Gabapentin withdrawal and palpitations
Posted , 25 users are following.
Hi. I was put on Gabapentin for nerve pain (though it turns out I was just having nerve pain-like withdrawals from coming off Mirtazapine). I only took Gabapentin for a week - max 200mg - then stopped as it gave me terrible side effects. I have now had two weeks of terrible withdrawals - nausea and insomnia for 5-6 days but ongoing heart palpitations (especially in the afternoon and evening) and high dayime anxiety. Has anyone else experienced anything similar? The palpitations are worse at mealtimes and I've lost a lot of weight too. Anyone had a similar experience? Does it ease? I'm gutted to have such withdrawals after just a week of taking a low dose.
3 likes, 75 replies
grace28398 gina18608
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grace28398
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candice1159 gina18608
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Hello I am 26 yrs old with 3 beautiful babies, might I warn anyone that takes this drug of the seriousness of the withdrawls..I have been on this medication in and off for 4 years now for anxiety such is so ironic! It started about a yr ago I started getring sleep paralysis, night sweats, and bad bad anxiety ! It subsided once I had insurance again and was able to obtain the gabapentin the withdrawl last a whole month for me at one point my heart started palipitating so bad i thought I was going to die..had test done everything ok, but I'm my heart and mind i know I'm not since then I am still on the midicine however I am starting to get pressure in my head stuff neck muscle twitches, and bad what feels like ear pressure but no infection sometimes if I don't take atleast 400 mg I feel as though I can't breathe ! My back teeth are going bad so infection definately does not help! Might I warn anyone before they say yes to this medicine you will eventually get side effects and not light side effects and if you go to taper down you will get severe withdrawl symptoms this is a very dangerous med to just quit I quit at one point and wound up in intensive care ..had to have a spinal operator and it was all over withers from the gab! My husband had a similar episode as well his was nt as severe but severe enough! I can only speak for myself but I am not the same person I was before I started this med, I want to find myself again and feel trapped because it can be serious to quit and can be serious to stay on this stuff I am beside myself I hope someone heard this so they know how serious this drug can be to your health!
kirk51905 candice1159
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grace28398 candice1159
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babs99203 grace28398
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Grace and Candice, IMHO that's an agressive schedule to decrease the drug. I was diagnosed with shingles back in November, and eventually increased to 2400 mg/day. I've SLOWLY been improving but I have PHN. I'm starting to decrease the Gab but 3 months ago, even dropping 100 mg/day caused some nasty symptoms. This time I tried again and I didn't have many of those problems. However, I have started palpitations, found this via a Google search. I am active on the PHN/Shingles section of this website, but hadn't gotten many responses to my thread regarding gab withdrawal. I guess (LOL) this is helpful, but just what I thought I'd avoid any side-effects, now I know it's still that dear drug!.. Grace, that "costochondritis" may have been shingles. You don't need a rash to have shingles. My chest and back pain are caused by the virus, and I barely had any rash at all. Take care all.
grace28398 babs99203
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babs99203 grace28398
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Grace, are you aware that you do NOT need to have a rash to have shingles? I joined this Patient Forum group when I was diagnosed with shingles, I had almost no rash on my back (a couple of tiny bumps) and then two weeks later four tiny bumps on my lower breast. That was it. The key to my diagnosis was the pain and how it followed the nerve path from the back to the front.
I AM NOT A DOCTOR NOR A NURSE, I ONLY WORKED AS A MEDICAL SECRETARY! However, please consider going over to the shingles forums and see if what you hear there matches with your symptoms. It can be hard to diagnose or extremely easy. My doctor agreed that people can get all kind of medical work-ups before doctors realize it's shingles. I diagnosed my husband (twice) and my father. Dad had more of the typical rash, my husband only the pain and a small area that looked a bit like prickly heat rash. Try and think back to when you first had the pain, did you also feel ill? Did you have a headache, feel lousy, fatigue, does the pain follow a specific nerve line (like a ring around your body)? But this sneaky thing can also cause pain in a much larger area, like 1/4 of my back or my front. I personally have about 8 different kinds of pain, isn't that neato?? Is the pain made worse by specifici movements such as leaning, bending, twisting, lifting? Is the area sensitive to movement (clothing rubbing)? Does it itch (not all shingles rashes itch--mine never did).
My palipitations from the Gab only occurred a few times over two days, I haven't had any more, thanks for asking.
Rener candice1159
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Can you please tell me about the spinal operation you had to have?! I've ended up in ICU 5x with pnuemonia. Yet this last time was by far the worst. I ended up with bacterial menegitis. This started as I was tapering off gabapentin. I've just been so sick these last 5 years that I can't think anymore. Trying to. Get off this medicine. I think it's going to kill me! Take care! Sherri
kirk51905 Rener
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carolyn_an27411 kirk51905
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Sorry to hear that, no you can't just stop any medicine like that and doctors know that. They have to wean you off it and give you something replaced it. I'm trying to weaned off of it I use to take 3 tablets a day 300 milgram. I'm taken as needed down to one tablet every other day not every day just as needed. Hopefully I will eventually stop it. Thanks wish you the best.
kirk51905 carolyn_an27411
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Rener kirk51905
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That's where I'm at. My Doctor is prescribing a low dose of Klonopin and doesn't believe Me when I say the gabapentin is killing Me. I was working and functioning when I first began seeing him 2 1/2 years ago. He took me off my current pain med changed it to Opana and upper the mg of gabapentin. I immediately stopped functioning and screaming about pain. So he upped gabapentin again. If I woke up all I did was take medication then cried about pain and spelled when I could. Then I was up and down all the time. Couldn't walk or think. No memory. All his time I've been doing this. All kinds of infections. Hospital stays. Near death with pnuemonia the last is bacterial menegitis when a pain pump was placed in at his advice to control pain. My adrenal glands don't function but at 2 % and have been replaced by steroids. I can no longer balance electrolytes. So many hospital stays from low sodium or high potatoes and he just rings his hands at my edema. I done
With Him. But can't think enough how to help myself. Sherri
Rener
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Sorry this medication is so dangerous and I don't make sense. Along with the mental and physical I'm really in a bad place. Gabapentin was suppose to be a safe med. now I find out about the addictive side of it. I would walk to make sure I had it. I would NOT walk for an opiate. It is a horrible med to run out of and never just stop taking it. You will end up in ER and if like Me out of control making no sense in a I cU. I also had to give My 20 year old Daughter medical say for Me. In just 2 years She makes all medical and controls Our finances as I'm no longer capable. If You want to start, stay or go up on this med make sure You have somebody ready to quickly step in to take care of you!! COMPLETELY!!!!! I don't know how long it will take but I'm getting off this med so I can think again and regain some pelvic and low back pain! It needs to be controlled and the pain from My lower abdomen to pelvic pain is like someone is torturing Me! Yet My Doctor thinks I just want more pain meds. I don't, I want to function! Does anyone else have problems with Their Doctor thinking Gabapentin is a wonder drug and that's all you should need. I want him to take it!! Sherri
babs99203 Rener
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I'm still successfully slowly tapering off my gab, I drop 100 mg per month. I'm so sorry you and Kirk are in such a spiral. Some of us have wondered if there's a rebound effect with Gab, as in the pain can worsen before it gets better. I'm on it for PHN, Post Herpetic Neuralgia, meaning I had shingles and now the nerves in my back/chest area (near the bra-band) are damaged. As I drop, the first two weeks, I'm OK, the third I have more memory issues, depression and fatigue along with odd, brief symptoms and often one day of increased pain. Then bam, I feel better, my mind is clearer and I've got a good stretch until I drop again. However, I've been doing this for months, and so far, each month has fewer negative side effects. I'm at 1600 mgs now, and plan to continue on this. I appreciate someone's suggestion for Ativan, I'll pass.
babs99203 Rener
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Sherri, there's a different thread in the PHN forum that may help. It's about dealing with PHN and depression, but there are some very good suggestions and support for dealing with chronic pain. Read some of the comments and see if they can help. Do they know why you are having the pelvic/abdominal pain? I wonder if you need to see some other doctors, as there are so many things that can cause it. And why were you put on Gab, did they think it was nerve pain?
kirk51905 Rener
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babs99203 kirk51905
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I would advise caution in changing medications or reducing medication without working with your doctor and pharmacist. We all have suggestions and opinions on what worked for us, but everyone is different. Personally I couldn't possibly go down that quickly and I would not try and replace one drug for another.
kirk51905 babs99203
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Rener kirk51905
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My problem is my Doctor won't prescribe Ativan. I have a script for .50 Klonopin twice a day but that's all He will do. He doesn't believe in benzos and will only do Klonopin because of the severity of pain and need to relax the muscles. Ativan works great for that too. My pain completely vanishes. I'm just now recovering from bacterial menegitis. I have chronic infections that are killing Me caused as a side effect of gabapentin. It's why I desperately need off gabapentin. I can't take another upper respiratory infection where I stop breathing! It's been too close of calls this year and the menegitis was 3 weeks mostly in ICU. Thanks! Sherri
Rener
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Also I've heard from a lot of sources that Ativan was the best way to withdraw off gabapentin. I'm having trouble even keeping my electrolytes balanced so quickly as possible is the way I need to go! It's like my body just went allergic to the med! Thank you
kirk51905 Rener
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