Gall Bladder removal and problems

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Hi All

read a few interesting comments on here and thought i would share my experiance with you and see if you have any thoughts that may point me in the right direction.

two years ago i started getting pain in the URQ of my abdomen, but as usual thought it was indegestion and so ignored for three and a half months taking pain killers and pepto-bismol etc. Didnt bother going to the doctors.

came home after work arriving in a 7pm, but by 7:30 was in a bit of pain. 9pm taken by my wife to QA portsmouth and spent the next few hours in the corridor on morphine - that was the good bit.

i had an ultrasound two days later, which basically detected nothing, then an MRI scan which also detected nothing the following day, but because by LFT's were elevated into the 500's (should be less than 75) and i was showing an infection they decided to operate on the friday.

the operation should have taken a couple of hours or so, but because they found gangrene, and i had adhesions all over the place it took nearly five hours. I also had a stent put in as the bile duct was leaking, and a drain in my stomach to remove the fluids.

I was sent home after 10 days with the drain still in, but to be removed as soon as my bag stopped filling up with fluid, i had the drain removed 4 weeks after the original operation, and the stent removed after another 4 weeks.

Seeing the consultant as an outpatient about a further two months, and not feeling too well, i desribed my syptoms and the pain i was getting, and the blood tests showed that I still had an infection. i then was rushed in (a week later) to have another larger stent inserted, and that was kept in for a further 3 months.

Two days after it was removed i was rushed back into hospital with a temperature of 39.7 deg c. four days later it had dropped to 35.7 deg c.

My lft's have only dropped to just under 450, and despite being prescribed Ursofalk to "help it on its way" i am in pretty much constant pain (about 3/10) have had a further scan and am awaiting a consultant appointment in January to discuss.

Any suggestions on what I should ask?

Many thanks in advance

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5 Replies

  • Posted

    I have often found asking a specialist what they would do in your situation . You get a more balanced honest answer not the format avoiding being sued answer. 

    But you have been through it and survived , a neighbour of mine lost her 24 year old sister to gangrene of the intestines which was missed ... It will take time to get an infection under control . Keep badgering them don't suffer quietly ..

    i thankfully have no experience of this level of suffering but I know you need to be a nuisance till your sorted ..

    sally 

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    • Posted

      Thanks Sally

      I am pretty good at being a nuisance, so will keep pestering.

      I know that at a conference in Southampton, a group (not sure if that is the collective noun for them - probably a gaggle) of doctors discussed my on-going symptoms for quite a while, but none of them could come up with a definitive solution, and so they decided on one course of tablets which really didnt work and so have been on Ursofalk for about 6 months on an ever increasing dose, but thanks again for the comment, very much appreciated.

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  • Posted

    Sorry James. Wow you are going through a lot. I will be thinking about you and hope you get better. Sorry you have wait until January. I hope others can help here. I know I got a lot of help and support. I can give you support, sorry I can't help. Lost my gall bladder in Nov.

    Good luck. Make sure you give us all updates on how you are doing.

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