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Just back from rheumatologist. He has just diagnosed me with fibromyalgia and raynaulds. I'm on umpteen different medications for them. Just looking for some advice. I have not been working due to that and a bowel condition. Is there any financial help I could claim as I've used up all my contribution based payments on esa for the bowel complaint I had. Any help would be appreciated

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  • Posted

    Hi Lesley,

    I have ibs, fibromyalgia,Raynuards .

    My personal journey has lead me to discovering I have maladaptive stress disorder. Ie...perpetually in fight or flight mode.

    It has manifested itself in part, by decades of overproduction of cortisol/ adrenaline...which has eventually taken it toll on my physiology and tipped over into autoimmunity.

    Its a complex beast of different mechanisms working against the natural healing process.

    With fibromyalgia, there are always stresser triggers, it can be chemical exposure, infections, emotional, nutritional deficiencies.

    It's tough to navigate yourself onto a successfull healing path without support of professionals that truly understand the complexity of the condition.

    I can't advice on benefits I'm afraid, I'm on sick from work and currently going through the process of speaking to occupational health and their policies regarding acknowledging the condition as a genuine physilogical illness and not just depression or an excuse not to work, which sadly is how many view this condition.

    I suspect your local authority will have the information and maybe citizens advice bureau?

    There are many tests you can have done privately to provide evidence of hormone imbalances, mitochondrial function...

    But I highly recommend you do your research if you decide to seek private medical assistance.

    If your in the UK there are specialists that i can reccomend.

    Best wishes

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    • Posted

      Thanks for getting back to me. In away I'm glad they have diagnosed me with something. My head at the moment is all over the place. Do I have arthritis of some sort . I've no idea what fibromyalgia is . They gave me a book about it but still confused as to what it actually is. Today has been a nightmare as the doctor I seen proded and poked at my joints and I'm in agony now. Is this the best my life gets now xx

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  • Posted

    Hi Lesley,

    Fibromyalgia, is not well understood particularly in the UK and what's worse is the information provided by NHS is misleading and out of date.

    Fibromyalgia/me/chronic fatigue syndrome......

    It's a group of symptoms that you are experiencing that's systemic ie multiple biological processes - not one organ.

    Hence all the complex symptoms.

    Your symptoms are a clue as to what's happening so be aware of them, what time of day, triggers....what you eat, think, drink.

    It's your mind And body being put under one or more stressers, often prolonged periods of time where multiple organ disfunction has a destructive pattern in opposed to a healing pattern.

    Think back carefully about potential stressers that occured because those are the clues to identifying your roots to possible causes and where you can focus on your path to healing.

    The optimum health clinic in London is a good place to start.

    It's an organisation where a lot of the practitioners have healed themselves/ recovered .

    They can send you free booklet and a DVD detailing the condition and how you heal.

    It has a group of nutritionist that are highly skilled and up to date with new research.

    It has a Facebook page and a call back appointment system that answers questions you may have.

    They offer a programme you can do remotely or there at the clinic.

    Getting well will not be a case of taking a pill.

    Best wishes

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