Gastritis diagnosed but PPI's not working

Thanks for the reply, I'm relieved that I'm not the only one.  I've had an abdominal ultrasound and was told all seemed to be ok, gallbladder, etc. However, I don't know if this would have looked at the pancreas as well? I've read lots of stuff online that's scaring me so I will check that with my GP.  Also has blood tests and breath test for h. Pylori and all came back ok. How long have you been suffering?

I was told I had mild gastritis about 3 years ago now and then a recent endoscopy just said gastritis so I suppose it's moved on a bit from being just mild. I blame a massive amount of stress that I have endured for a very long time. The PPIs made me feel ill so I stopped taking them. My pain is more intermittent but is always there at some time of day. I'm due an abdo scan next week. I've been told that an abdominal scan consists of kidneys, liver, gall bladder and pancreas. Sounds good that your bloods came back all normal. 

You sound as though you are doing what I would imagine most of us posting on here do and that's Google our symptoms and scare ourselves stupid! I do it all the time, just can't help it.

Why don't you book an appointment with your GP for as soon as possible, tell the Dr what you think it could be and let the GP put your mind at rest. I think this is the only way you will get true peace of mind. As far as your pain goes, you might find it eases a bit once you are more relaxed.

i wish you all the best.

xx

Hi Deb,

Looks very much like I'm in the same boat, too.

With three years having past since your comment, how are you doing today?

hello Deb and hello Cath

I have the same type of pain which is likely Gastritis again. I have this now the 3rd time. I tried all PPI's and they didnt help me either....plus made me feel a lot worse. also H2 blockers didnt help.

I think also an Endoscopy would be an idea ....to reassure you ... and to exclude ulcers .

I found in the past : It is unreal how much pain and nausea and fatigue you can get from 'only gastritis' . An endoscopy is not a big deal and doesnt take long at all.

hello ! im just looking for help and tips on what to do my husband has had chanical gastritis for almost to years now and his GP had not been to much help . he has taken nexiun 2 pills in the am and at night it worked for a while then one day just stoped . they switched him to protonix 20 mg 2 pills in the am and in the afternoon . and sucralfate . along with his ppi. he has quit smoking , all caffeine, and is on bland diet. gluten free ,dairy free , chicken rice ,tuna and gluten free oatmeal for breakfast . He is loosing hope . does anyone have any other things that have helped? worth a try ?!? thank you !!!

I get the ache in the back too a lot of the time and it becomes a lot worse in flare ups.  Maybe you need the dose of your PPI adjusting or even a change of PPI - some people seem to do better on one over another.  I am on a very high does of Omeprazole which seems to work most of the time but then out of the blue I have a flare up and I'm back to square one.  Talk about 3 steps forward, 2 steps back.   I follow for the most part a very bland diet of soups and complan with steamed fish and very soft vegetables which seems to help but as soon as I feel a little better I eat something different and everything flares up again.  For some people it can be very nasty and take a long time to clear up.  There are also some natural remedies which may help.

Also a malfunctioning gallbladder can cause a lot of the same symptoms without their being any stones present.  A Hida scan will tell you how well the gallbladder is actually working - mine was working at only 8% so it had to be removed earlier this year - there were no stones present though and my ultrasound was clear and this greatly delayed my diagnosis.

In my case a normal ultrasound caused great delay in me receiving treatment - 3 months to be exact with daily agonising pains.  I thought I was going to go mad too trying to convince doctors that my symptoms were real when they clearly didn't believe me. 

My goodness does this whole thread resonate with me! Really happy to have found it. I have been diagnosed with IBS years ago and just in the past year have had symptoms of Gerd, pain in shoulder blades weird sandpaper tongue , abdominal pain as well as chest tightness during a flare up. I was put on Protonix a year ago and have experienced the diarrhea and still went on to take it. I tried to wean off unsuccessfully in March of this year and had to go back on it after full rebound and then losing 10 lbs. I am now on gf and dairy free diet for almost 2 mos and seems to help for the most part except when i cheat me. GP and gastro disagree about what is causing this gastro thinks it is sensitive nerves and GP says it is the mild gastritis that showed up on endoscopy they both agree that it will take but will get better. Suffering in the meantime is the problem. going to try MRT food sensitivity test figure have nothing to lose if it may help! Have also discussed dropping down from 40 mg to 20mg of ppi but am scared of rebound again