Gabapentin Withdrawal Horror

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I want to start by giving an apology for my doubts towards patients who posted about problems with gabapentin withdrawal.  How hard could it be?  It has a short half life.  It is not an opioid.

My plan was to write about my extremely painful and unexpected withdrawal experience after I felt better, but it has been FIFTEEN months.

I was on 1800-3600 mg /day for 20 years.  My physician put me on a six day weaning schedule.  The day I took my last dose my pain skyrocketed, but the pain has changed from low back to toes pain, to pain mostly to my anterior legs below my knees.  Unfortunately, it is a very slow process.  The internal nerve shaking that accompanies the pain is beyond annoying.

I often read patients on forums stating they have no problem with gabapentin.  I did not think my problems were that terrible before I went off the drug.  They all come with cautions and potential problems.  I wish I had known of how difficult this drug was to discontinue before I had ever taken the first pill.  I wish someone had warned me.

Good luck to everyone trying to discontinue gabapentin.  I hope your experience is easier than mine.

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  • Posted

    I've been taking Gabbapintin 1800 mg and Carbamezapine 600 mg for over six years. Nine months ago deep in my periphial pain I decided I just couldn't take one more jump up.in mg to fix it so I've been cutting back. Stressful cuts by half every 2 -3 weeks this month Down to 400 mg...down to 200 mg. Now ??! Almost done! In pain, p****d,sad but relieved to have the monkey off my back. Looking to increase my PH, diet, juiceing, excercisises yoga most importantly God and self LOVE. I've lost 60 pounds. This is soooo good I can see the light at the end of the tunnel!

  • Posted

    I have this intense, insesive itching to that. I was wondering if it is a withdrawal symptoms from not taking gabapentin? I've only been off for about a week and the itching just started today. I also have numbness in my ankle. I have had a headache for 3 days now and I'm not sleeping. I suffer from insomnia anyway and now its worse. Is this normal withdrawal symptoms from gabas?

  • Posted

    Yes I think they’re all withdrawal symptoms. It does get better in time. 

    I hear magnesium oil applied on the skin helps lessen the itching, and maybe Epsom salt baths too?

    I am off gabapentin 1 month 10 days, some symptoms still, insomnia and vivid dreams when I do sleep, balance issues, no appetite, but - better! Magnesium supplement has helped me, it calms. Exercise helps too. We will get through this.. 

    • Posted

      HEy how long did the balance issues last? Hope all is better 

      Rc

  • Posted

    I just foam the blog or whatever it's called today I have been struggling with chronic pain for 8 to 10 years and I have been on gabapentin for 5 to 6 and Lyrica I currently take 3600 mg of Gabapentin a day and 300 mg of Lyrica a day yesterday I was having trouble with pain and I called the pastor of a church and asked him to have the intercessory prayer group pray for me because I couldn't get any answers or pray for the doctors actually that the answers would come to the doctors well I haven't taken any Gabapentin for 16 hours now and my pain isn't that bad but I am getting some of the withdrawal symptoms I feel like the gabapentin the more of it i took my body would experience pain to feed my brain the drug it wanted but I'm going to have to figure out a way to get off gabapentin and Lyrica but it was pretty interesting that a lot of people have said something about praying or higher power and since I ask for help yesterday the answers are coming to me today so God is the way

  • Posted

    I started on this a few months back. I noticed several side effects such as depression increase, anxiety increase, blurred vision, sweats. I didn't think much about it because I struggle in these areas. When I realized the only thing that had changed was the medication I came off it; having no idea the withdrawal would be way worse. My anger, depression, and anxiety went through the roof. Uncontrollable mood swings. So, I started reading on this I feel as though I have a rough spot to get through but the worse is over I hope. Good luck and this was very helpful.

  • Posted

    I am on my 4th night of zero Gabapentin (and Celebrex), after trying to wean off from 1800 mg/day for nerve pain from a car wreck.  Four days ago, I dosed down to 900 mg, dropping 300 mg every week.  

    And then, I said “screw it, I quit.”  

    It’s robbing my life.  Any “good” it did is completely overshadowed by the damage.  

    I am now pounding the water, taking lots of supplements and vitamins to help flush and heal my body and brain.  I also added CBD (not THC) oil to my regimen a few days ago.  I think it helps with pain, inflammation and sleep.  I only eat what want, when I want, and don’t force myself to eat.  But I drink lots of water.  

    I’m resting all I want.  I have all the withdraws everyone has mentioned.  I thought I was crazy.  

    But I’m on day four and not going back.  I have an understanding husband who is being so patient.

    I’m taking my life back, dammit.  

    I go back to the gym for very light, mild workouts in a few days.  It should stimulate my appetite, and help me rest.  

    Thank you all for being so forthright in your experience.  

    I’ll check back in in a week or so and let you know how it’s progressing.  

    Dawn

  • Posted

    I wish I had read these nightmare stories before I started taking it. I'm 68 years old and suffering from back issues due to burning nerve pain. Only been taking it for 14 days but tapering off already as it makes me feel so ill..... sick, dizzy, trembling inside, twitching, shivers, and burning skin all over my body especially in the lower legs which, I may add, I'd never experienced before, also terrible night sweats and extreme burning in the areas of my original pain. Coming off it is hard but I'm determined to run the course, I've only been cutting down over the last 3 days.Initially I was on 100mg 3 times a day. Day 1 I took a quarter of the powder out, day 2 half the powder and today, three quarters....yes I do have the shakes and yes I do have a headache but they seem to subside after about an hour. I am trying to take just a tiny amount tomorrow and drink plenty of water, hoping to be off it totally by the weekend? I know I'm gonna struggle for a bit but it's gonna be worth it in the end.

    Funny how I told my doctor on Monday I wanted to come off it and she said 'just stop and I'll prescribe something 'cleaner'' That cleaner drug was Lyrica and there's no way I'm taking that either, it comes with the same risks. I'll let you know how I get on, so good to read your stories, so comforting to know you're not alone in this nightmare Going to a chiropractor tomorrow, gonna be worth every penny if I can stay off this poison xx

    • Posted

      Dear Ann,

      I’m sorry you are suffering from withdrawal from only 100 mg.

      I used to wish I had been given the 100 mg capsules instead of 300 mg of Gabapentin, but now I realize 100 mg is too much for many people. 

      Ten years ago I failed miserably after the 2nd consecutive dose that gave me a permanent movement disorder. My brain MRI shows a 6 mm x 5 mm lesion (recently described as a cyst) on my hypothalamus gland that doesn’t seem to mean anything to doctors who have seen me.  

      Doctors still find it hard to believe two pills could cause my condition.

      It was too much, too soon, and I don’t understand why doctors aren’t getting the message when their patients complain.  

      I wish you a safe recovery.  

       

  • Posted

    Hi, don't seem to fit any of the comments on here, but having my own devils to fight in trying to come off Gabapentin. I was prescribed it for pain relief, only took it for 5 or so weeks, and as it didn't work my Gp worked out a titration but only for 3 weeks. I knew nothing of this horror.

    So, just about at the end of this time my pain came back but worse, much worse. I initially thought I had fibromyalgia as EVERYTHING hurt.

    Went back to docs, and now on a much better titration. But still in pain, waking me up in the night umpteen times. Is there any hope out there? Anyone with the same problem?

    Thanks

    • Posted

      I think that many who are on it shorter time, still have the symptoms, but they fade in a ratio to time taken, I have read a lot of posts on this. That said the original complaint very could be masked by the gaba. So when you remove it. You feel it. If the original problem still exists you may have to try other meds or natural methods, this is common, many people have to try many meds, like me. I hope that helps, I sympathize with you. I am now down to 700mg gaba. I am off the Larazapam! The larz was very hard to get off.
    • Posted

      I want to add for sleep I take melatoin 5mg and Nero sleep drink. It has helped me. In addition I listen to music for airports by Brian Eno that helps also.
    • Posted

      hi jim.....i like the airport music.  if you like any particular sound , go to soundbible.com     . they have any sound you can image and its all free.  any way, i wanted to say i used to take klonopin which i think is the same family as lorazapam, for 15 yrs. 3 x a day 10mg i think. i just cut it down a pill every few days then just quit and was lucky and no problems at all. now, comes the gaba.  im on 3200 a day and decided tonite to quit.  im glad and not glad ive read all these horror stories. geesh, now im scared to death. lol  well, i wish you well.  ill think 'Jim" now every time i hear an airplane. tcc

  • Posted

     Well, I am now eight days into going cold turkey off of 900 mg daily, down originally from 2700 mg daily for a year.    I told you that I would check back in and let you know how I had progressed. 

    I’ve been on it only a year.  I was barely able to walk before starting it.  It helped me get around a lot, but it also came at a huge price to my nervous system.

    I was losing my “feeling” for life, and all the things that made life fun and satisfying.

     Over a month ago, I started an intensive self therapy of supplementation to help my body build up its brain chemicals, and to help my system flush itself out as I began weaning myself off of this drug.

    Here’s the short list of what I dealt with over the last few weeks...and it significantly intensified when I went cold turkey.

    Anxiety.

    Depression.

    Constant Crying. 

    Severe Insomnia.

    Hypersensitive skin.

    Fatigue.

    All night Sweating.

    Itching, tingling burning skin.

    Feet on fire.

    Dizziness.

    Nausea.

    Headaches.

    Irritability.

    Loss of appetite.

    Restlessness.

    Abdominal pain.

    Pain EVERYWHERE.

    Tremors.

    Significant Muscle and bone pain.

    Heart palpitations.

    Incredible brain fog.

    Inability to finish a thought Or even find the right words.

    I almost gave up and went back in it.

    But something shifted.

    And even though I know some people are still experiencing severe withdrawal symptoms over a year later, and I was just starting,  I was convinced, that if I kept taking my supplementation, drinking my water, resting, and taking really good care of myself, that I could get this out of my system and help re-build my brain’s and body’s ability to do its job without being on hyperdrive.  

    Somewhere after the first three or four days, something clicked in me. I stopped focusing on everything that I didn’t want to experience. I stopped focusing on the crazy growing list of symptoms, and how it felt like my body and brain was rebelling against me.

    Something just clicked, and I began to relax, and accept what was, that this was a process I CHOSE, and that every day I stayed off that drug was bringing  me closer to what it was that I wanted.

    Every time I flipped back-and-forth, and considered going back on the drug to start the weaning process all over again, I  every time I flipped back-and-forth, and considered going back on the drug to start the weaning process all over again, I asked myself a recurrent question:

    Would going back on the medicine and weaning myself off the final 900 mg 100 mg at a time get me closer or farther from my goal?

    I kept asking myself what it was what I wanted. I wanted to be off the drug.  And even though my body was seemingly rebelling against everything around it by being off of the gabapentin cold turkey, I just couldn’t see that going back on it just to start over 100 mg at a time was going to get me closer than where I was currently finding myself.

    So, I stopped thinking about what was so awful about where I was and what I was going through, and I really kept my focus on what I WANTED.

    What did I want? I wanted to feel great. I wanted my energy back. I wanted my sex drive back. I wanted my digestive process back. I wanted to lose the 20 pounds that I had gained since being on it for one year. I wanted to be able to feel my emotions without them being processed through a fog.

    I got my mind off of everything that was feeling “wrong” about going cold turkey, and kept my mind focused solely on what it was that I wanted.

    I was an absolute agony for the first three or four days, but after that mental shift of focus took place, things began to improve, very quickly. 

     Within the last three days, my appetite has returned. I’m no longer nauseous. My headaches have ceased. Most of my pain is gone. My mind is clear.  I’m able to speak passionately and clearly about a subject without going blank, or getting sidetracked midstream.  The night sweating and hot flashes intermittent with crazy cold chills has stopped.  I’m sleeping about 6-7 hours at a stretch at night.  I stopped crying.  

    Holy s**t, I started giggling again!

    Bottom line, I feel more like me than I have felt in a very long time.

    I’m not saying that any of you need to go cold turkey. The reason that I’m telling you this, is that I see how discouraged so many of you are. And I was in that very spot for the month preceding deciding to wean off of that drug, and the month of weaning before I went cold turkey eight days ago...and 4-5 days into severe withdrawals and detox.

    I’m now standing on the other side of something, only days after accepting that it could be several months to a year.  

    And I’m telling you, You can do this.  You can get on the other side of it.  

    The human body is an amazing machine of creation.  The human brain has phenomenal  how are to heal itself and its body that lives in .  The human spirit is unstoppable with the belief that something can be so.  

    And with your faith, NOTHING is impossible for you.

    Keep reminding yourself what it is that you WANT for yourself.   It’s bigger than wanting to be off of gabapentin. Let your mind and your imagination begin to paint a picture, like paint by numbers picture, of all the beautiful facets of life that you want for yourself.  

     As with anything else, your results may vary. But I can assure you, that it has been my experience through much of my life that what I focus on grows.

    When I began to shift my focus away from what the drug, the detoxification, and the potential of staying on it or coming off of it was doing to me, and instead shifted it toward what I really wanted for myself, things began to change very quickly for me, miraculously so. 

    I am still in process.  I will check in again.  

    I hope this helps someone.

    Stay strong.  

    God bless...Dawn

    • Posted

      you've done well.

      I went through your list of side effects and yes I've had perhaps 75% of them too.

      I took myself off them last November,and I now feel great these past few weeks. I had been prescribed it for excruciating back pain originally.

      I feel great too now. The irony of it is,the vet has got my Belgium shepherd on them for his chronic arthritis.Hes doing ok,but is taking the 200+capsules I have left over from my old prescription. He's doing well.Stay positive,like me,and never take them again either.WELL DONE

    • Posted

      AmazingDawn!!!

      Yes you are amazing, and awesome, and Thank You for your well-spoken words, bringing positivity into this conversation, and giving us hope! You are an inspiration...

      I'm the biggest proponent of staying positive and never would have imagined that tapering off Gabapentin would be the most difficult and spirit-crushing part of my 6-year journey surviving a life-changing accident resulting in too many surgeries. But having tapered from 3600->1000 mg in the past 7 months, though I feel like I'm looking at myself from outside my body wondering who I am, and though I don't see it yet, I know that light-at-the-end-of-the-tunnel is getting closer.

      The gloom I feel today is knowing that with a 10% taper/month I still have a year ahead of me. Speeding up the process scares me as the first month of my taper, not knowing better, I reduced 300 mg every 10 days throwing myself and my doctors for a loop, nobody knowing what was wrong with me.

      I so want to find a way to speed up the process and be my happy old self again so will continue to listen to my body and take it day-by-day. 

      Please continue to keep us posted!

    • Posted

      Great Testimony Dawn. Thanks for sharing. I am down to 700mg a day. I am heading off is my plan I have been on Gaba over  a year. But I would like to remind everyone that the original symptoms or conditions may still exist the reason you started this med to begin with.. If they do that is not a withdrawal symptom for that person. In my case because I did not do well on other meds I was prescribed Gaba for anxiety. And not the I am worried kind, but flat on my back non-functional kind. So when I go low lets say 300mg I feel Anxiety symptoms, the Gaba is masking my Anxiety, so for me thats not withdrawl, though if my Anxiety was gone it would be. So its kind of a tricky thing.
    • Posted

      You got this.  

      Funny, after I posted, I was nauseous and kind of weak the rest of the day.  I think I took my supplements with not enough food in my stomach.   I think I took my supplements with not enough food in my stomach.

      But I slept through the night, Again; and I feel really good, again today.

      And, I purchased a couple of small books that were  recommended to me, and I have only been using the techniques a few days, and my neck and back that were severely injured from a car wreck nearly 5 years ago has felt better in the last two days than I have felt in probably two years. 

      This has been quite a chapter in my life.  I see this part closing soon.

      Hang in there!  Keep weaning, keep believing, and keep loving yourself.  Your conclusion  is near too!  ❤️

    • Posted

      Oh, all the nerve pain from  car wreck came back, plus all of the detox! What a mess! But, I am so glad that I really beefed up my supplementation and started taking good care of myself before the weaing process, and then really started leaning into finding out what I could do structurally for my spine to feel better at the source rather than masking the symptoms. I found a couple of books that have really helped, and I feel better in the last couple of days through my spine and I have felt in the last few years. 

      Everyone’s journey is so singular, and yet here we are all finding ourselves in this same place with so many of the same issues.

      Everyone here inspired me to do what I did by writing.  

      I wanted to encourage you all.  

      ❤️

    • Posted

      This is incredibly well articulated, and inspiring.  This should serve as a baseline for all of us dealing with this.  Thank you for your brilliant conveyance.
    • Posted

      I lost the first part of my message. It’s the effects of the Gabapentin I think! But I wanted to remind people of what my father always told us.  “THIS LIFE WAS NOT MEANT TO BE EASY.

      I have learned so much from all of you explaining the effects caused by Gabapentin. I only found this site by accident about a week ago. I forget exactly how long ago (short term memory problem! But I thank God for finding it.

    • Posted

      I take 2400 mg a day (two 400 mg tabs, three times a day) I have started a reduction by reducing the middle dose by 400 mg for about a week now. I haven’t noticed a difference yet, the same bad feelings continue.
    • Posted

      you mean your total withdraw time was about 8 days?  i could handle that but ive been reading people taking mths and years.  im on 3200 a day and decdied today to go off it and was wandering how. wow, scary.  good luck to you, dawn tcc
    • Posted

      Thank you for sharing your journey Dawn. I. have crps and gaba presented as the best option for my nerve pain per my doctor. 

      Shorthly after I started 1800mg I started to have burning sensation at my kidneys. Doctor quickly dismissed me and recommend to see kidney specialist. 

      How many other doctors I had to see until someone finally thought about crps, is a long and most likely familiar story for many of you. I was tired of being poked and I was tired of explaining my situation over and over. So I did not go to kidney speacialist.  

      Shortly after 2 weeks after using gaba I started to have sunburn alike sensation all over. it came to a point that I was not being able to wear any pants. I start wearin cotton long dresses. Like my grandma used to wear LOL.

      My doc explaained it as over sensitization and he wanted to add savella to gaba. But even before I had my new medicine arrived I had most scariest hives all over my legs ,and back. 

      This time I was told  it was an allergic reaction to Gaba

      Thats how I quit cold turkey, I had to. 

      Burning, itching, speach problems, brain fog, and today I had an anxiety attack at work ! Because my knee pain and stifness is back. I was secrectly hopping my crps would be gone , but nope. It is right there. 

       I found myself sitting in my room still not knowing those feelings could be withdrawal symptoms , feeling confused and scared. 

      Savella sitting at my night stand waiting for its turn to be tested on my body.

      It is 3:30 am so apperently there is a hint of insomnia involved. 

      I at least know now that I am not alone. These are most likely withdrawal symptoms and I did not lose my mind (yet). 

      So, I had to go cold turkey from 1200mg. With no other medicine to balance the symptoms.  I hope they will go away sooner than later. 

      At least I am aware now, and as you said I will be easy on me. I will hang in there. I will Focus on the  positive side, which I am done poisoning myself with gaba.  

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