Gabapentin Withdrawal Horror
Posted , 180 users are following.
I want to start by giving an apology for my doubts towards patients who posted about problems with gabapentin withdrawal. How hard could it be? It has a short half life. It is not an opioid.
My plan was to write about my extremely painful and unexpected withdrawal experience after I felt better, but it has been FIFTEEN months.
I was on 1800-3600 mg /day for 20 years. My physician put me on a six day weaning schedule. The day I took my last dose my pain skyrocketed, but the pain has changed from low back to toes pain, to pain mostly to my anterior legs below my knees. Unfortunately, it is a very slow process. The internal nerve shaking that accompanies the pain is beyond annoying.
I often read patients on forums stating they have no problem with gabapentin. I did not think my problems were that terrible before I went off the drug. They all come with cautions and potential problems. I wish I had known of how difficult this drug was to discontinue before I had ever taken the first pill. I wish someone had warned me.
Good luck to everyone trying to discontinue gabapentin. I hope your experience is easier than mine.
18 likes, 1046 replies
nathan27219 G.Allyn
Posted
I am just past 8 weeks now after quitting Gab cold turkey, unaware of the horrible symptoms that I have experienced and worse yet what some of you on here have experienced. Worst of all, I quit one day before knee surgery. Not only did I go through a DVT, PE and double Pneumonia, and a 5 day Hospital stay, I was also suffering withdraws from Gab and didnt even realize it.
It was only after about 2 weeks of being home and having horrible dizzy spells and sick to my stomach constantly, and body pain did I realize there was something besides the bloodclots and surgery causing it. My doctor has had me on an opiod, and I still take klonopin for nerves and not sleeping, so I think that has covered over the withdraw symptoms. Today, if I don't take the pain killer, I will still get alot of dizziness and joint pain, but the stomach sickness is gone. I must shortly return to work, and I know the doc won't keep me on the opiods. Not really wanting to stay on them anyway. But I'm afraid once I get off them, the withdraw symptoms will return. I picked up my last perscription of gab and its in the medicine drawer I guess as a just in case I cant deal with going back to work and having the withdraws. But honestly, I don't really want to take it again. Especially after going through what I've went through. I had withdraw from Zoloft for a couple or three weeks, but this is unbelievable. Hang in there everybody.
marie89364 nathan27219
Posted
Hi Nathan. I'm completely off Gabapentin now 40+ days. Even though I was weaned off slowly I had horrible withdrawal. So I know what your going thru and I just wanted to wish you well. Take care of yourself.
Marie
michele51746 nathan27219
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Rener nathan27219
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leenz Rener
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I had them really bad recently too but I found that drinking salt in water helped me. The pain would calm down straight away. Everyone is different though, I don’t know, try it? Gabapentin depleted sodium so I found it helped me. All the best.
michele51746 Rener
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richard97735 michele51746
Posted
That was the hardest drug I’ve ever come off of.
I know benzos deal with the same receptors. So that’s why I’m weening off of gab.
I’m down to 100 mg a day.
I’ve been very tired
Can’t do much but work and watch my kids.
Gaba receptors are nothing to play with.
W d from Xanax turned me inside out.
The gaba I have taken very slow.
My advice for everyone is. Don’t take anything that works on gaba receptors.
If you are on benzos. Seek help.
I had to go out on disability for 5 months cuz I was a wreck.
Therapy helped-rehab helped- finding friends to talk to...
I had to learn how to live again.
When I got back from rehab. I felt raw exposed.
But over a year now. I am mentally strong.
The drs put me gaba for two reasons.
Neuropathy and so I didn’t have seizures from Xanax w/d.
Now that I am stronger. I ready to live on my own without a crutch.
One thing I did notice was how neuropathy for me had a mental connection.
The more anxiety I had the worse the neuropathy was.
Now I rarely have it.
Please my friends fight for life without these horrible pills.
There are other alternatives.
Don’t be afraid to get help to get off of pills.
It’s scary but it was worth it.
Now I’m down to just one pill if gaba in the morning. When I take I’m starting to feel like I don’t even need the one.
On top of that I’ve reduced my Wellbutrin to 150mg a day. That’s the next one to go.
Please be cautious with the opioids.
I was on those for 20 yrs.
it was hell to get off of them.
If anyone needs advice or help I’m here.
michele51746 richard97735
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This reply is waiting to be moderated
marie89364 Rener
Posted
Hang in there Lori. I'm off Gabapentin 6 wks now. Someone on this line told me to juice watermelon. I didn't juice it but ate it all the time. I think it pulls the water out of the tissues. Will pray your pain goes away real soon.
Marie
aaron03723 G.Allyn
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Rener aaron03723
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shannon22485 G.Allyn
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beth47873 shannon22485
Posted
Your RX receipt probably states “Don’t suddenly stop taking Gabapentin.”
You should call and insist on speaking to the pharmacist and tell him what you’re going through, then he should call your doctor.
Your mother needs to advocate for you too.
babs99203 shannon22485
Posted
If you look up the law, you can find further information. Unfortunately, these changes have created a serious problem for you, but both your pharmacist and doctor should be able to find a way to get you a short-term prescription to get you to the Thursday appointment. These is what happens when people pass laws without understanding the ramifications. The doctor's office and/or pharmacy in a perfect world should have notified you in advance of this. Good luck!
Ushimimi G.Allyn
Posted
I quit Gabapentin cold-turkey on some very bad advice from my doctor back in February. It's now November. My dose was very low and I only took it for a few weeks - but I was on Cymbalta for a few months prior, so take this with a grain of salt, please. Remember that all your neurotransmitter chemistry is related, so even if you weren't on Cymbalta, you can take hope from this post.
I also deal with severe anxiety issues, but I had never had symptoms like this before.
The first few days off were awful, but nothing could prepare me for what I now know is called "antidepressant discontinuation syndrome".
I've had severe cognitive impairment - memory problems, processing problems, "brain zaps" so bad I couldn't walk. They would come and go every few hours, sometimes leaving me functional and sometimes impairing me so badly I couldn't form sentences. I wondered dimly if I might have had a stroke, or had MS or Lupus, perhaps. I had so many tests done I can barely remember them all (but they all came back clean!).
The symptoms were worse when I was near sleep - mornings and evenings. Many nights I legitimately couldn't tell dreams from reality. My childhood sleep paralysis came back, and I woke screaming four or five times a night some nights.
This week, as if by magic, something changed: I woke up and was able to put sentences together in my head again. It just /worked/. The zaps and headaches are still around but my periods of lucidity are longer between them now, and truth be told I've been cognizant and clear-headed (with a few stumbles) for about three days straight now. That hasn't happened to me since before I started this rotten drug.
I wanted to come back here and give you some hope - you who is there right now reading this forum as you endure this unbelievable nightmare, your thoughts scattered and broken and your brain malfunctioning:
You will get better.
This is not permanent. This is not forever.
Your symptoms will come and go - and many times they will likely be worse than you remember them ever being - but they will get a little better each time. Each flareup or backslide leaves you just a little bit more healed. There are no victory stories on the internet about recovering from this medicine-induced misery because nobody wants to relive these symptoms once they are gone, but think about it: if nobody got better, there's be stories about that!
Hang in there. You will recover. It may take a year. It may take longer.
But...you are healing. Be patient. There is an end to this madness. You will have your mind back.
babs99203 Ushimimi
Posted
I am so sorry but grateful you came here to share your story. I just replied to someone dealing with anxiety and withdrawal. Oh right. "Discontinuation syndrome". It sounds you've done some of sane research I have. I'm still on 700 on 700 mgs, down from 2700 mg. I've found if I take 8 weeks to drop by 100 mg i have an easier time. but there are still bad stretches. Thanks again.