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Gamma Globulin to Treat ME/CFS

Posted , 5 users are following.

jackie00198
jackie00198

Have any of you tried gamma globulin infusions or injections? Years ago, I spoke to someone who got infusions and said it essentially got her back to normal. Of course it doesn't help everyone. The biggest deterrent:  it's hugely expensive.

0 likes, 5 replies

5 Replies

  • pam_87693
    pam_87693 jackie00198

    Posted

    I would love to but I don't think the NHS would pay they are I believe mega expensive
  • bronwyn97278
    bronwyn97278 jackie00198

    Posted

    Sounds interesting;  I will do some research and see what the general concensus is.....there are times we will grab at anything, isn't there, just to be ourselves again.............I know when a condition is Terminal, that we learn to Accept the prognosis,,,,but when not, then we Keep looking/asking......will be interested to hear/learn more............Bron
  • nannettesea
    nannettesea jackie00198

    Posted

    Hello, again-

    i would be very interested in your treatment journey, with as much detail as you're willing to share.  PM would be fine, too, if the open forum isn't comfortable.  I've never heard of this type of treatment, and if it's hugely expensive it won't be an option for me.  I am unable to do significant work due to the CFS.

    Best,

    nan

    • jackie00198
      jackie00198 nannettesea

      Posted

      Sure. I'll share this. If I do it, it won't happen for a while, as I'm still trying an antiviral regimen. Gamma globulin definitely works for some people. It's recommended by several doctors in the U.S. So typical and disgusting that the cost is almost prohibitive.
    • pam_87693
      pam_87693 nannettesea

      Posted

      Yes I know it is used in the USA to dry to calm down the autonomic system. Interestingly my husband had an elderly aunt with a rare blood group she was ABnegative. She kept fainting and one day slid under the table at a Chinese restaurant. The ambulance arrived and my son who by then I knew wanted to become a doctor said well the meal has arrived don't let it get cold, while his then girlfriend turned a ghastly green. However the old lady was given a blood transfusion once enough of the blood had been found, was as good as new and lived another 20 years!
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