Funky results!

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I’ve got my thyroid results back and my TSH is 0.01 and my T4 is 9.9

I’m feeling absolutely awful, but also have M.E./C.F.S. and a lot of the symptoms get palmed off onto that. 

I’ve been on hypothyroid meds for 15 years now (I’m in my early 30s). 

The dose for the past 8+ years has been:

75mg levothyroxine

10mg liothyronine

My GP surgery says to call in 1 week time to have a telephone appointment but I’m feeling grotty & thought I’d ask on here in the mean time for some advice!

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9 Replies

  • Posted

    That TSH is way low. If it’s correct it would indicate you are taking too high a dose. Most sources suggest it ideally needs to be between 1 and 4. What are your symptoms right now?
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    • Posted

      I'm exhausted (deep in my bones, a long way from 'tired'wink, ache all the time, not sleeping that well (unusual for me), skin has acne and a weird rash, brain fog and unable to string sentences together most of the time, lack of cognitive sharpness, tingling, headaches, irritable at times, constipated, constantly hungry and putting on weight, wobbly on my legs, twitches (legs), unable to control temperature, excessive sweating at times. I can't walk more than a few metres. I could go on but you get the idea. It's not very fun!

      I'm living with my parents as I am unable to function.

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    • Posted

      P.S. Thank you!

      I can't see how to edit the above comment to remove the smiley caused by the grammar, oops!

       

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    • Posted

      Oh, and it's the second test confirming that!

      I had the result last time I had my consultant review, and the registrar said 'we will do another test in 12 months and assess it then' but I wanted another and it to be reviewed now if changing my meds can make me feel better.

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  • Posted

    Hi Dixie, you’ve been on the same thyroid meds for a long time? While your body can certainly change and environmental factors can worsen thyroid disease, keep in mind that drug companies change formulations frequently.  So there. That’s four possible reasons for your difficulty. 

    From my exoerience on levothyroxin (only), I felt best with my thyroxin numbers in the high end of range. However, this tended to zero out my TSH, similar to yours.

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    • Posted

      Thanks.

      I’ve been on the meds for a long while but for the past 6 months I’ve changed pharmacy and have noticed that every month the manufacturer (& packaging) changes.

      That never occurred to me that maybe it could affect the results/how I’m feeling. 

      Being told I’m TSH 0.01, and feeling incredibly poorly, but the hospital wants to wait 12 months to assess that I find that frustrating. I’m showing many symptoms of things not being ‘right’ and don’t want to wait a year to put my health back on track.

      It’s weird, by voicing all this I sound rather moany, but in real life I just let things be and ‘go with it’, as I’ve had to the the M.E.  I’m not pushy but having some results that actually show I’m poorly and can be fixed is something I want to cling to and hope it can result in some positive changes. 

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    • Posted

      Hi Dixie, it isn't moany at all. Youre feeling a difference, your tests show a difference, you’re seeing a difference in packaging when you pick up your meds. 

      Honestly, if you can afford it and manage your own dosing, the ThyroGold is much more reliable.

      These drug companies change facilities, contract out manufacturing so its impossible to control, use low cost third world country manufacturing facilities... 

      Have you ever baked cookies in bulk and tried to scale up your recipe by using the same measurements quadrupled? It doesn’t work. Every time there’s even a small change in manufacturing, you’ll never get the exact same product. Its impossible to do each batch exactly the same, much less accommodate for all the personnel, manufacturing facility changes, subcontracting, etc. I don't trust the quality or content of these drugs as far as I can throw a stick!

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  • Posted

    You need a FT3 and if possible reverse T3. My TSH is more suppressed than yours.and my FT3 is 3.2 (USA) or 4.7 UK. You are not overmedicated. Your doc shouldnt do anything without at least a FT3. Its criminal if she does. I take 2x your levo dose.

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  • Posted

    Ps what is the T4 range. This is important. You must be UK bc you mentioned surgery. Guess dixie isnt dixieland.
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