Gabapentin Withdrawal Horror

Posted , 180 users are following.

I want to start by giving an apology for my doubts towards patients who posted about problems with gabapentin withdrawal.  How hard could it be?  It has a short half life.  It is not an opioid.

My plan was to write about my extremely painful and unexpected withdrawal experience after I felt better, but it has been FIFTEEN months.

I was on 1800-3600 mg /day for 20 years.  My physician put me on a six day weaning schedule.  The day I took my last dose my pain skyrocketed, but the pain has changed from low back to toes pain, to pain mostly to my anterior legs below my knees.  Unfortunately, it is a very slow process.  The internal nerve shaking that accompanies the pain is beyond annoying.

I often read patients on forums stating they have no problem with gabapentin.  I did not think my problems were that terrible before I went off the drug.  They all come with cautions and potential problems.  I wish I had known of how difficult this drug was to discontinue before I had ever taken the first pill.  I wish someone had warned me.

Good luck to everyone trying to discontinue gabapentin.  I hope your experience is easier than mine.

18 likes, 1046 replies

1046 Replies

Prev Next
  • Posted

    I am just past 8 weeks now after quitting Gab cold turkey, unaware of the horrible symptoms that I have experienced and worse yet what some of you on here have experienced.  Worst of all, I quit one day before knee surgery.  Not only did I go through a DVT, PE and double Pneumonia, and a 5 day Hospital stay, I was also suffering withdraws from Gab and didnt even realize it.

    It was only after about 2 weeks of being home and having horrible dizzy spells and sick to my stomach constantly, and body pain did I realize there was something besides the bloodclots and surgery causing it.  My doctor has had me on an opiod, and I still take klonopin for nerves and not sleeping, so I think that has covered over the withdraw symptoms.  Today, if I don't take the pain killer, I will still get alot of dizziness and joint pain, but the stomach sickness is gone.  I must shortly return to work, and I know the doc won't keep me on the opiods.  Not really wanting to stay on them anyway.  But I'm afraid once I get off them, the withdraw symptoms will return.  I picked up my last perscription of gab and its in the medicine drawer I guess as a just in case I cant deal with going back to work and having the withdraws.  But honestly, I don't really want to take it again.  Especially after going through what I've went through.  I had withdraw from Zoloft for a couple or three weeks, but this is unbelievable.  Hang in there everybody.

    • Posted

      Hi Nathan. I'm completely off Gabapentin now 40+ days. Even though I was weaned off slowly I had horrible withdrawal. So I know what your going thru and I just wanted to wish you well. Take care of yourself.

      Marie

    • Posted

      Nathan, , dont pick up that gaba again!! It WONT stop the wd symptoms at all, but will only start all over again!!! Yes, the opiods DO help the gaba wd symptoms. They helped me a great deal. Actually stopped the symptoms 50% of the time which gave me a chance to exhale/relax from the harsh wd of gaba. I understand they dont want you to continue on those, but...coming off opiods is a walk in the park compared to gaba wd. Opiods takes a week and its over. Not easy, but compare that to gaba! I take opiods bc of permanent nerve damage. Crippling pain. They def helped the gaba wd. I also take xanax, just 2x day now. The gaba caused high anxiety and panic attacks. What a horror! I dont have any anxiety or pain attacks anymore since stopping gaba. Now, with the Kolonopin you must must be very careful again. Kolonspin is the same type of med as xanax. If you stop kolonopin cold turkey like gaba, you WILL have the same exact wd symptoms as the gaba!! They both compromise the gaba receptors, same receptors. Go very sloooowly if you do decide you no longer need kolonopin. Im way down on that also now. I hate taking it, no longer need it, but i dont want the wd again! Heck no! I only have 1 more to stop, but im waiting a little longer. Try hard not to worry bc worrying dosent change a thing. I know thats all thats on your mind, Just remember you WILL get through this. Its not easy. It wont be quick. But you know your body IS on the way to GREAT health again. God bless.
    • Posted

      Y’all I need HELP!  I’m in excruciating pain and I’m tryin My hardest to stop the gabapentin. I’m down to 50 mg in am and 50 mg in pm. Is there anything that will help the abdominal and pelvic pain.  My GP doesn’t believe Me when I say gabapentin is what’s wrong with Me and I’m screaming in agony. Thanks! Remer
    • Posted

      Hi Rener,

      I had them really bad recently too but I found that drinking salt in water helped me. The pain would calm down straight away. Everyone is different though, I don’t know, try it? Gabapentin depleted sodium so I found it helped me. All the best. 

    • Posted

      Rener Im sorry you are hurting so terribly too. Sigh. My pelvic pain was aweful too. I kept telling the doctors it felt like i was stabbed. Nobody believed me about any of my symptoms. They probably thought i was a hypochonriac becsuse I had so many different symptoms! I remember that pelvic pain all to well. It DOES stop. As soon as I took that last dose it stopped!! Hang in there. May I ask what have you tried to soothe it??
    • Posted

      I was on Xanax for 25 years. 

      That was the hardest drug I’ve ever come off of. 

      I know benzos deal with the same receptors. So that’s why I’m weening off of gab. 

      I’m down to 100 mg a day. 

      I’ve been very tired 

      Can’t do much but work and watch my kids. 

      Gaba receptors are nothing to play with. 

      W d from Xanax turned me inside out. 

      The gaba I have taken very slow. 

      My advice for everyone is. Don’t take anything that works on gaba receptors. 

      If you are on benzos. Seek help. 

      I had to go out on disability for 5 months cuz I was a wreck. 

      Therapy helped-rehab helped- finding friends to talk to... 

      I had to learn how to live again. 

      When I got back from rehab. I felt raw exposed. 

      But over a year now. I am mentally strong. 

      The drs put me gaba for two reasons. 

      Neuropathy and so I didn’t have seizures from Xanax w/d. 

      Now that I am stronger. I ready to live on my own without a crutch. 

      One thing I did notice was how neuropathy for me had a mental connection. 

      The more anxiety I had the worse the neuropathy was. 

      Now I rarely have it. 

      Please my friends fight for life without these horrible pills. 

      There are other alternatives. 

      Don’t be afraid to get help to get off of pills. 

      It’s scary but it was worth it. 

      Now I’m down to just one pill if gaba in the morning. When I take I’m starting to feel like I don’t even need the one. 

      On top of that I’ve reduced my Wellbutrin to 150mg a day. That’s the next one to go. 

      Please be cautious with the opioids. 

      I was on those for 20 yrs. 

      it was hell to get off of them. 

      If anyone needs advice or help I’m here. 

    • Posted

      Hang in there Lori. I'm off Gabapentin 6 wks now. Someone on this line told me to juice watermelon. I didn't juice it but ate it all the time. I think it pulls the water out of the tissues. Will pray your pain goes away real soon.

      Marie

  • Posted

    For me the side effects and Withdrawel from just 300mg  3x per day for 2 weeks was so extreme, that I have been put on 10 miligrams of Valium daily and I still feel like s**t.  Now I have the Valium monkey on my back, but at least Benzo tapering is taken serious,  so because of 2 weeks of Gaba,  I have a good 5 months of tappering valium and discomfort.  Thanks Doc!
    • Posted

      I think Your lucky to have a Doctor willing to give You Valium !  Doctors are choosing to bury Their heads in the sand over gabapentin and these nerve agents!  My Doctor said there are no withdrawals when Your down to 600 mg a day!  Well I know He is wrong but He still says gabapentin doesn’t do what it did to Me. Funny how my last dose was 10 days ago and after 2 my pelvic and abdominal pain just dropped about 75%!  I still get these flare ups but I can at least walk more than to My car. Oh!  I can breath too!  That’s nice!  I had every single side effect listed but 1 I think and I’m sure it was just a matter of time until I either died or developed it too!  It is killing People and Their blaming other medications or symptoms that are really bad side effects!  I went from 4 meds daily to 22!  Now I take 4 again. Thanks to a Neuroligist at a Hospital who said I had no sense if I was taking 3600 mg a day. Well it was a bad seizure. I had never had seizures until gabapentin!!! They started as what was called night time seizures as it seemed to knock me out cold and I would wake up like what happened and I felt some how better!  Good luck with withdrawals. It’s possible but not easy at all. I’ve been through opiate and benzo withdrawals and the gabapentin is by far the worst!  Rener
  • Posted

    I am having some serious issues. Ive been on 1800mg a day gabapentin for the last 15 years. A new law has changed in TN to make it a controlled substance. I went to pick up my refill this past thursday only to be told that all my remaining refills have been cancelled and i would have to see my PCP for new prescription. My body is going HAYWIRE. The 1st available appointment the office has is this Thursday my anxiety is through the roof my body jerks my skin and hair are on fire itching like crazy crazy cold sweats cant sleep and to top it off my mother informed me I needed rehab for this medicine ive been taking years for my RA amd neuropathy.
    • Posted

      To make someone suddenly stop taking Gabapentin even for a few days is dangerous!

      Your RX receipt probably states “Don’t suddenly stop taking Gabapentin.”  

      You should call and insist on speaking to the pharmacist and tell him what you’re going through, then he should call your doctor.  

      Your mother needs to advocate for you too. 

    • Posted

      If you look up the law, you can find further information. Unfortunately, these changes have created a serious problem for you, but both your pharmacist and doctor should be able to find a way to get you a short-term prescription to get you to the Thursday appointment. These is what happens when people pass laws without understanding the ramifications. The doctor's office and/or pharmacy in a perfect world should have notified you in advance of this. Good luck!

  • Posted

    I quit Gabapentin cold-turkey on some very bad advice from my doctor back in February. It's now November. My dose was very low and I only took it for a few weeks - but I was on Cymbalta for a few months prior, so take this with a grain of salt, please. Remember that all your neurotransmitter chemistry is related, so even if you weren't on Cymbalta, you can take hope from this post.

    I also deal with severe anxiety issues, but I had never had symptoms like this before.

    The first few days off were awful, but nothing could prepare me for what I now know is called "antidepressant discontinuation syndrome".

    I've had severe cognitive impairment - memory problems, processing problems, "brain zaps" so bad I couldn't walk. They would come and go every few hours, sometimes leaving me functional and sometimes impairing me so badly I couldn't form sentences. I wondered dimly if I might have had a stroke, or had MS or Lupus, perhaps. I had so many tests done I can barely remember them all (but they all came back clean!).

    The symptoms were worse when I was near sleep - mornings and evenings. Many nights I legitimately couldn't tell dreams from reality. My childhood sleep paralysis came back, and I woke screaming four or five times a night some nights.

    This week, as if by magic, something changed: I woke up and was able to put sentences together in my head again. It just /worked/. The zaps and headaches are still around but my periods of lucidity are longer between them now, and truth be told I've been cognizant and clear-headed (with a few stumbles) for about three days straight now. That hasn't happened to me since before I started this rotten drug.

    I wanted to come back here and give you some hope - you who is there right now reading this forum as you endure this unbelievable nightmare, your thoughts scattered and broken and your brain malfunctioning:

    You will get better.

    This is not permanent. This is not forever.

    Your symptoms will come and go - and many times they will likely be worse than you remember them ever being - but they will get a little better each time. Each flareup or backslide leaves you just a little bit more healed. There are no victory stories on the internet about recovering from this medicine-induced misery because nobody wants to relive these symptoms once they are gone, but think about it: if nobody got better, there's be stories about that!

    Hang in there. You will recover. It may take a year. It may take longer.

    But...you are healing. Be patient. There is an end to this madness. You will have your mind back.

    • Posted

      I am so sorry but grateful you came here to share your story. I just replied to someone dealing with anxiety and withdrawal. Oh right. "Discontinuation syndrome". It sounds you've done some of sane research I have. I'm still on 700 on 700 mgs, down from 2700 mg. I've found if I take 8 weeks to drop by 100 mg i have an easier time. but there are still bad stretches. Thanks again.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.