Gabapentin weaning
Posted , 8 users are following.
So I really need some encouragement.I am down to 200 mg of gabby a day not quite a week(was on 300) yesterday seemed fine had some anxiety nothing a clonazepam couldn't help.slept good.today out of the blue im crying having thoughts that this weaning isn't going to get better and honestly I'm scared.Is this just part of the weaning process? I hate it!😢😢
0 likes, 49 replies
Jhow21 vivian12845
Posted
Kmj523 Jhow21
Posted
vivian12845 Jhow21
Posted
Jhow21 vivian12845
Posted
david_91537 vivian12845
Posted
Warning !!!!
I was on 300 mg for 6 months then quit cold turkey because I didn't know any better. I thought I was literally going to die around week 2. I went to an urgent care at week 3 and was put on 0.5 mg of klonopin, all side effects went away. 6 months later all hell broke lose because of interdose withdrawals from the klonopin. I decided to wean off but it was still horrible . 8 months later I still have terrible effects from the klonopin, please YouTube benzo withdrawal and listen to the stories, it's frightening but true. It can last for up to 2 years in some people.
Kmj523 david_91537
Posted
Kmj523 vivian12845
Posted
Or take them for a long period of time, use melatonin and Benadryl with at night to sleep with your 200mg of gabapentin. On the days you can sleep in take 12.5 mg of phenergan instead of Benadryl. Cut 100mg every week or every 2 weeks depending on how you feel, I will cut to 100mg at night starting this next Friday. Do not do not! Let these horror stories scare you, or you will fail! I have withdrawal from zyprexa, depakote, propranolol, seroquel, remeron, Valium, lamictal, and trazadone this year alone! The worst I mean worst, even worse than benzo withdrawal was from zyprexa, but that’s another story. I also have came off of Wellbutrin, Cymbalta, lexapro, Prozac, prostiqe, risperdal, celexa, and much more. Google Advil and brain damage you’ll find the web says it can cause brain damage! You can find anything on the web! Please do what your dr tells you, and not obsess over other people’s obsessions.
Kmj523
Posted
vivian12845 Kmj523
Posted
Thanks Kmj523, I am doing it nice and slow and yes the way some people talk scares me to death and puts depressing thoughts in my head.I do take a clonazepam 0.5 when I get that anxiety.I have been taking this for years and it does help.Once I hit that 100 mg do I stay on it for a few weeks and then just stop or do 100mg every other day? Its so confusing! I just can't wait til Im off of them.I feel like a whole different person and not in a good way
Kmj523 vivian12845
Posted
Jhow21 Kmj523
Posted
vivian12845 Kmj523
Posted
The anxiety seems to be the only issue but years ago I went thru terrible depression and anxiety and that's when I was put on paxil and clonazepam.So I know I'm just thinking about that.And yes, the stories I read are people on 1800mg and up.thats alot!I really appreciate the pep talk and soon enough Ill be back to my old self.please keep me informed of how your weaning is going and good luck with that speeding ticket.😉
Kmj523 Jhow21
Posted
Kmj523 vivian12845
Posted
Def! And you the same, your anxiety is just playing tricks on you, just remember your in control of your thoughts 😊
vivian12845 Kmj523
Posted
vivian12845
Posted
Sorry meant 3 hour separation😱damn spell check!
Kmj523 vivian12845
Posted
vivian12845 Kmj523
Posted
Not necessarily I've heard that it can help with the weaning plus I have restless leg so it seems to be helping alittle.were you on 200mg gabby for acouple weeks,a month? In thinking on staying on 200 for a month then dropping to 100
Kmj523 vivian12845
Posted
vivian12845 Kmj523
Posted
Wow a stroke at 11? You've been thru alot. Yeh I stopped reading the horror stories just too depressing. I was thinking about going down to 50mg after the 100. Its pretty easy to open a capsule and divide it.keep me up to date with how you do on 100 mg. And my clonapazam will be used!
babs99203 vivian12845
Posted
Viv, the drug has a short half life so I understand why it could be thought that it’s out of your body in X number of hours but the side effects can last days, weeks or years. These are not attempts to scare you, people share their story so that it will hopefully help others. Just because they had problems doesn'tmean you will. Same without the opinion that she had no problems so you won’t. We can not predict. Please get more info from The Withdrawal Project, benzo buddies or other support groups. Some of what has been posted here is incorrect. Go slowly. Allow your body to heal but realize you may have some miserable days. These are all powerful drugs and mixing them can be very dangerous. I’m worried about you.
vivian12845 babs99203
Posted
I originally got on gabapentin for my rls along with my hydrocodone.The gabby stopped working for the rls and I only took 900mg tops sometimes 600mg. I just don't want to be on it anymore.I have been on paxil and clonazepam for over 20 years due to a chemical imbalance and deep depression.most of the time my clonazepam sits in the drawer and I used it only when I felt anxious not that often.the only effect I have is slight anxiety I guess when I taper some more I'll see what happens.I may even drop just by 50mg.All I know is I want off of this crap! Thanks for the info.Did you wean off of it too?
Kmj523 vivian12845
Posted
Kmj523
Posted
vivian12845 Kmj523
Posted
I know you didn't didnt help my frame of mind from ready her comment but Im thinking positive!!
Kmj523 vivian12845
Posted
vivian12845 Kmj523
Posted
G.Allyn Kmj523
Posted
I worked at the #1 hospital in the country for cardio-thoracic surgery and have many years at university in anatomy/pharmacology and working in an acute medical setting. My postings are accurate accounts of what I have been through.
We should all be allowed to accurately tell others what we have been through with this medication. I have never tried to frighten anyone, but if people think they will discontinue gabapentin and feel better quickly, some may be in for an unpleasant surprise.
Gabapentin has a very short half-life, but this is immaterial to the symptoms I experienced after 100% discontinuing this drug. I hope others have a much better experience, but I will continue to discuss the truth. The truth may help others who are having a difficult time make it through the rough spots.
vivian12845 G.Allyn
Posted
Would it not depend on the years in it,the dosage and the individual itself? I read where some people come off of a larger dose like it's nothing! Doesn't seem fair.but if I can go down from 200 to 150 to 100 it should be a much easier transition.I may get anxiety and im already on meds.for that from years ago but hardly ever use them until this s**t happened .I guess I will find out how it goes when I go down to 150.Thank God I hadn't been taking it that long and not at a high dose.
Kmj523 vivian12845
Posted
vivian12845 Kmj523
Posted
Maybe because these people were on a much larger dose than us.I may drop 50 mg at the end of week(taking half out of a capsule) if that works out in acouple weeks I'll cut another 50mg.like I said the only thing I have is slight anxiety which will melt away in time.I cannot see a low of a dose as we are on lasting a year.Soon we'll be looking back at this and be so relieved we are off of it.
Kmj523 vivian12845
Posted
babs99203 vivian12845
Posted
Dosage and length of time on it don't have as big an effect as you'd think. It's quite individual. Yes, longer and higher doses may cause more problems. But in rare cases some people have terrible problems at very low levels. No one is trying to scare anyone. We're sharing our experiences and those out friends. For some, knowing more can help. For others, ignorance is bliss. Whatever helps.
babs99203 vivian12845
Posted
Technically I don't know if one would call it withdrawal. But memory loss, cognitive problems and other issues can last. Gab destroys neurons. The good news is we have millions of them and they can heal, but it may take time. Gab is not a benzos not is it an opioid but there are similarities in what they all do to the brain.
vivian12845 babs99203
Posted
I was wondering what was going on with my memory god I would be sooo forgetful and sometimes couldnt get a sentence out.even my granddaughter noticed😕.They lower the dose now I've noticed it getting better.Im just praying for a good outcome and so far pretty good.Thanks
amanda59745 Kmj523
Posted
Guest Kmj523
Posted
Jhow21 Guest
Posted
G.Allyn Kmj523
Posted
I think people on this forum are using the word *withdrawal* for lack of a medical term to describe what happens when you discontinue gabapentin. It is not a typical withdrawal, but physical symptoms due to physiological changes that occurred while on the medication and what happens when that medication is withdrawn.
Think of what happens when you take an anti-histamine for a period of time and discontinue the OTC medication. You get a rebound response. This is why your sinuses run like a faucet when you suddenly discontinue an anti-histamine. You no longer have the drug binding to the receptor site.
Medications bind to receptor sites. Physiological changes occur. People complaining about weaning and completely discontinuing gabapentin are having true physical responses. If something works on your central nervous system (brain and spinal cord), there will be consequences when the medication is stopped for some who have taken the medication.
Our physiology is not identical. Something that I have problems with, may cause someone else zero problems or may cause someone significant complaints.
I would caution people about suggesting patient complaints are psychological. Discontinuing gabapentin has been awful.
babs99203 G.Allyn
Posted
G.Allyn, you're correct in your terminology choice, and other comments you made. Technically it's "discontinuation syndrome", but I don't bother using that term for multiple reasons (and I'm usually a stickler for accuracy).
1. The pharmaceutical companies prefer DS as the term, and I won't give them the satisfaction of spreading that phrase around.
2. Most people have a rough idea of what withdrawal is, but none of DS.
3. It's just easier to write. Sorry, but between the pain and the Gab Brain, I'll take the easy way out.
The only "psychological" issues we should be discussing are LITERALLY the psyschological issues of depression, anxiety, panic attacks, fear and confusion caused by gab. Those problems occur, as you mention, because of the chemicals in our brain reacting to the condition created by the med. Correct KMJ, one doesn't go through "withdrawal" for years, but the damage to our brains and body caused by the drug CAN last years.
jamie76421 babs99203
Posted
Kmj523 G.Allyn
Posted
Ps one more thing, There is no permanent withdrawals that’s impossible.
babs99203 Kmj523
Posted
The "internet" has nothing to do with the physical changes one develops from taking medications. Every medication has side effects and they vary from person to person. Maybe you've never read the patient information sheet that comes with ANY prescription drug. The list for gabapentin is very long, yet most people don't realize what's happening. They just know something is wrong.
I'm done responding to your posts. You are entitled to your views, and I, and others are entitled to ours. If people ask what problems we have, or what they can do to feel better, people, such as I will answer. I've been helped tremendously by the various groups I'm in and the people who have helped me understand how to deal with both my health concern and the meds I'm taking.
I worked as a medical secretary for over 30 years and I'm grateful for what I've learned over my career that helps me sort through this, usually a bit better than others. I will continue to try and help people and reassure them that what they're dealing with is NOT in their imagination, that they can get better, but it will take time. Support, knowledge and compassion can help immensely.