fybro symtoms point chart?

Posted , 5 users are following.

Hi

Have seen few people mention a score chart for symtoms?

What is it actually called?

And does it make any difference having the result?as have had no luck with gp etc

Beth

0 likes, 10 replies

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10 Replies

  • Posted

    just put in fibro pain chart on the net it should come up .

     

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  • Posted

    I guess, to add re the word GP, that you mentioned, Beth; is that perhaps if you have a Rhuematologist, they should have the Score Chart, and mine used her's , to give me my Official diagnosis.....good luck....Bron
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    • Posted

      Hi Beth. If you're in pain keep complaining to the GP. He'll eventually refer you.  The advantage of having any diagnosis is that finally you'll have, in principle rolleyes, a therapeutic pathway and more importantly they will stop (will they?) looking at you as if you're an hypochondriac. XX
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    • Posted

      Hi again Beth....it really amazes me in today's medical world, that there are some people like you, who have such narrow scoped GPs....what/why do they not refer their patients, even for a second opinion?  As others have said before, I wouldn't keep going to him/her.....my patience isn't strong enough to have someone not listen to me....must be lucky that our GP is a very good and understanding man....we have been seeing him for over 30 years, and other members

      of our family/friends (even the son-in-laws) now class him as their GP...perhaps you may need to find another GP/clinic who will listen....you have the right to demand a referral...but if this too  much stress (which none of us has the energy for more), just research/ask others in your area/family/friends for a new contact.....Bron

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    • Posted

      Thanx bronwyn

      Yes cant get taken seriously.

      Am currently 4weeks in post knee op(my 2nd)also had 2 back ops.

      But fibro?(if it is)started 4 years ago with nearly all the points on list ticked.

      I used to be a party animal now not much of a life.

      Been referred to neurologist for my head/neck ache which rules my life.but all he did was wire my arms up and found weakness on the right.

      Had every scan available and just shows some deteriation in neck.

      Have tried to explain fybro and will try again when im back next month.

      Its all linked.why cant they see that!!

      Im 35 and im not the person i was 4 years ago

      Thanku 4 your support.x

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    • Posted

      as Ellie says....the real answer will come from a Rhuemy...they're the experts...and yes, even then, they need to rule out everything else.  It is usual for all to refer you to other docs, to rule out MS (which has many similar symptoms, as done ME/CFS)...and I feel that many even overlap....for years, my doctors did think I had MS, but I didn;t develope further down the path of MS....and eventually, after much research from all of us, came up with the official diagnosis.   As we said on this forum, only a couple of days ago, that this "testing and dragging out". is the cause that some of us get depressed....and when we find that diagnosis, is when we can start to move forward, and treat ourselves, with the knowledge of what aggravates the symptoms, and what helps our symptoms.   The one very important thing that I have learned, is that ANY stressor, and the weather changes from season to season, can really exacerbate our symptoms, and sets off the pain in another area/muscle....and even the already affected areas.  If you can, to start with, is to get the emotional and physical support from your family/friends, that's a starting point for you, emotionally...and will give you the time to have the rest periods that you need....this also includes when it comes to outings....if you are not feeling well, then we have to let others know that "we just can't do ....(such and such) today"; or if you do, you will need to have a recovery period.  If you can at least get your GP to prescribe you some Amitrytilline, it is very good for pain, and can also help with your emotions (even if you say you want it for use as an anti-depressant....he/she maybe more forthcoming???)...the other thing that we have all been talking about on this site is the research into our T3T4 uptake from our thyroids, which has helped some who have been able to get a small dose of Thyroxine prescribed....once again, a Rhuematologist is good for getting this testing done....hoping I havn't raved too much, and you get some help from it???              Bron
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  • Posted

    I think it's 'Trigger Points' My daughter had them checked. Some Docs don't seem to know much about 'Fibro'! Best to get referred to rheumatology, they deal with it in UK I believe.
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