Gastritis diagnosed but PPI's not working

Thanks for the reply, I'm relieved that I'm not the only one.  I've had an abdominal ultrasound and was told all seemed to be ok, gallbladder, etc. However, I don't know if this would have looked at the pancreas as well? I've read lots of stuff online that's scaring me so I will check that with my GP.  Also has blood tests and breath test for h. Pylori and all came back ok. How long have you been suffering?

I was told I had mild gastritis about 3 years ago now and then a recent endoscopy just said gastritis so I suppose it's moved on a bit from being just mild. I blame a massive amount of stress that I have endured for a very long time. The PPIs made me feel ill so I stopped taking them. My pain is more intermittent but is always there at some time of day. I'm due an abdo scan next week. I've been told that an abdominal scan consists of kidneys, liver, gall bladder and pancreas. Sounds good that your bloods came back all normal. 

You sound as though you are doing what I would imagine most of us posting on here do and that's Google our symptoms and scare ourselves stupid! I do it all the time, just can't help it.

Why don't you book an appointment with your GP for as soon as possible, tell the Dr what you think it could be and let the GP put your mind at rest. I think this is the only way you will get true peace of mind. As far as your pain goes, you might find it eases a bit once you are more relaxed.

i wish you all the best.

xx

Hi Deb,

Looks very much like I'm in the same boat, too.

With three years having past since your comment, how are you doing today?

I get the ache in the back too a lot of the time and it becomes a lot worse in flare ups.  Maybe you need the dose of your PPI adjusting or even a change of PPI - some people seem to do better on one over another.  I am on a very high does of Omeprazole which seems to work most of the time but then out of the blue I have a flare up and I'm back to square one.  Talk about 3 steps forward, 2 steps back.   I follow for the most part a very bland diet of soups and complan with steamed fish and very soft vegetables which seems to help but as soon as I feel a little better I eat something different and everything flares up again.  For some people it can be very nasty and take a long time to clear up.  There are also some natural remedies which may help.

Also a malfunctioning gallbladder can cause a lot of the same symptoms without their being any stones present.  A Hida scan will tell you how well the gallbladder is actually working - mine was working at only 8% so it had to be removed earlier this year - there were no stones present though and my ultrasound was clear and this greatly delayed my diagnosis.

In my case a normal ultrasound caused great delay in me receiving treatment - 3 months to be exact with daily agonising pains.  I thought I was going to go mad too trying to convince doctors that my symptoms were real when they clearly didn't believe me. 

My goodness does this whole thread resonate with me! Really happy to have found it. I have been diagnosed with IBS years ago and just in the past year have had symptoms of Gerd, pain in shoulder blades weird sandpaper tongue , abdominal pain as well as chest tightness during a flare up. I was put on Protonix a year ago and have experienced the diarrhea and still went on to take it. I tried to wean off unsuccessfully in March of this year and had to go back on it after full rebound and then losing 10 lbs. I am now on gf and dairy free diet for almost 2 mos and seems to help for the most part except when i cheat me. GP and gastro disagree about what is causing this gastro thinks it is sensitive nerves and GP says it is the mild gastritis that showed up on endoscopy they both agree that it will take but will get better. Suffering in the meantime is the problem. going to try MRT food sensitivity test figure have nothing to lose if it may help! Have also discussed dropping down from 40 mg to 20mg of ppi but am scared of rebound again

You*( I meant how "you" are)

My gastritis started after a couple rounds of antibiotics.. started with nausea then my Dr. Put me on a Ppi with carafate. I then started feeling worse and 2 weeks I had full blown gastritis. Scope confirmed no ulcer. So I went off the ppi and started zantac with bad side effects. So the specialist put me back on ppi nexium and things started to look better with brats diet. But then it's slowly getting worse each day. I was reading that ppi drugs can in some causes cause gastritis. So you keep taking the ppi to keep from getting an ulcer but slowly it just gets worse. I feel like I'm on a rollercoaster of better days and bad days. Taking the ppi Capsule apart and lessening the dose does sound like a good way to taper off but fearing a major gastritis attack. Carafate also keeps me awake all night. I get 2-4 hrs each night.

Hi

Just wondering how you're getting on? I see you posted this thread 6 monthes ago.

 I had a gastroscopy and colonoscopy 5 days ago and they found gastritis with some bleeding. 

Your post got me though because I'm 100% convinced that my condition has developed after taking ppis (for just 6 weeks). 

I started taking ppis for reflux back in May time was on them for 6 weeks and had no choice but to stop due to the abdominal cramps and diarrhea. I thought stopping would help but stopping didn't do anything! I've suffered ever since and I never had any stomach issues before then. I'm waiting for my biopsies to come back now but I'm terrified of what I've done to my stomach! 

Everything I read seems to recommend taking ppis to fix gastritis but what do you do if it caused it?! 

Sorry to hear you were suffering. What has your experience been? Are you any better now? 

Angela 

ProtonStar

Has anyone had any updates at all? I've had it for almost two years with no relief

I fell exactly like you, Angela. I was prescribed PPI two years ago for suspected silent reflux. Two weeks into taking it, I got intense stomach pain radiating into the back, never had such pain before. stopped taking medication, pain got more tolerable but never went. GP said pain was probably coincidental to cause the pain and put me on another PPI. Again, after about two weeks, same intense pain, stopped medication. Rnitidine did not help much either. Same thing after trying a third type of PPI. Pain also made me feel nauseous plus I got too loose stools making me lose too much weight. MRI was normal. Endoscopy of stomach showed two benign polyps and gastritis, probably medication-induced so the consultant said initially assuming I regularly take aspirin or ibuprofen which I did not. He then said, probably stress-related which I find hard to accept as well given the low stress level I have. I cannot help thinking the PPIs caused it. Since then, I still get flare ups of this stomach/back pain (luckily not as intense anymore) mainly long after eating/empty stomach. Feels like my gastritis has never really cleared up despite all the careful eating. Need to see the doctors again.

corrections: GP said PPI and pain onset was probably coincidental. Ranitidine, not rnitidine.

esthi4711