Funky results!
Posted , 5 users are following.
I’ve got my thyroid results back and my TSH is 0.01 and my T4 is 9.9
I’m feeling absolutely awful, but also have M.E./C.F.S. and a lot of the symptoms get palmed off onto that.
I’ve been on hypothyroid meds for 15 years now (I’m in my early 30s).
The dose for the past 8+ years has been:
75mg levothyroxine
10mg liothyronine
My GP surgery says to call in 1 week time to have a telephone appointment but I’m feeling grotty & thought I’d ask on here in the mean time for some advice!
0 likes, 9 replies
dave64969 sweetdixie
Posted
sweetdixie dave64969
Posted
I'm exhausted (deep in my bones, a long way from 'tired'
, ache all the time, not sleeping that well (unusual for me), skin has acne and a weird rash, brain fog and unable to string sentences together most of the time, lack of cognitive sharpness, tingling, headaches, irritable at times, constipated, constantly hungry and putting on weight, wobbly on my legs, twitches (legs), unable to control temperature, excessive sweating at times. I can't walk more than a few metres. I could go on but you get the idea. It's not very fun!
I'm living with my parents as I am unable to function.
sweetdixie dave64969
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P.S. Thank you!
I can't see how to edit the above comment to remove the smiley caused by the grammar, oops!
sweetdixie dave64969
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Oh, and it's the second test confirming that!
I had the result last time I had my consultant review, and the registrar said 'we will do another test in 12 months and assess it then' but I wanted another and it to be reviewed now if changing my meds can make me feel better.
MtViewCatherine sweetdixie
Posted
From my exoerience on levothyroxin (only), I felt best with my thyroxin numbers in the high end of range. However, this tended to zero out my TSH, similar to yours.
sweetdixie MtViewCatherine
Posted
Thanks.
I’ve been on the meds for a long while but for the past 6 months I’ve changed pharmacy and have noticed that every month the manufacturer (& packaging) changes.
That never occurred to me that maybe it could affect the results/how I’m feeling.
Being told I’m TSH 0.01, and feeling incredibly poorly, but the hospital wants to wait 12 months to assess that I find that frustrating. I’m showing many symptoms of things not being ‘right’ and don’t want to wait a year to put my health back on track.
It’s weird, by voicing all this I sound rather moany, but in real life I just let things be and ‘go with it’, as I’ve had to the the M.E. I’m not pushy but having some results that actually show I’m poorly and can be fixed is something I want to cling to and hope it can result in some positive changes.
MtViewCatherine sweetdixie
Posted
Hi Dixie, it isn't moany at all. Youre feeling a difference, your tests show a difference, you’re seeing a difference in packaging when you pick up your meds.
Honestly, if you can afford it and manage your own dosing, the ThyroGold is much more reliable.
These drug companies change facilities, contract out manufacturing so its impossible to control, use low cost third world country manufacturing facilities...
Have you ever baked cookies in bulk and tried to scale up your recipe by using the same measurements quadrupled? It doesn’t work. Every time there’s even a small change in manufacturing, you’ll never get the exact same product. Its impossible to do each batch exactly the same, much less accommodate for all the personnel, manufacturing facility changes, subcontracting, etc. I don't trust the quality or content of these drugs as far as I can throw a stick!
mar75090 sweetdixie
Posted
mar75090 sweetdixie
Posted