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fusion problems

Posted , 9 users are following.

ann67814
ann67814

I am aged 71 and have been diagnosed for a couple of years.

I have reached a point where the labia have fused so much that

everytime I pass urine it is funnelled backwards I am needing to wash and dry my buttock area afterwards. Is it time I asked to

See specialist? I no longer have pain using a low dose steroid

regularly.

0 likes, 24 replies

24 Replies

  • Chrisy
    Chrisy ann67814

    Posted

    Hi Ann. I had similar problems and began spraying. Had a dilation procedure under general anaesthetic last Dec. It sounds worse than it was and a few days later I was fine. Just thought I would pass on these thoughts to you. I would see Gp/specialist if I were you.
    • ann67814
      ann67814 Chrisy

      Posted

      Thank you, I must admit to not fancying intervention!
  • cynthia40883
    cynthia40883 ann67814

    Posted

    I had a dilation of the urethra 3 years ago. They had to use a child's dictator, it was so narrow.This is probably what you need. Caution, talk to them about what they use to disinfect the area before procedure. They cleaned me with a Betadine solution, which is very strong.It stripped my mucosa and caused much pain and burning for a week or more. This was the catalyst or the beginning of my LS. BE CAREFUL.

  • hanny32508
    hanny32508 ann67814

    Posted

    I too had a dilation procedure done.  Do you also rinse with baking soda and 
    • hanny32508
      hanny32508

      Posted

      take baking soda baths?
    • ann67814
      ann67814 hanny32508

      Posted

      No, I don't know about the use of that, where did that information come from, I use a low pH wash.

      Thank you.

    • ann67814
      ann67814 hanny32508

      Posted

      Can you advise on quantities to use please, many thanks

      Ann

    • hanny32508
      hanny32508 ann67814

      Posted

      three pinches in Perin bottle for rinsing after every bathroom visit.  One third of a cup in the bath.
  • katie_19096
    katie_19096 ann67814

    Posted

    Hi Ann thank you for your time in relaying to my post. I've seen 2 gynecolist and they've found strab b. However my symptoms are not related apparently I'm terribly confused. I've used dermovate cream which has stopped burning on vulva hover it's in the inside the burning still passists so does iching on the outside not to mention sharp pelvic pain my gp will not refer me I'm so upset and frustrated with my dad having brain cancer also I'm getting over the edge the opernibg on my vigina is just closed up according to a gynecolist it isn't I'm not stupid I now when it's inflamed please help Ann thank you

    • katie_19096
      katie_19096

      Posted

      My ph level is high also I'm so worried somebody help

    • Chrisy
      Chrisy katie_19096

      Posted

      Sorry to interrupt but you mention burning inside the vagina. Lichen sclerosis doesn't affect inside o Lynn outside. It sounds like you may have lichen planus which has similar symptoms. Or you have a nice tion of some kind. Go back to GP and ask for second opinion and don't be fobbed off. You are entitled to correct diagnosis and treatment. I think as women we need to insist on better treatment and not be robbed off. If the doctors suffered from this I am sure they would listen to us. Good luck.

    • Chrisy
      Chrisy

      Posted

      Predictive text sucks. Ls affects outside not inside and It may also be an infection.
    • ann67814
      ann67814 katie_19096

      Posted

      Sorry Katie, I didn't reply to your post, I think someone else

      Must have answered and you got my name by mistake.

      So Sorry, I do hope youget tthe helpyou need. Ann

    • tabby72761
      tabby72761 katie_19096

      Posted

      Katie...are you seeing a gyno doctor? I recommend seeing a 'female' gyno. They are much more sympathetic and understanding of the frustrations associated with this diagnosis. 

      Praying you can find some answers and relief.

    • hanny32508
      hanny32508 katie_19096

      Posted

      Best to see your gyno katie,  very hard to know from a distance.  Have you tried sitting in a baking soda bath to calm things down? 
    • katie_19096
      katie_19096 tabby72761

      Posted

      Hi tabby I have seen 2 but they've discharged me, I've just realised I'm inflamed on my cervix with burning help please somebody

    • katie_19096
      katie_19096 hanny32508

      Posted

      Thanks handy my gp keeps fobbing me off and not refering me he won't God sake

    • hanny32508
      hanny32508 katie_19096

      Posted

      Your GP probably doesn't know too much about LS.  Do you have a supportive husband?  Bring him along for the next visit.  Sometimes that makes an impression for the better.

      ?Meanwhile - try the baking soda bath and rinses.  Or use Epsom salt instead, which is perhaps a little less affective than baking soda, but purifies as well.

    • katie_19096
      katie_19096 hanny32508

      Posted

      Unfortunately not I was in my 1st relationship for 8 years split up a year ago. And okay I'll do that thanks you

    • Chrisy
      Chrisy katie_19096

      Posted

      There are many unfortunately. Only tests can determine which one. It would be wrong to suggest any. You need to go back to Gp and insist on being referred to a gynaecologist or Women's health clinic. Sorry no idea where you live. I wish you well.

    • jackie770271
      jackie770271 katie_19096

      Posted

      Hi Katie. I had seen 3 gynea but no one really knew what it was or how to help. I then self referred and went to a sexual health clinic. He was fabulous knew straight away what it was and was very concerned at the extent of it. Referred me in to see a dermatologist (apt in Aug). The GUM clinic was my saviour. Good luck.
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