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  3. Polymyalgia Rheumatica and GCA

Fuzzy feeling with aching legs

Posted , 10 users are following.

jackie87166
jackie87166

Hi

My husband has been diagnosed with PMR and is taking prednisolone, 12 mgs. a day.  He takes 7mgs in the morning and 5 mgs. at night. In the morning he feels tired, fuzzy in the head, with aching and weak legs and a higher heart rate until about 3pm. He usually just falls asleep in the morning until the symptoms get better. Does anyone else feel like this? Thanks Jackie

1 like, 28 replies

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  • cindy63197
    cindy63197 jackie87166

    Posted

    I really sympathize with the tired feeling in the morning.  after almost 2 years I am down to 1/2 mg of prednizone, and most of the time I feel good now, but for many months I would get up for a little while, and by 10am, I would be going back to sleep for several hours.  Once I felt the fatigue come on it did me no good to try to fight it.  I was good for nothing, but after sleeping, I was able to get back to doing some things in the afternoon.   Still, every so often it will still hit me, though with less vengence.  Then I still try to go to take a nap as soon as feasible, as I actually have a life now again.  I hope this give you some hope!
    • farmers_wife
      farmers_wife cindy63197

      Posted

      These posts are really helping me to help manage my husband's condition which is Giant Cell Arteritis diagnosed about a month ago but probably having had undiagnosed PMR for a longer time. He had had chronic fatigue for almost two years getting worse and although the prendisolone cured the headache and the muscle ache he is still as tired as previously. As an active person this has made him quite depressed and we thought the initial relief from pain might improve the fatigue and so were more disappointed that it came back almost immediately. He is not good at pacing!

      We have also started a low carb diet in the hope it might help with weight gain.

      But really the benefit is knowing that these symptoms are normal and it will be a waiting game. I will be much more tolerant

    • ptolemy
      ptolemy farmers_wife

      Posted

      I am so sorry to hear about your husband, PMR and GCA are a real bummer. It is also hard on you too. The steroids are great at reducing the pain, but do noting for the fatigue which is part of the illness. I find I do have good days and bad days. The important thing is not to fight it, but just give in. As you say it is a real shock if you are used to being active. Having to say you cannot do something you want to do is incredibly frustrating. Your husband has to come to terms with the fact he has an illness and that steroids just look after the pain, they do nothing for the other symptoms. As time goes by he will learn more about the idiosyncracies of pred, PMR  and GCA. It really is life changing.
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