted
I live in the states and have not heard of taking an antibiotic by way of the nebulizer. I also haven't heard of Colomycin orTobramycin.
I'm always surprised that treatment in the UK and treatment in the states can be so different. The medical field must not communicate internationally very well.
Ho[pefully, you will get good responses from this website, Beth
Columbine17 elizabeth49611
Posted
They are used for CF patients mainly but as they are known to work against Pseudomonas, my consultant tried Colymicin on me and it has kept me out of hospital.
Not only is treatment inconsistant between the US and UK, it seems to be inconsistent between different parts of the UK - or so it seems to me!