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I've had TN on and off for a couple of years. I initially took carbamazepine (Tegretol) which proved to be effective but had side effects such that I was prescribed gabapentin ( Neurontin) as an alternative. This has had very few side effects but is not quite as effective as carbamazepine, which is consistent with the literature.
I am currently having an attack of TN and gradually increasing the dosage of gabapentin to a level that will give me pain relief. This is being monitored by my GP and pharmacist. At present, I'm taking a daily dose of 1800mg, in three X 600mg amounts. This is proving to be just enough to keep the worst of the pain at bay but there still remains a localized, nagging pain just below my left ear. I'm able to shave, clean my teeth and eat - all things that prove nearly impossible without drug treatment.
My questions: Do other gabapentin users have similar experiences and would they recommend keeping the dose at this level? The amount taken per day can be increased but I like the idea of keeping 'an eye on the pain level' in case I go into remission and having a higher dosage 'in reserve' for future attacks. Thank you.
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