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Fybromyagia or not???

Posted , 5 users are following.

scott96840
scott96840

Up until 2014 I was in good health and my only issues were mild asthma and intermittent anxiety / depression. I then had 2 minor knee operations and subsequently a high tibial osteotomy (major surgery) to my left leg in Oct 2015. This was to correct an alignment problem below the knee and a metal plate was fitted inside my leg. The leg then took 18 months to heal and on 10 April 2017 my doctor confirmed my leg had finally healed and the metalwork could be removed. After seeing my consultant that day, I left the hospital and drove a mile down the road and had very serious car crash which resulted in a lower back injury, elbow damage, shoulder issues and my left knee also flared up. Shortly after the accident, I started to have PTSD type symptoms which went on for around 9 months. Since the accident, I have also had mild tinitus and a bout of vertigo, but both of these have resolved. Throughout 2018, I had all sorts of problems - painful joints / muscles / stiffness in my feet, hands, arms, knees, hips, lower back and neck. I am not sleeping and am suffering with extreme tiredness and no energy. I am struggling to concentrate at work and have restless legs. I overheat very easily and also have itchy skin. My anxiety has also returned and has got much worse. I was referred to see a rheumatologist to check for RA. Lots of bloods tests were done plus an MRI on my lower back. I have now received confirmation that it isnt RA, but when I met the consultant he said it was most likely to be fybromyalgia. I have now been sent back to the GP who has decided he wants to change my medication for a different anti depressant to see if this improves my sleep. For me, sleep quality is major factor so I hope this helps. I want to know how to get a proper diagnosis, as at the moment I feel like I am in no mans land. Can anyone help and do you think this is fybromyagia or something else? Any help would be really appreciated. Thanks

0 likes, 3 replies

3 Replies

  • christine26761
    christine26761 scott96840

    Posted

    Hiya Scott, a rheumatologist is the doctor that diagnoses this autoimmune disease and others too.I have 3..Chronic Fatigue comes with fibro usually, we all have it as well....f he has diagnosed you then you have it..Most of us on here have it for 10years and more before being diagnosed, because it has so many differing symtoms we tend to be treated for that one individually, but I was not diagnosed until I saw a rheumatologist. be bkessed Scott, have a lovely..hope it helps, someone on here will have the answer your, looking for..

  • scott96840
    scott96840

    Posted

    Thanks for the reply. The bit I am confused about is my GP said back in the early summer that he thinks its fybromyalgia. He then sent me to the Rheumatologist to rule out RA. I had loads of blood tests done and an MRI which confirmed no RA. The consultant said my symptoms are consistent with fybro but following my MRI I didnt get to see him again. A letter was just sent to the GP saying its not RA. I queried the process with the hospital and was told the Rheumatologist only deals with RA and not fybromyalgia. My GP has now suggested a change in my fluoxentine medication to see if this helps me sleep. In fact, I now feel even worse so will have to go back to the GP yet again. I dont understand why the Rheumatologist isnt more involved, as from all the information you read on line, this type of specialist deals with this type of diagnosis - or am I misunderstanding things? I feel like I am going around in circles!

    • donna76140
      donna76140 scott96840

      Posted

      you definitely need to see another rhymy not all of them even believe in fibro so please ask your GP to send you to another one please because i would say yes you have but im not a doctor keep us posted good luck ❤

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