Gallbladder is gone so where is this pain from?

Think if this persists I will be making an appointment with the doctor with a view to seeing the surgeon who was there during the initial operation.

so sick and tired. was feeling better but had two awfully painful days. i dont take pain meds for this ,ill wait till i get the endo and colon-oscopy done. if they tell me everything looks fine then i dont care ill start taking pain meds. this pain is ridiculous.

Has anyone tried antidepressants for this kind of pain?

I have been precribed some,but haven't taken any yet.

Also wanted to say,I have had great relief with using the TENS machine daily,I use it for one hour and it helps tremendously.

Hi everyone

I had my GB removal 3 weeksago as well as a hernia repair. Day surgery and went back home. I got severe pain during the night and had to have another operation as they tought the clip had fallen off. Funny thing was that there was not really anything wrong and they don't know why I had that pain.The first thing I noticed when I woke up was that I still had that pain and have had ever since. I can't drive a car which means I can't go to work and have pain for most of the day. Funny thing is that I was better off with my gallstones as I hardly had any probem with it. The ony reason I did it was becausewe wanted a 2nd baby. Now I am in more agony than before and from your posts it looks like I have to live with it. I had a scan today and there is nothing wrong exceptthat my coon has moved where my gallbadder was. It feels food related though Doctorat hospital tod me that is not possible. Also is related to my bowles and it can also be on my left side.. can be first thing in the morning as well. Gets worse thoughout the day. They should tell you these things before you have the OP. There is a procedure by which the gallstones are destroyed though waves without removing the gallbadder but my consultant told me can't have that.

Does anyone of you have noticed any specific foods that make it worse or that are safe to eat? (except fatty and surgary foods)

Hi again

I found this link http://www.medfriendly.com/postcholecystectomysyndrome.html#howmany

which might expain it for some maybe. Post cholecystectomy - syndrome (PCS).

elifsara,

Thanks so much for that very interesting article.

I had my op back in June 2010, and I still get short, but full blown phantom gallstone attacks, and because it's phantom I just have to ride it through. They last about an hour, but it is as if I'd never had the op sometimes. Thankfully these are getting fewer and fewer now.

I also have a dull ache where the GB used to be, its bearable, but it does make me shift around a lot trying to get comfy, or grip my side. I could do without it. The thing I found helps the most, is having porridge in the morning with added Flaxseed - this puts a lot of fibre in the gut and absorbs bile, and having higher fibre products in my diet the rest of the day. And also drinking a glass a day of fresh (not concentrated) Apple juice. The Apple Juice is what bought about the biggest change. I have more pain when I don't have these every day, than when I do. It is commonly known about the Apple Juice being helpful, though they don't know why, and I like it, so it was a win win for me.

If you have bad pain, you can get checked to see if you are leaking Bile from the tied off/clipped off/cauterised tubes that used to connect the Gall Bladder. This can also cause a dull and persistent ache.

Hi all. New to this site after doing some research.

Brief bit of history on my condition, it may help some of you with similar issues!

Sept 2009- right upper quadrant pains, radiating through to the kidney. Pain worsened by fatty foods and spicy foods. Not worsened by alcohol.

In and out of hospital September 09 thru to march 2010. Blood tests revealed high liver count, ultrasound, MRI and ct scans showed no stones or pancreatic damage. Was diagnosed with alcohol induced pancreatitis despite not drinking for 6 months.

No pain for 6 months.

Back in hospital nov 2010 thru to May 2011. Was diagnosed with biliary dyskinesia in April 2011, only through my own protest- I refused to be discharged until I had a diagnosis.

I had my gall bladder removed July 2011- on removal this was black and shrivelled. It was sent for testing to ensure no cancerous cells- this came back clear, it was just highly damaged through misdiagnosis.

Pain free for 3 months then the pain creeped back. December 2011 through to feb/march 2012 in and out of hospital for pain relief, no further diagnosis. May 2012 diagnosed with "SPHINCTER OF ODDI" and was told I would be put on the list for Botox injected Into the ampulla muscle. Had this done endoscopically nov 2012. Relief of pain for 2 weeks. This was deemed successful and was put on the list of a biliary sphincterotomy. I had this jan 2013. Relief for 2 months. Was told to wait another month to see if it eased. It didn't. Put on the list again for a further sphincterotomy and possible sphincteroplasty. Had this done September 2013. 1 week later had a flare up which put me back in hospital and off work for 4/5 weeks. Now because surgery hasn't worked I have been put on two new medications 1- donperidone, 2- sucralfate. These seem to be working VERY well! Back at the hospital end of nov for review.

This is a condition for life. Psychologically I have gotten used to the idea of being on meds for ever.

Hope my story helps some people with unanswered questions. Remember persistence is key! Don't take no for an answer!!

Xxx

Hi Happyalien - Thanks for starting this post. The pain you describe is similar to what I've been experiencing for the past 3-4 years. It's gotten progressively more intense more often, but rarely moves up to my shoulder.My gastroenterologist believes it is nerve pain rather than a gallbladder issue and has recommended shots, novocaine then a steroid, to see if it will settle the nerve. He said he's seen success with this route for other patients so I'm keeping my fingers crossed.

t52006,

All the best with this.

I just wanted to say that I have decided not to take any meds that the doctor prescribed (lyrica and noritriptyline),I am doing accupuncture and using a TENS machine daily. I have found great relief from my pain.