Gallbladder? I feel like I am going crazy...

In August of last year I woke up at 4am with the worst stomach pain I could imagine and was non stop vomitting.  My husband rushed me to the ER and the CT scan showed that my appendix was "angry" as they stated.  I was admitted and they stood around for two days trying to figure out if it really needed to be removed as my symptoms that I presented in the ER didn't match the inflamation in the appendix.  They ended up deciding to remove it and I thought I was good to go.

In December I started have nausea and my stomach bloated out to look as if I was 4 months pregnant.  I went to my OB for testing assuming it was female related.  Two days later I had an ultrasound completed and the tech told me there was nothing to be concerned about from the OB side of the fence but strongly recommended that I have my gallbladder looked at.  Then repeated herself again very sternly.

I left not sure what to think but figured I would look into it.  Pain had now started in middle between my ribs and I was starting to have minor back pain behind the gallbladder.  Two weeks passed and I had massive pain on a Sunday and my husband rushed me to the ER.

ER completed blood work, ultrasound (they were unable to get any good pics of the gallbladder) and CT scan which showed that everything was fine.  They referred me to a GI Specialist.

Within four days I was sitting in the GI docs office explaining the waves of pain, itching, headaches and nausea.  He sent me for the HIDA scan...

A week later I had the HIDA scan with no reaction to the first part but the CCK caused a quarter size burning pain that felt like someone was pouring acid on my gallbladder and it was eating through my skin.

That day I returned home and became sick with the runs several times.  I thought all was well and prepared dinner for the family at 5pm - Within 5 minutes of finishing my meal I had massive pain in my chest that rose up like a volcano and immediate vomitting.  After I was done being sick I started to shake non stop for over an hour.  I tried reaching the oncall for my GI and received no call back.

Monday - Results came in on the HIDA - Ejectrion Fraction is at 52%

I then pushed back to the GI and wanted to know the next step and explained what had happened on Friday night.  Doc then scheduled me for an Endoscopy which I was supposed to have this past Tuesday.  I never made it...

Sunday night I started to feel worse and have a rough night trying to sleep.  I woke up at the usually time and headed off to work with moderate pain.  I made it thirty minutes into my drive and pain became severe.  I took the next exit and turned the car around and called into the office that I would be working from home that day.  I was then about 7 minutes out from my house and started to feel faint.  I panicked a bit and pushed on and made it to my driveway.  By now I had tears and was sick and felt like was still going to pass out.  I called the GI's office and reached the nurse.  She told me to call 911 or get someone to get me to the ER now.  I called my husband and he was there in 5 minutes. We went straight to the ER and they completed another ultrasound and gave me morphine (which didn't cut any of the pain)

Second Ultrasound - I told the tech that the previous tech was unable to get good pics.  She said she was up for the challenge.  She was working on it for about 5 minutes and told me to flip to my left side and then applied pressure.  I screamed and she looked me dead in my face and told me to hold on because she found it.  It was going to hurt but she had to get the picture.  Once done I convinced her to tell me what she saw.  She stated that the neck of the gallbladder was completly folded.  She further explianed to think of it like a straw that was bent.  Is anything going to come in or out?  I understood then...

Headed back to my room in the ER and the doc came in and said I was being admitted.  I thought that I was on the way to surgery and I was wrong.  After another couple hours the doc came in to tell me that my utlrasound was normal. Now they had contacted my GI doc and he was on his way.  He proceeded with the Endoscopy that afternoon and found a really small ulcer in my esophagus.  He felt that could have something to do with the pain but it didn't match up to all the symptoms and warned me that he couldn't force the surgeon to remove the gallbladder but requested a consult.

The arrogant surgeon - Finally Tuesday at 4pm the surgeon graced me with his presence. He informed me that he would not be removing my gallbladder since it was to high of a risk that I may never recover from surgery. Then proceeded to tell me that my car accident from 20 years and prevous shoulder surgery from that accident was causing nerve pain in my ribs and it was not my gallbladder.  I challenged him on why I was itching then? He asked if I had any rashes and looked at my back and stomach which is clear... He told me I must have had shingles a few months back and not realized it.  I was heartbroken that I was basically being told that I was nuts.

I have asked my GI to refer me to another general surgeon that he recomends and I am waiting for that call to come in and the GI has requested an MRI and I am waiting for scheduling to call on that.

Has anyone else had this much difficulty? The pain has now become worse on a constant basis along with pain now in the upper left side, right shoulder blade, pain between the ribs in the back.. .  Nausea - hot flashes - shakes - faint feeling - no appetite - bloated, diarrhea then constitpation - It feels like a never ending cycle...

I honestly feel like I am going crazy...  Then I can have one day that I am fine with mild pain only for the day and the next all hell breaks lose.

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