Gastroparesis Input?

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Does anyone have any input as to how strong our reglan needs to be? I was given the 0.5 strength before I was given the gastric emptying test, but it was low because we didn't have the results yet. But this strength just doesn't seem to be working...

Also, any tips on what kinds of cereal is safe to eat? If I eat oatmeal, cream of wheat or anything similar, I feel horrible all day long. And coffee with cream? I miss it!

Thanks....

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4 Replies

  • Posted

    Hi teri422

    Sorry can't help with reglan or gastroparesis input..i'm sure there are others in the forum that can help with that. I can suggest eating gluten free and wheat free cereal which you can buy from the 'free from' section in a popular supermarket in UK if you are a UK resident..if not i'm sure wherever you are in the world there will be somewhere you can get these cereals...also regarding coffee take decaf coffee with lactofree cream and you can get the lactofree cream at the same supermarket in UK in 'lacofree' section.....hope this helps...best wishes...

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    • Posted

      Hi teri422

      Forgot to mention ..also use lactofree milk with the cereal.....best wishes..

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  • Posted

    Hi Teri

    I have to eat gluten free so I just eat gluten free cereal. The gastroparesis specialist dietician I saw switched me to 'white' cereal - that is cereal that is NOT wholegrain. It must be low fibre. The fibre or wholegrain makes it much harder for our stomachs to digest.

    I cannot eat oatmeal. You could try flaked rice as a porridge. I am not that great with those type of semi liquid/solid things as they 'sit' in my stomach for hours.

    Try to figure out if you are okay with milk. If not, switch to a milk like rice milk or coconut milk alternative. Stay away from nut milks unless you know you are okay with them as nuts are also hard digestively for lots of people.

    Also, if you are okay with dairy milk and coffee, you could switch to a cappuccino or similar as you will enjoy the benefit of the milk calories. I can drink coffee, but am not very good with tea!

    I get some fruit via baby pureed fruit pots. I add a few spoonfuls to cereal as a topping. The dietician also got me to try cottage cheese. I have that on crackers and I can tolerate it. I also tolerate some smoothies designed for children (about 90-100 calories worth), which adds more nutrients I hope. I also manage to eat a bit of yoghurt, cream cheese, white gluten free toast, plain low fat gluten free vanilla cake (homemade), baby food version of chocolate pudding, small rice pudding pots, jelly (Jello)...

    I am supposed to eat every couple of hours - tiny amounts - so I am currently on 6-7 'meals' a day. They are trying to halt my weight loss. Some days I manage it, other days I don't. I keep trying.

    I try to eat some main meal type food, but in very small portions. I am limited in my success. I managed a bit of baked gluten breaded cod with a few baked chips (fries) and a few green beans tonight. The lighter the better - so white protein, white carbohydrates, and safe veg (I can usually eat carrots, some green beans, and sometimes chopped spinach or chard).

    I can't help with the Reglan as I am on Erythromycin at the moment. Have you looked at the AGMD site? Google it if you haven't already looked at it. You might find the answer there.

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    • Posted

      Wow Louise, you've sure given me lots of ideas to try. I hadn't thought of cottage cheese. I'm finding that eating so many small meals can be tough as I don't feel hungry, but then force myself. I've been eating avocado's as they do help.

      The weight loss I am enjoying. I've been trying to lose weight for years but wouldnt wish this on anyone. It's not the way to lose it.

      Am curious, do you find yourself getting nauseous when really you're hungry?

      thanks again for all of your tips!!! Teri

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